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Latest Celiac Disease News & Research:
Everything posted by BlackShoesBlackSocks
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ARCHIVED Clubbed Nails...flattening?
BlackShoesBlackSocks posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This is so crazy to me. my nails have been clubbed since childhood, not anything as severe as what you would see in pics if you googled it but enough for doctors to mention. l noticed today at work the front of my nails looked different, kind of smaller l kept staring and eventually turned my thumb and fingers to the side and my fingernails now... -
l'm almost 30 days gluten free and l also believe l will give it up again soon. l didnt smoke weed regularly for a solid decade. l didnt smoke it all for over 5 years. Looking back, even at 17 l was trying to fix something 'wrong' with it but just had this defective feeling l assumed could never be explained. My other fixes were massive amounts...
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ARCHIVED Yet another "Do I need a proper diagnosis?" post
BlackShoesBlackSocks replied to out-of-step's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
l relate. l have had very little 'powerful' cravings for gluten though, like sometimes mentioned. If l really wanted something carby l'd get a baked potato. The only challenges for me currently will be financial and awful meal planning skills. l really think sticking to the diet is possible for you! But it is very hard to stay motivated when you begin... -
ARCHIVED Cake...
BlackShoesBlackSocks replied to BlackShoesBlackSocks's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Cool. l actually did a lot of the things you did, Ennis_TX. and hated pizza until l was like 10, picked buns off of bread BUT l have to say l didn't have the digestive issues then. l always drank a crap ton of soda with carby foods though, for me it helps bloating which now leads to the god awful, eventual distention. lol. l always... -
ARCHIVED Cake...
BlackShoesBlackSocks posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
l've never had birthday cake at my parties since l can remember, maybe age 3 or 4 was the last time. l can't handle it. Dizzy, nauseous, and generally feeling very weak after eating it, l tried to get into it in adulthood and no haps. So l have cheesecake which is amazing and no reaction (l dont love the crust, l think it makes me feel a little... -
ARCHIVED Eyes...wow.
BlackShoesBlackSocks replied to BlackShoesBlackSocks's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
l actually got RXed Zaditor which is great because it's expensive, lve been using two drops though so will use one. l don't know if anyone else feels like the blood vessels in one or both eyes look dilated or broken sometimes but l finally bought some real Sudafed and it does seem to help, although l guess l just have wonky sinuses. -
ARCHIVED Anyone Know Much About RH Factor?
BlackShoesBlackSocks replied to BlackShoesBlackSocks's topic in Related Issues & Disorders
l think l've read this before in a 'research' haze also wondered why they used online surveys. Didn't they also say they posted it on social media? Facebook l think, with no way to verify it. l will look over it again because it does look like there is interesting information there. Some of the conditions don't specific to the RH factor at all... -
ARCHIVED Anyone Know Much About RH Factor?
BlackShoesBlackSocks posted a topic in Related Issues & Disorders
What exactly is the relation of lacking RH factor in regard to autoimmune conditions? One of the reasons l suspected celiac or gluten intolerance, is based on matching symptoms and because l've kind of been waiting for an autoimmune to 'drop' for awhile. When l was 19 and a nurse told me l had Raynaud's l googled everything l could about it,... -
ARCHIVED Weight Not Changing, But Looking Better?
BlackShoesBlackSocks replied to BlackShoesBlackSocks's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It looks like it turns out my scale is totally wrong! Was at the doc for unrelated things and 104.6, l think. This means l've gained more weight under 2 weeks being gluten-free than l did for 6 months, eating regular meals, fast food, and Boost! Last time l was another scale was last month, and was 98 at that appointment. l know the... -
ARCHIVED Eyes...wow.
BlackShoesBlackSocks replied to BlackShoesBlackSocks's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
l will definitely try it, l think allergy meds make dry eye worse so l was hoping for something to take internally that might reduce it. Today l got RX Zaditor and even if it works, can't be good for dry eye. -
ARCHIVED Eyes...wow.
BlackShoesBlackSocks replied to BlackShoesBlackSocks's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
l have a suspected mold allergy but i may be using that liberally...as far as l know im not allergic to molds in foods, like tomatoes or bread or anything. just very severe reactions to rain and humidity. l'm actually headed to the urgent care right now, feeling fine but l've been looking for a place to do an ''ear wash'' (wax removal) for a... -
ARCHIVED Eyes...wow.
BlackShoesBlackSocks replied to BlackShoesBlackSocks's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
l didnt get too deep into reading about the surgery and really blocked out the possibility of having it when l read that sometimes it's necessary. It may be just plugs that was called 'surgery'/ Have you found anything that works? It seems like it's very hard to treat and in many cases can be related to Celiac, but by the time some of the (damage... -
ARCHIVED Eyes...wow.
