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katesyl

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by katesyl

  1. katesyl
    I am sorry as well. I too am freaked out about other health related items right now. I know how Dr. Google makes us panic so badly... and yet... It's so hard to stay away. I had neck swelling this summer noted on one of my routine doctor's exams. She rushed me off to get thyroid lab work and a thyroid ultrasound, all of which were normal. Mind you, I...
  2. katesyl
    I am so sorry that you have to beg them to look after your health. I wish you the best for your test results to come back okay!
  3. katesyl
    I know your post is over a year old and you may not see this. I'm a twenty-five year old female who is on the Illinois side of St. Louis as well. I have never had a true in-life friend who I could relate to with celiac, either. It would be so nice to have someone who understood in real life.
  4. katesyl
    I am twenty-five now. I was diagnosed at age twenty-two.
  5. katesyl
    I agree with you. Also, the more you worry about your health the worse it actually gets. It really is a viscous cycle. Having said that, I'm glad you have doctors who want to continually follow up. I got diagnosed three years ago and have felt my follow ups to be insufficient. I had a CRP this summer for the first time because of some neck swelling I had...
  6. katesyl
    I am wondering though, what if I went to a restaurant and it read "gluten found" in my food, then what? I would just sit hungry and pass my plate off to someone else to finish, lol.
  7. katesyl
    Has anyone here had their hands on a Nima sensor yet (or known someone who has)? What is the overall opinion? I love the concept.
  8. katesyl
    I agree. I have developed health anxiety. Major.
  9. katesyl
    True, but he just made an account and that was his only post so far.... lol it IS a support group after all
  10. katesyl
    I have heard this before as well. I have never personally had a problem with rice though, and I eat it frequently in place of meat (like on tacos). I never eat white rice anymore though, I try to go for brown rice. I should probably by the non-instant rice though.
  11. katesyl
    I also wanted to know the answer! I have some red spots showing up and they sound like the angiomas. I had showed them to my primary care doctor and she briefly glanced at them. I can't remember what she called it, but I wasn't sure. I am getting more of them. I know I have been glutened unknowingly this summer quite a few times when eating out. (CRYING OUT...
  12. katesyl
    The elevated platelets was due to Vitamin K deficiency?
  13. katesyl
    I always assumed plain coffee was, but I have seen some controversy online about this. I know someone who is gluten free and only buys whole beans and grinds them herself because she doesn't trust how the grounds are processed.
  14. katesyl
    Thank you for this response! You are right, I'm sure. My sed rate was normal. My c reactive protein was 6, which is high. My platelets were a bit elevated and I was slightly anemic. I am going tomorrow for another endoscopy. I know that these things could be related to other things... but I'm thinking there is a change they are all still related...
  15. katesyl
    I would like to know if you have found out the source of your inflammation yet. I'm gluten free three years but my inflammation test was high.
  16. katesyl
    You are right. The weirdest part is that I feel fine, however, I am sure cross-contamination is doing damage even when we don't think it is.
  17. katesyl
    This is a good point as well. Might come down to this.
  18. katesyl
    I do think this is interesting that your symptoms were different than before you were diagnosed. I am sure that is true of me as well.
  19. katesyl
    I'm having some issues, that I didn't really even know I was having until the blood work showed them. Retracing my steps, I eat very strictly gluten free at home. I eat too much dairy (which is not only a problem for many celiacs, it is also not an anti-inflammatory). The husband and I have eaten out a lot over the last three years of my diagnosis. I guess...
  20. katesyl
    I have been gluten free for three years and I had never *noticed* any neck swelling... but recently at a routine appointment they noticed my neck was swollen. Thyroid ultrasound and thyroid blood work was good. I went to my primary care doctor and she did some blood work. Slight elevation in platelets, elevated C reactive protein, somewhat anemic. Going to...
  21. katesyl
    What did you find out? My CRP level is elevated, platelets are slightly elevated, slightly anemic. I am going to GI doctor tomorrow. I am a worrier as well.
  22. katesyl
    So what did you find out? I found out my platelets were elevated somewhat and I am somewhat anemic.
  23. katesyl
    I have been gluten free for three years, and I just had an elevated CRP, along with mildly elevated platelets... going to GI doctor tomorrow... I am strictly gluten free at home, but I am wondering since the husband and I eat out A LOT, if I have been harming myself at restaurants... I need to quit eating out I am guessing. I hope that is all. Can't wait...
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