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Electra375

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Everything posted by Electra375

  1. Electra375
    It sounds like you need to heal your gut. It takes time. I didn't see, are you dairy free? A good portion of Celiacs go Dairy free in the beginning (both short term and long term). Sugar can irritate the gut. I hear good things about the Specific Carbohydrate Diet. I've never had a negative feeling about Celiac. I could not allow my children to experience...
  2. Electra375
    Well, gluten causes nerological problems and I dare say you are one of the ones affected by gluten in that way. Being gluten-free and learning to live comfortably without feeling gross is well worth it IMO. Feeling better 99% of the time or 99.9% of the time should entice anyone to move over and accept the risk of CC. If you are careful, CC is less of...
  3. Electra375
    Maybe your thyroid has decided to give out on you??? Or your pitutitary glands??? I haven't noticed any of those kinds of changes, but I'm 6 mo PP. Have had very HEAVY bleeding (as in can't leave the house with a super plus tampon and pad on). I have hypothyroidism, but when I say that I have to clarify the endo turned me away, my GYN gave me a script...
  4. Electra375
    I supply my child's food, end of discussion. This child is not permitted to eat anything unless I bring it for the child. My ILs are so stupid, I would not trust them. My MIL is not capable of understanding. My ds has been df since birth and he would get 'worse' diarhea and I'd ask what he ate with them. Answer "mashed potatos" Did you make those with...
  5. Electra375
    Dr Fasano (Univ of MD Celiac Center) said this to me - The biopsy is what we show teens so they will understand they CAN NOT eat gluten. If they do, they will likely be Type I diabetic in their late 20s early 30s. Type I - insulin dependent, non-reversible, limb threatening, life threatening Having known a few type Is who either could not get a handle...
  6. Electra375
    I find the rice and tapioc products shoot my glycemic index up too quickly and I feel blah yuck. It may just be a sugar thing and not a rice thing. I can eat a product like this w a protein, but not butter, jelly, or plain.
  7. Electra375
    Very nice. BTW - whatever happened to character lunch boxes that came with a thermos??? I was in a store that had all the school stuffs out and they wanted $9 for a zippered tote for a "lunch box", it didn't come with a drink thing at all!!! I guess I'm going on the internet to look for lunch totes that are large enough to fit the stainless steal thermos...
  8. Electra375
    Open Original Shared Link Open Original Shared Link Open Original Shared Link I like Sansgluten b/c they have shirts that have the Definition of Celiac. My older child likes SillyYaks b/c the purple Yak is cute. I found glutenfreekids b/c for my baby it is simple, straight forward and list out what gluten is. I have for my older child a button ...
  9. Electra375
    I thought I'd share how I plan on alerting care givers at our church's nursery. I'm going to make a diaper bag and embroider a Med Alert that states in bright bold Red and Black FOOD ALLERGY (Might get an embroidery Medical Alert Symbol $8 to by the design) NO GLUTEN NO WHEAT NO BARLEY NO RYE NO OATS I never leave any message on my children...
  10. Electra375
    Please take your kids to a Pedi GI knowledgable in Celiacs if possible. The more dx kids the more celiac disease gets IT on the radar of regular pedis and docs. I was unfortunate enough to have my 2nd child go undx for his first 3 1/2 years of his life, he lived in stomach pain. I knew something was wrong, I went to a lot of doctors, I have his records...
  11. Electra375
    I think some do go through detox, it depends on your level of gluten eating before combined with level of sugar, I found a lot of the gluten products I ate were far higher in sugar than they should ever have been. I get headaches from sugar withdrawl more than gluten withdrawl. I crave chocolate like crazy the first few weeks into gluten-free (I've gone...
  12. Electra375
    When our then 3 1/2 yr old son was dx w celiac disease he was not eating much, his stomach hurt, his legs hurt, lets face it he just plain hurt all over. His favorite foods were fruits and veggies, still are. I went and bought raspberries for him (dh said not to think twice about the money). He did not like the gluten-free substitutes for some time, not...