BlackShoesBlackSocks posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
So my eyes have really taken a beating for multiple reasons. The left constantly waters and hurts. ENT's opinion was allergy migraines, no antihistamines work, sometimes they may make the eye less watery but the pain can be even worse, they also seem to make the blood vessels look more dialted which eventually just makes everything worse. The... -
ARCHIVED Weight Not Changing, But Looking Better?
BlackShoesBlackSocks replied to BlackShoesBlackSocks's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Oh my goodness the flat palms on the hands! l have a pic on my computer of this, l took a home TTG test and the company asked me to send to a pic of the result, l kept looking at the fat pads on the edges of my palms by the thumbs Nothing there, they start to look deflated and dehydrated sometimes as well. l am 33 so l'm starting to wonder what... -
ARCHIVED Weight Not Changing, But Looking Better?
BlackShoesBlackSocks posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
l am still just under 2 weeks gluten free. At first l actually dropped back to my low weight of 97, l am usually around 99 by the end of the day but am now 97 again in the mornings. Before being gluten-free or thinking about Celiac/gluten l had A LOT of anxiety about being this low, and everyone commented on it which probably added... -
l'm really glad you know whatl mean by ''the'' pain, in the same spot. l had never had that kind of pain before. l know it doesn't mean that it's gluten related specifically, but it is a realllly awful stomach ache. if l had never tried to figure out what it was l may be getting them at work daily now, it would suck to have to leave because of a stomach ache...
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ARCHIVED Signs of Celiac disease? Short 5th finger?
BlackShoesBlackSocks replied to MarkInes's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Are pinkie fingers not short, lol? Hm, the only finger length science l've seen is based on hormonal influence. Sex hormones in the womb affecting the first and fourth finger. It can be correlated with certain conditions but not usually autoimmune. The 'masculine' long ring finger in women can be more common in autistic women or women... -
ARCHIVED Anxiety and Wheat
BlackShoesBlackSocks replied to CrisD's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
l have a generalized anxiety disorder diganosis from around 06. l never felt like l fit into the anxiety disorders even though l was obsessive all my life, l actually do think l had a brief display of OCD behaviors around 5th grade. It really did hit to the point l had a few single panic attacks which l'd never had before around 2... -
Hey all So l am undiagnosed but along with other symptoms have had increasingly bad stomach aches for over the past year. They are specific, l tend to remember what l was doing and where l was when l have them. It's ''that'' thing again. l don't believe l had this kind of stomachache in childhood or even as a teenager, ever. Likely...
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ARCHIVED Rapid Testing (Finger Prick)
BlackShoesBlackSocks posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Has anyone tried a test like this? l really want to make sure, even though l know bloodwork isn't always a confirmation, that l have something to go on here. l took a test called Gluten Check. It's a small panel with a two line format for control line and the result line. 5 drops of blood are put into the circular spot near the side... -
ARCHIVED celiac and wierd new symptoms....Arthritis? Lupus?
BlackShoesBlackSocks replied to artsunshine's topic in Related Issues & Disorders
stiff fingers and feet have been bothering me for over 5 years. l actually have wrist pain now, being gluten free. Before being gluten-free l would say l felt inflamed and puffy all over with some pain on the outside of my feet to where in the mornings l kind of had to walk almost on the 'outside' of them. Then after a shower it was better but... -
ARCHIVED Newb...Feeling Silly, But Better
BlackShoesBlackSocks replied to BlackShoesBlackSocks's topic in Introduce Yourself / Share Stuff
l drink/drank a ton of Ensure so lm not sure if l have any deficincies at this point, although the vitamins in these drinks arent always absorbed properly. And l felt like l was absorbing nothing anyway with the weight loss, l got a scale which l never had in my own place, l would wake up 3-4 lbs lighter the next day after heavy eating, regularly... -
ARCHIVED Newb...Feeling Silly, But Better
BlackShoesBlackSocks replied to BlackShoesBlackSocks's topic in Introduce Yourself / Share Stuff
Thanks, l have seen these but am not able to afford most at this time. l did take a test called GlutenCheck, l should have clarified, not a mold allergy test, just a guess at that by allergies ALWAYS rain related. The test was a 2 line format, one red control line and one red line if you are positive. l had some pink in the positive area and... -
ARCHIVED Newb...Feeling Silly, But Better
BlackShoesBlackSocks posted a topic in Introduce Yourself / Share Stuff
Hey all This looks like a pretty active forum and l've wound up here after googling several things since around the beginning of the year. January 2017 l went from my normal, low weight of 105 to 97 lbs discovered at a check up and became very scared, l felt thinner but had no idea l was under 100 lbs, which hadnt happened since at...