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blueeyedapple

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blueeyedapple last won the day on November 17 2016

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  1. blueeyedapple
    My GI doc seems knowledgeable so I am not passing judgment on him yet - we will see what he says in two weeks. It is an awful long wait to see him again but it will give me more than a solid month of gluten free under my belt. I will be taking with me a list of the symptoms I have been having for the past 7 or 8 years and noting which ones are better on...
  2. blueeyedapple
    Gluten free, week 3. Diarrhea has stopped. I have never been so happy! I see doc for follow-up in 2 weeks to discuss my scope results.
  3. blueeyedapple
    P.S. GFinDC, my husband does not agree with your tag line! For the past month I have been blaming the horrendous smell on celiac disease . . . now I have to go back to blaming the dog
  4. blueeyedapple
    My daughter will likely be getting scoped when she returns home in the spring. She was hoping to avoid it because she has gone gluten free and isn't terribly excited about doing a gluten challenge. If I had been diagnosed positive then the doctor was going to have a look at her test results and decide if it was required - so now it appears that it will...
  5. blueeyedapple
    My daughter had the test in Australia. They seem to only do the screening tests too. Her total IgA is within normal range, her TTG IgA was 68 and the reference range for the test was normal if less than 15 and her deamidated IgG was 11 with the normal being under 7, there was some note that they used the ELISA testing for this. From what I have read...
  6. blueeyedapple
    I feel that the blood test should be enough too. I understand that other things besides celiac can cause the TTG IgA to return a positive result but my daughter's results are also positive so it doesn't make sense that it is anything else.
  7. blueeyedapple
    I can absolutely ask for a copy or at the very least to see the results. I haven't seen him yet though, I will ask for that when I see him in December. I just spoke to his secretary this morning.
  8. blueeyedapple
    He said he was going to take 4 or more samples. I have no other information than what his secretary told me today, that it is normal. I am going to continue with the gluten-free diet until I see him (December 19). Maybe just before that I will eat some gluten so I can go to him and be able to say it clearly is causing me issues. I am just so frustrated...
  9. blueeyedapple
    The scope results came back normal. I am so frustrated that I want to cry. It has only been 4 days gluten free but the bloating is gone and the pain after I eat is gone. My daughter's blood test came back positive, my blood test came back positive. How can the scope be normal? I have a follow up appointment with him in a month.
  10. blueeyedapple
    Sadly, yes, this is what I am saying. I have two cake orders that I have to do and all the cookies for Christmas. It is too late for me to back out of the cakes and it is too late for me to come up with an alternate plan for Christmas. It is 4 weekends and since I have been suffering for 9 years (or more) I don't think a month will make a huge amount...
  11. blueeyedapple
    Thank you. I will have to get these. I am an avid baker and hobby cake decorator. I bake about 2500 cookies every christmas as gifts. It is too late to change things up for this year, baking season starts saturday so I will have to suffer through and clean everything before I eat anything. My husband will sadly have the burden of taste testing every batch...
  12. blueeyedapple
    No. Just no. I am not giving up bread, beer and all the wonderful glutenous foods AND pickles, avocados, cheese, tomatoes and all the other wonderful things on that list. That would just be unfair. However, of the list in the second link I do have the GI symptoms, fatigue, hives, brain fog, anxiety and the sensitivity to sunlight (I have polymorphic...
  13. blueeyedapple
    I went to nursing school (not working as a nurse) so I can't use that excuse. I knew it wasn't normal but I always assumed it was stress and IBS. But there is a difference, my IBS is extremely painful for a very short period of time - I would sit in the bathroom and cry and scream, have cold sweats and then it was gone. When the diarrhea started becoming...
  14. blueeyedapple
    Oh and the hives, we are pretty sure they are hives. They appear and then disappear within a 30 minute time frame. They are particularly bad in warm areas (groin, arm pits, under my breasts) which is super fun when I am out in public . They have been mostly kept at bay with prescription strength Reactin every day. I read that idiopathic hives can...
  15. blueeyedapple
    ooops. I responded on the wrong thread.
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