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AndrewNYC

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Latest Celiac Disease News & Research:

Everything posted by AndrewNYC

  1. AndrewNYC
    Just bear in mind that anybody with a couple bucks for the signage can open up a "celiac center".
  2. AndrewNYC
    Success on the raw diet could be because you lack digestive enzymes. Also look into other food allergies like these people say. Maybe fructose intolerance.
  3. AndrewNYC
    Eating something that is super easy on your stomach, like an elemental diet formula, could be helpful, rather than eating regular food in the aftermath.
  4. AndrewNYC
    Could be fructose malabsorption or some other carbohydrate/sugar malasborption involved. Fructose gave me brain fog well after I thought I was over celiac. Whether or not that is the case, you could try an elemental diet formula (Tolerex, Vivonex, E028, etc) for a brief period to see if that helps your symptoms.
  5. AndrewNYC
    Could be fructose or malabsorption of some other carbohydrate/sugar malabsorption. These can mimic celiac disease and sometimes are side effect of it for awhile after diagnosis, but will eventually go away with proper dietary management, unlike celiac, where you are gluten free for life...
  6. AndrewNYC
    Andrew - can the symptoms of Fructose intolerance be similar to GI , and include fatigue, neuropathy , and not always be the severe gut reaction ? Yes. I'll look for the article.
  7. AndrewNYC
    I am fast becoming an authority on this subject. Backstory is that I had continuing minor bowel irritation for four years after going gluten, dairy and soy free. Then I finally had a massive collapse with onset of out of control bowel trouble and celiac-like neuro trouble, unrelated to vitamin deficiency. Refractory sprue was ruled out; villi appeared...
  8. AndrewNYC
    I have not read your story but I will offer this: there are a number of associated and easily treatable conditions with celiac and you need to address these NOW. Many times doctors and even celiac specialists will not address all of these things unless you ask, the idea being "lets see how junior does once gluten is out of his diet for a couple weeks/months...
  9. AndrewNYC

    ARCHIVED Nyc Doctors

    AndrewNYC replied to AndrewNYC's topic in Doctors

    I was kidding you. It was my disbelief that any doctor would spend an hour w/ you, me or anybody else. Pancreatic enzyme deficiency in itself can be a side effect of celiac, without any secondary cause for the pancreatic enzyme deficiency. It is pretty easy to treat though; just take pills with each meal. In my experience most doctors won't test...
  10. AndrewNYC

    ARCHIVED Nyc Doctors

    AndrewNYC replied to AndrewNYC's topic in Doctors

    An hour? Yeah, right! Next.
  11. AndrewNYC
    Consider fructose intolerance. If that is the problem then he would still react to veggies, fruits, and very possibly rice.
  12. AndrewNYC
    I had something like this. Swollen tonsils for about 8 months. ENT doctor could find no cause. Then I saw a recall on a food that I ate often, because it was contaminated with soy that was not on the label. I know I am sensitive to soy generally, but did not know it would present as enlarged tonsils. Sure enough, when I took X out of my diet, the...
  13. AndrewNYC
    Fine, I guess almonds don't have any. I'm allergic to nuts though anyway, so... Explain to me about corn. I don't understand how that works. I hear mixed things about it, but I don't seem to react to it.
  14. AndrewNYC
    You guys are all missing fructose free.
  15. AndrewNYC
    to name a gluten free, soy free, dairy free, fructose free, packaged/manufactured food item.
  16. AndrewNYC

    ARCHIVED Nyc Doctors

    AndrewNYC posted a topic in Doctors

    Tell me about other doctors in NYC besides Dr. Green? Who do you see? Why are they good?
  17. AndrewNYC
    Get tested for fructose malaborption!
  18. AndrewNYC
    I can only eat plain, rice or corn based dog treats. I tend to avoid bacon flavored, ham flavored, etc. I think lots of artificial flavorings contain gluten, and even though they are quite tasty in a dog biscuit, not worth the trouble later on.
  19. AndrewNYC
    Cold? Needs to be soy free too.
  20. AndrewNYC
    Name one.
  21. AndrewNYC
    I was diagnosed with TTG level at 22, brain fog, and flat vili. Three years later I was healthy and gluten free. Four years later I have brain fog, villi are healed and well, TTG is at 19, no gluten in diet, but am reacting to other foods like plain rice, chicken. Has anyone experienced anything similar?
  22. AndrewNYC
    Try Gatorage G2 or Pedialyte over regular gatorade.
  23. AndrewNYC

    ARCHIVED What Would You Do?

    AndrewNYC replied to Connie Shedlock's topic in Doctors

    Something like this could get a plaintiff's attorney really excited. On the other hand, your husband must not have felt so sickly after the endoscopy if he never bothered to check on the results. It only takes a phone call to get them.
  24. AndrewNYC
    Abnormally low hydrogen breathe test results; abnormally low amount of bacteria in stomach. What does this mean?
  25. AndrewNYC
    You can also get brain fog from enzyme deficiency / fat malasorption. Sometimes people experience improvement or complete reversal of brain fog on the gluten free diet, only to relapse (sometimes years later) because they never addressed the enzyme problem. Furthermore, bloodtests should not be the gold standard for whether or not you are producing enough...
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