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TestyTommy

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Everything posted by TestyTommy

  1. TestyTommy
    I'm in the self-diagnosed category. I'd been sick for 8+ years. I'd seen dozens of doctors who shrugged their shoulders and told me it was all in my head. And tried to stuff me full of anti-depressants. I finally found a good doctor who wouldn't give up til he diagnosed me. My blood test for celiac was negative, but he said that the blood test often...
  2. TestyTommy
    The short answer is: "yeah, you're probably still getting gluten". It takes a while to figure out this diet. It took me a good 6 months til I found all the gluten in my food (my last surprise gluteney food was sour cream -- who'da thought sour cream would be full of wheat!?!) Be patient. It will takes a few months to get all the gluten out of your body...
  3. TestyTommy
    Chicken is one of those 'hidden gluten' foods that you have to watch out for. It could have been the marinade; it could also have been something injected into the chicken. Take a look at the wrappers for most roasting chickens and you'll see most of them are injected with all sorts of junk. So my guess is you got glutened by the chicken. Cheese is less...
  4. TestyTommy
    I have really dry skin, too. It was one of my first symptoms when I got sick years ago. It's improved since being gluten-free, but it's not gone. One doctor I saw said it's caused by 'activated mast cells'. Mast cells are part of the immune system and located in the lower layer of skin. They produce antibodies. It helps to keep your showers short...
  5. TestyTommy
    So what's the name of the book????
  6. TestyTommy
    I think it's reasonable to assume that how quickly we heal from celiac disease is going to depend on things like age, general health and how long we were sick before being diagnosed. If you're 18 and got diagnosed quickly, you're much more likely to heal quickly than someone who is 50 and was sick for 15 years before being diagnosed. I don't trust doctors...
  7. TestyTommy
    Kelli, Don't worry about navigating St. Paul -- it's easy. If you're coming from the west, I'm guessing you'll come into the Cities via 394. Just follow it to I-94 (heading east) and exit onto 280 (about 2 miles after you cross the Mississippi -- it's a LEFT hand exit). Follow 280(a mile or so north of I-94, and then exit onto Como Avenue. The seminary...
  8. TestyTommy
    Hi Kelli! Are you talking about the ROCKfest on Saturday? I'm planning on going. Most gluten-free bread is nasty. The only gluten-free bread I'll eat is from Cooqi. They also make hamburger buns that are awesome -- I especially like the onion buns.
  9. TestyTommy
    Hi Skyepie! Can you give us some recommendations for restaurants and/or gluten-free stores in Rochester? I'd like to check them out when I'm in Rochester.
  10. TestyTommy
    Anyone go to the State Fair? There was a 'Gluten-Free Living' booth at the KARE 11 Health Fair. I also noticed that the beer stands were serving Red Bridge, a gluten-free beer. I had my first beer since going gluten-free, and it was actually pretty good. I'm going to the Vikes game tomorrow. Anyone wanna bet there's no gluten-free beer at the Dome...
  11. TestyTommy
    I started feeling better in a few weeks and much better after a few months. But after about 1.5 years gluten-free, I'm still not 100%. I feel better than I have in years, though, so I'm staying optimistic. I suspect the biggest factors in healing are (1) how long were you sick, but not diagnosed and (2) how old you are. If you're in your 20s and get...
  12. TestyTommy
    Boy, does this thread bring back bad memories. I was sick for years and went from doctor to doctor who told me that there was nothing wrong with me. The only lab test that wasn't normal was elevated liver enzymes. Two doctors refused to test me for celiac because I didn't have D. They all wanted to put me on anti-depressants (which i did for a while,...
  13. TestyTommy
    There is nothing good to say about the weather out here. It's bitterly cold in the winter and nasy hot and humid in the summer. Spring and fall usually last about 3 days each. It's always either too hot or too cold. I grew up in Detroit, and the weather there is way better than in Minnesohda. And places like North and South Dakota are even worse. It...
  14. TestyTommy
    I thought I'd give a Cooqi update, since I go there at least twice a week now. The store is still open four days a week -- Wednesday til 6:00. Thursday til 8:00, Friday til 6:00 and Saturday til 4:00. They have a lot more people working there (I counted six last Friday afternoon), and every time I go there now, there is a big selection. There are...
  15. TestyTommy

