debmidge

The really sad part about this whole Benefiber thing is that before they reformulated it a couple of years ago, it was Gluten Free and had no wheat starch at all. I have written and called Novartis Consumer and told them that the new ingredients are problemic for celiacs. We now get those samples too probably because I've written to them - see...

During my Dad's pancreatic cancer, the medical authorities pointed out his "cold cut" diet, especially cured meats like salami or pepperoni. The sugar connection sounds like a match as welll.

Let's hope it stays that way...

Nini, Nisla you are so right about avoiding shoulder surgery. My rotator cuff was worked on by the PT (despite the PT presciption being for "neck" only, PT and I knew it was shoulder so he worked on the shoulder "off the record.") I tore my should capsule too. The physical therapy after the surgery was very, very painful and for a time I thought I...

From my experience, I've noticed that some or most doctors get mad when you tell them what YOU think your condition might be; or they are embarrassed over their lack of knowledge and try to cover it up by saying "No, you don't have such and such." I'd like a doctor to at least say something like "Well, it's certainly worth testing for." or "That's an...

Feel free to rant This thread is the thread to rant on. I believe this is the only thread you can say this stuff on. Some of us are more emotional about our negative treatment, misdiagnoses, etc. Some of us have been impacted more negatively than others in this negative treatment and misdiagnoses and general ineptness of the medicine and doctors. ...

Ok, I'll bite, but it's not a celiac story, and it's not a terrible ending, but it makes you go "huh?" Several years ago I had shoulder pain and could not raise my arm above my chest or raise it in the position of how you would plug an electrical cord into a socket. Raise arm and twist brought on a pain that ran from my shoulder to my hand. Even putting...

Dare I? I must be a masochist!

If I hear of one in your area I'll let you know, better yet go to CSA's website (Celiac Sprue Association) and see if they list known support groups in NJ. They did last I checked. Maybe there's a re-formed group in your area. I know where Jefferson Twsp is. Maybe was there once/twice in my life. Do you know of any other celiacs in school?

Dear Newo: There used to be a CSA sponsored support group in your county (Dover Hospital I believe) but thye totally disbanded in early 2004. I am in northern Union County and would like to join a group or have someone help me start a group but in this area. As you are aware, traveling in North Jersey is terrible during rush hour and a simple 30 minute...

My Dad died of pancreatic cancer but was not celiac. I am not celiac (my husband is). However, my Dad's pancreatic cancer symptoms were exactly like my husband's celiac. Diarrhea, intestinal pain, malabsorption, stomach gurgling sounds, weight loss, fatigue -- the only thing he had that was not celiac-sounding was back pain on the right going around...

My celiac husband always had intestinal sounds before going gluten-free; and still has them. My theory is that since he's been undiagnosed for 28 years, he probably has a good amount of villi damage and until that's cleared up he's going to get those rumbles. The rumbles do not result in loose bowel, just noise and some intestinal gas. As the "healthy...