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pavlovcat

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  1. pavlovcat
    The earliest I can get in with an endo is November, but I do have an appointment scheduled. I also have a second opinion scheduled for Monday with another general practitioner. My gastro did tell me that it was possible the damage was patchy and he just struck out with all the biopsies. It's frustrating not to have a solid diagnosis though, especially...
  2. pavlovcat
    That's interesting. I did have the pill camera a decade ago and it didn't find anything, but I am decidedly sicker this time around. Part of the reason I'm hesitant to keep pushing for more tests is because I remember that terrible year when I had a bad flare a decade ago. Test after test after test with no conclusive results. It was exhausting and expensive...
  3. pavlovcat
    Thank you so much to everyone who's responding. I guess when I heard there was no damage found in my intestines I assumed that I wouldn't have to deal with a long, drawn out recovery in terms of intestinal issues, but perhaps that isn't true. Posterboy, I will check into the Magnesium Glycinate. Cyclinglady, yes, my hormones have been a little...
  4. pavlovcat
    I've never considered having PCOS. My primary symptom is chronic diarrhea (often without any cramps - just varying levels of discomfort and urgency, but every few months I have an attack so horrendously painful that I almost pass out and the last time I was vomiting as well). 2 years ago I was diagnosed with GERD but the only symptom of that (at least,...
  5. pavlovcat
    I know it's a long shot but I'm hoping someone else out there has a similar story and can provide some encouragement or guidance. So I'm diagnosed with Celiac despite a negative biopsy. My gastro made the diagnosis based on being positive for the celiac gene and having elevated levels on the TTG test. A decade ago I also tested positive two times on...
  6. pavlovcat
    If i'm remember correctly, there's about a 2% false positive rate for the blood tests. The rate is higher among those with another autoimmune disorder.
  7. pavlovcat
    King Arthur Flour has excellent mixes and gluten free recipes if you enjoy baking. If you live in a city, there are bound to be bakeries and cafes that make gluten free items and some groceries stores that stock them as well.
  8. pavlovcat
    I'm glad you finally have some answers. I've found that my heart seems to race after inappropriately small amounts of exertion (walking up the stairs) at times and I do frequently get the "head rush" feeling upon standing. At this point I've been attributing it to lack of food since I've been sick for so long that many days I barely eat anything. If...
  9. pavlovcat
    After two years of being sick, my gastroenterologist diagnosed me with celiac yesterday, but I'm skeptical. As far as I'm aware, I only had three tests specific to celiac. Blood test results: Transglutaminase IgA Abs 19.3 U/mL Biopsy results were normal (no idea of how many samples he took) Prometheus genetic...
  10. pavlovcat
    Not that I'm aware, frieze. I was eating some crackers with tamari in them, but those were upsetting my system so I stopped after a few days.
  11. pavlovcat
    Thanks for the responses. My GI doc did run lots of blood tests but I don't believe I've ever had a full thyroid panel done. I know celiac can cause fertility issues, so it makes sense that recovering from celiac would affect my hormones, but I've never read about anyone else dealing with this type of thing. I don't seem to have other thyroid related symptoms...
  12. pavlovcat
    I've been gluten free for 2 months now. My doctor is still not sure whether I have non-celiac gluten sensitivity or celiac (blood tests positive, biopsies negative, still waiting for gene test results). Since going gluten free my hormones seem to have changed. My acne is suddenly back after being gone for years, my nails split and peel (something they...
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