    ARCHIVED Thirst

    TestyTommy replied to Niteyx13's topic in Related Issues & Disorders

    Hi Kassandra, Thirst can certainly be a sign of diabetes, so you should get tested. My problem (and the problem of some others on this thread) is that we were negative for diabetes, and then no one bothered to test us for anything else -- like celiac! Another thing: watch your electrolytes. If you're drinking a lot of water, it may not be getting...
  16. TestyTommy

    ARCHIVED Thirst

    TestyTommy replied to Niteyx13's topic in Related Issues & Disorders

    I was tested multiple time by multiple doctors for both types of diabetes. But, of course, since I didn't have it, the tests were always negative. Then the doctors would give up. "Well, the tests were negative, so there must not be anything wrong with you. It must be in your imagination." My sister was also diagnosed with celiac a couple months ago...
  17. TestyTommy

    ARCHIVED Thirst

    TestyTommy replied to Niteyx13's topic in Related Issues & Disorders

    Add me to the thirsty list. I used to drink 3-4 gallons of water a day! In restrospect, it's easy to see that the more wheat I was eating, the thirstier I got. At the time, though, I never made the connection. Instead of dehydration, I ended up in the hospital with hyponaetremia -- I drank so much water that I diluted my blood so much that it couldn...
  18. TestyTommy
    My medical odyssey that led to me being diagnosed with celiac started 9+ years ago, when I suddenly started developing allergies at the ripe old age of 36. This is my first spring that I'm gluten-free, and my allergies seem less severe (though not gone). My allergist says that I may have "pseudo-allergies". When the immune system is activated/irritated...
  19. TestyTommy
    I get that sunburned feeling all over my body. It was one of the first symptoms I got, many years ago. I'm still waiting for it to go away (I'm gluten-free for a little over a year).
  20. TestyTommy
    I'm concerned about having possible thyroid problems. My doctor did a TSH test and it was normal. I seem to recall reading some posts about other, more precise thyroid tests. Can someone explain thyroid testing to me? Whick tests should I ask my doctor to perform? Thanks for your help!
  21. TestyTommy
    I've been making a twice a week pilgrimmage to Cooqui for the past few weeks, and I thought I'd give an update. Today I got some focaccia that was absolutely great. Most of the bread has a non-breadlike consistency (ie, it's good, but no one would mistake it for wheat bread). The focaccia was chewy and tasty, and you probably couldn't tell it from a wheat...
  22. TestyTommy
    For me, my recovery seems to go in spurts, followed by long plateaus. I've been gluten-free for just about a year. The first few months saw big improvements, then things stabilized. After a year, I'm not close to 100% recovered, but I feel better than I used to. I suspect recovery depends on lots of things, especially age (or lack thereof!) and how...
  23. TestyTommy
    I agree that there is NO downside to eating gluten-free, even if you have don't have celiac. When I was being diagnosed, I remember reading how doctors insist that everyone get a biopsy before they take the "extreme" step of going gluten-free, and I couldn't figure out why they thought it was such a big deal. Compare to how sick I was (and how many weird...
  24. TestyTommy
    I don't follow how calling celiac a disease rather than a choice is equated with giving up or being angry. I haven't knowingly consumed gluten since I found out that I'm a celiac. Obviously, having a disease like this is going to change anyone afflicted with it. But if I truly had a choice, I could eat pizza and drink beer. I can't. Maybe what we're...
  25. TestyTommy
    Those of you calling celiac a 'choice' are using a ridiculously broad definition of 'choice'. Sure, we all have a choice of what we put in our mouths. No one follows me around and tasers me if I eat gluten. And there are morons out there who would rather have their intestines destroyed than give up cookies. If I eat gluten I get sick. That's not a...
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