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celiac3270

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Everything posted by celiac3270

  1. Lol ...it's fine. Peterson is my mom's maiden name, which became my nickname...I'm too young to be married, though, anyway . And it's a good gamble to take--there aren't many males who post here freqently....me, Richard...?
  2. celiac3270

    ARCHIVED Nj Nutrionist?

    None in NJ, but I'd advise you to go to Anne Lee in New York. She's at Columbia University and it's worth the trip. She works with Dr. Green, and is the Dr. Green of Celiac nutritionists...it's worth it for the recipes, ideas, and knowledge you'll get.
  3. Distilled vinegar is safe in my opinion. During the distillation process, the actual grain is removed.
  4. Good point...and that's a very real problem that parents often have w/ celiac teens
  5. Be sure to write and mention labeling for celiac disease...include that 1 in 133 have it so this will become increasingly impt. as more get diagnosed. Be sure to reference Docket No. 2004N-0463. FDA News FOR IMMEDIATE RELEASE P05-15 April 1, 2005 Media Inquiries: Kimberly Rawlings 301-827-6242 Consumer Inquiries: 888-INFO-FDA FDA Asking...
  6. Anne Lee said at the meeting that TastiDLite is gluten-free...
  7. And then wheat starch is confusing in itself....US/Can. it's not safe, UK it is...this is crazy. I use Duncan Hines, though. When my mom was going to make a gluten-free cake once, she bought the Betty Crocker icing by mistake--and it had wheat starch in it. We returned it for Ducan Hines, of course.
  8. I got really bored walking the halls, so I can't imagine how bored my mom must have been. It was a very long hallway--at least the length of a city block, I calculated, and since it's 20 blocks in a mile, I walked easily over 10 miles waiting for x-rays to come back (they had me walking to make it go through faster). But that's what we do in NY...everything...
  9. A cure--no. But Dr. Green expects there will be a pill to help deal with accidental contamination in the next 10 years.
  10. The Communion wafer is definitely not okay for us. It will destroy your intestines. Catholics have...little we can do about it. There is a low-gluten wafer deemed safe, but the prospect of ingesting gluten purposely bothers me. You'll get slightly contaminated anyway, without realizing it (in minute amounts) so that additional gluten might make it too...
  11. They're researching 6 things: Genetically modified wheat Induce tolerance to gluten (the way breast feeding does) Oral peptidases (an enzyme that digests the gliadin--THE PILL) Block tTG Block binding to the DQ groove Block cytolcines Bklyn, what question did she ask? I might remember her
  12. I think so...at first I didn't like certain gluten-free products that I now love .
  13. Corn starch is always safe
  14. As long as there's nothing in any artificial/natural flavors...and as long as there's no cross-contamination. I don't know how the ice cream system works at all of these places, but if there's a scoop, make sure the scoops are only used in the one flavor or you could have contamination. If it's in a machine, it would be good to find out if the machine is...
  15. Hi! Thank you for noticing and posting ! With the barium it all depends...since I had a problem and it wasn't going through, I didn't get out till around 2:00...and I was there around 8 or 8:30. It all depends, though...if you get there by 8 and it goes quickly, you could be done by 11...the barium is disgusting, but they'll put chocolate syrup in it...
  16. The following talks were given. The ones I went to are in bold, except for the last one in bold, which my mom took a few notes on for me: Celiac Disease Primer (Dr. Green) Whole Foods Shopping Wise (Janet Lasky) Let's Get Real About the Gluten Free Diet! (Dr. Levy) Serologic Diagnosis (Vijay Kumar) Amazing Grains (Anne...
  17. But actually, wheat isn't good for anyone! It does have some nutritional value, but the human species developed for a long time without eating wheat. Wheat was introduced to our diet in the form of rewards. given by the Romans and the Greeks, who got it from the east, then other places as well. The point, though, is that by the time we were exposed to...
  18. I know! It's so frustrating and it always happens when I type long posts (not the short ones that I don't care about ). It's too frustrating to write the same thing twice...and I'm too tired right now
  19. Yoplait -- All gluten-free Columbo -- Plain is gluten-free Dannon -- Plain, low-fat, no-fat. Stonyfield Farms -- I know the plain is gluten-free.
  20. The 6 things they're researching: Gentically modify wheat -- go back to ancient wheat Induce tolerance to gluten (in the way breastfeeding does) Oral peptidases -- an enzyme that digests the gliadin. Must digest all, unlike with pills taken for lactose intolerance, which only need to digest some. Block tTG Block binding to the DQ groove Block cytolcines
  21. I think you'll be able to have McCanns--I'll explain in that other post when I get around to typing up 32 pgs...lol...maybe I'll just summarize it in 1/4 of that.
  22. ...yep...the talks were fascinating...the teen cooking class...left much to be desired lol And about eating...haha...I thought I was eating a lot until you told me what you had had
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