  13. Electra375
    Foods can aggrevate sinuses, like a seasonal allergy. Dairy is numero uno in that department. Also my littles get sinus and coughs etc when they ingest gluten.
  14. Electra375
    Remain on gluten until the biospy, lots of it, especially in smaller children as they heal quickly and begin healing between meals of gluten. Are they sure your son's IBS is not Celiacs? Or possible Gluten Intolerance? I always wonder about that now that I know about celiac disease.
  15. Electra375
    I need a bit of clarification - your 3 1/2 yr old was on a mostly gluten-free diet when you had him tested? That might be the only reason they came back negative. Are his symptoms only when he eats gluten? If you need a medical dx, then I would suggest having him eat gluten (lots daily) and retesting. Consult the pedi GI first b/c the length of time varies...
  16. Electra375
    To counter the PP -- All by birthed children were well over 9lbs. I had 2 c/s they were 9.9 and 8.15 and then gave birth at home to the last 2 9.1 and 9.5. And they were longies 20 to 21 1/2. The first c/s was b/c the baby was not coming down after 2 1/2 hours of pushing and he was in a bad position -sunny side up and head turned sideways. It's all...
  17. Electra375
    Yeah those!!! Pamela's mixes are fabulous too. And the Whole Foods gluten free bakehouse white sandwich bread is one of the BEST I've ever tasted. We have Brown Rice Crispies from the Health Food Store EREWHON brand. They are okay fresh, but my experience is they turn stale quickly and they come is such big boxes. I make our own rice crispy treats...
  18. Electra375
    Did you go gluten-free before having the Celiac Diagnosis made "firm" by a GI through endoscopy? In order to do the endoscopy/ biospy the child must be ingesting gluten. We made that mistake. Once the gut is irritated, many things will irritate it that might not have before the initial irriation. In the case of dairy, it seems like it is secondary to...
  19. Electra375
    I'm sorry the situation w Fasano was not better. I have not any idea why the consult w Fasano resulted in a 'no'. But I'm sure it had something to do w what he saw or didn't see on the lab work (if he was consulted at all). But if that is the case, stick w the Pedi GI who is helping you. It is possible that the endo did not run the full panel done...
  20. Electra375
    Danna Korn - Kids with Celiac Disease is an awesome place to start. I would hold off going gluten-free until you decide whether or not you are going to biopsy. Biopsy is the gold standard and it's positive result is with out question the firm dx.
  21. Electra375
    Have you had your thyroid checked recently? And not just the TSH since it is unreliable, my TSH is fine my T4 is low and I have not lost weight in years even nursing and eating low carb and doing WW. Nothing, not even exercising 5 days a week at the gym, not 1 freakin pound. I finally got a nice doctor to test me with a complete thyroid panel and not just...
  22. Electra375
    The gaining weight in the stomach would lead me to believe something else was going on like Cushings or possibly a thyroid dysfunction. But give it some time before freaking out. It can take a while to get gluten out of your system. Also those w celiac disease usually find they need to go Dairy free while their gut heals and then reintroduce it later usually...
  23. Electra375
    What kind of "treatment" for Celiac do you think this doctor can do for you? The treatment is the gluten-free diet, which is done without any assistance from the doctor -- most doctors are truly clueless about the real ins and outs of the diet anyway. I don't think you are in by yourself in your thinking. And it is perfectly okay to wait on the biospy...
  24. Electra375
    My oldests is constipated, since birth, really. He did not test positive on the blood work other than he has the gene. I took him gluten-free for 4 months to see if it helped, it didn't. but I also discovered that my dh let him eat cookies at scout meetings weekly. And I'm sure that skewed any results I was hoping for. His metabolic blood panel was...
  25. Electra375
    The #1 reason Dr. Fasano gave me for doing the biopsy on my older son was to be able to show him the biopsy slides in his rebellion years. And so that I assume Dr. Fasano could lay it down with how important the gluten-free diet was for long term health and avoidance of such things as Cancer. Dr Fasano stressed that remission of symptoms occurs in the...
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