zippyten
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Latest Celiac Disease News & Research:
Everything posted by zippyten
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ARCHIVED Diagnosed For 2 Months. Miss Sandwiches. Help?
zippyten replied to geeze's topic in Coping with Celiac Disease
Gluten Free Pantry's French Bread mix is excellent, but if you don't want to bake, I also recommend Glutino's Cornbread -- it's not like southern cornbread, but sliced for sandwiches. Another product of theirs I eat frequently is their bagels, especially the sesame, which are great for egg sandwiches, cream cheese, BLTs, ham and cheese (probably everything... -
ARCHIVED Quitting Beer Drinking
zippyten replied to faithladene's topic in Parents, Friends and Loved Ones of Celiacs
Hi: I've been gluten-free for almost a year now and giving up beer (among other favorite things) was also hard for me. I discovered Ramapo Valley's honey-based brew, and I'm fortunate enough to live right near a gourmet beer store that carries it on a regular basis. It's on the sweet side, and you do get used to it, but I don't think I'd be shipping it to... -
ARCHIVED Dealing With Other People's Reactions?
zippyten replied to sunflower's topic in Coping with Celiac Disease
Anna, I could relate to much of what you said in your post about other people and their reactions to celiac. I think how people handle this becomes a metaphor in many ways for the rest of how they handle others' feelings and life in general. For example, one very good friend of mine has not been so supportive or sensitive of my needs since I've been... -
ARCHIVED Npr's Morning Edition Segment On Celiac
zippyten posted a topic in Publications & Publicity
Some people may have heard the short segment on National Public Radio's Morning Edition news program this morning (Wed. July 21) but for those who didn't, you can listen to the audio on the NPR website through this link: Open Original Shared Link I know some people will be disappointed that there was not more info and I would've loved more detail and... -
Dana, I thought your two contrasting stories were very interesting, and very familiar. Thanks for sharing them. I think the depth of people's sensitivities to others' dietary needs have a lot to do with both the kind of people they are, deep down, and also their own experiences (for example, it's probably no coincidence that your friend who has an allergy...
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ARCHIVED Letter To Your Local Grocery Stores
zippyten replied to kejohe's topic in Gluten-Free Foods, Products, Shopping & Medications
I was looking for a place to mention this and since Kinnikinnick has come up, here's where I'll put it. I've found all their products consistently good in the 4 months since I've been trying them out (I know some people find their bread - bagel - bun products a little sweet, which they are, but they still taste good). But I know a lot of people are discouraged... -
I'm glad someone already gave out the info on the Benedictine nuns' very low gluten (can't quite say gluten free) hosts since I haven't read these posts in a while. About the freezer question: the directions that came with my supply specifically mentioned keeping them in the freezer to preserve longevity. I think the reason is they are made without preservatives...
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ARCHIVED You've Probably Heard It All Before
zippyten replied to YankeeFan's topic in Coping with Celiac Disease
Hi Yankeefan, Although I do have to cook a lot (I have children), there are many times I need to make a quick gluten-free meal for myself and it's not always easy. Here's a couple of things that have helped me. If you have a good health food store or Whole Foods you can probably get these brands. Health Valley makes a pretty good canned chili (vegetarian... -
ARCHIVED Beer Drinking
zippyten replied to faithladene's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Beer Lovers (former and current), As I understand it, the process of making beer, which is by fermentation, is what makes it not gluten-free. The process of making other alcohol, whether it be whisky, vodka, bourbon and mostly made from gluten-containing grains, is by distillation, which is for all intents and purposes, gluten-free. That's because most... -
ARCHIVED Where Do You Order Online?
zippyten replied to mat4mel's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi: I've tried Kinnikinnick's hamburger buns and they are really surprisingly good, as are their bagels, believe it or not, and I live in New York. The texture and taste are not the same as the real thing, of course, but they are tasty and give at least the illusion of reality. Let's face it, when you crave a burger, putting one on corn tortillas just isn... -
Dana, I can definitely relate to that feeling of sitting out during Communion and feeling punished. It really bothered me a lot more than I ever would've expected and I hadn't been able to receive communion since I was diagnosed. Anyway, I found the information about the Benedictine nuns making the hosts that are so low-gluten that they are safe for people...
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Hi: The gluten-free Outback menu is just the regular menu but with "gluten-free" noted next to items that are ok for people with gluten intolerance. To be honest, I don't understand why Outback can't just give out the same menu to everyone and have the gluten-free notation on everyone's menu, because I think it would raise public awareness and spread the...
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Brooklyn, New York
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ARCHIVED Bette Hagaman Had A Stroke:(
zippyten replied to angel-jd1's topic in Publications & Publicity
Hi all, I'm not sure if this is the correct place to post this, but didn't seem appropriate in the "baking & cooking section." I subscribe to a celiac list-serv and received info last night that Bette Hagman, the gluten-free gourmet author, has been hospitalized due to a stroke. Some of you may already have heard this but I thought others might want... -
I found contact information online for a Benedictine order of nuns in Missouri who make a very low-gluten host (it's something like 0.01 percent gluten). I passed the info along to my pastor, who's being accommodating, and he's going to order some for me (we haven't quite worked out the details of how I'll be receiving communion yet). Unfortunately, although...
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ARCHIVED Endoscopy On Thursday
zippyten replied to j9n's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think everyone can reassure you, including me, that the endoscopy will be fine. If you don't want to be awake for the procedure -- which most doctors do not recommend -- just make sure that's clear beforehand. As long as you're sedated, there is no gag reflex and you won't know anything that's happening. The only after-effect might be a sore throat (and... -
ARCHIVED Cream Of Broccoli Soup
zippyten replied to angel-jd1's topic in Gluten-Free Recipes & Cooking Tips
Jessica: When do you put the cheese in -- with the cream, or after that? Thanks. Ellen -
ARCHIVED Son Just Diagnosed
zippyten replied to Heather's topic in Parents, Friends and Loved Ones of Celiacs
Heather, Have you tried the Tinkyada brand of rice pasta? It tastes pretty good with cheese or tomato sauce and cheese and holds its texture pretty well. It might be the best of the rice pasta brands but it's certainly the best one I've tried so far. Ellen -
ARCHIVED Son Just Diagnosed
zippyten replied to Heather's topic in Parents, Friends and Loved Ones of Celiacs
Re: pancakes for gluten-free kids (and adults!) -- the best one I've found so far is kinnikinnick's pancake & waffle mix. My kids are not gluten-free (yet) and I made them one morning for all of us and they didn't even notice the difference except to say "great pancakes, mom." Probably doesn't hurt that I sometimes make them with chocolate chips. They... -
ARCHIVED Where Do I Begin?
zippyten replied to emsmom's topic in Parents, Friends and Loved Ones of Celiacs
Ashlee's Mom, Hi -- I just wanted to add that if you haven't tried corn bread for your daughter yet she might really enjoy it. There are some good gluten-free mixes on the market, but I also use the regular Indian Head brand available in most supermarkets & use the recipe on the back. I am also lactose intolerant right now so I substitute soy milk (Silk... -
ARCHIVED At A Loss
zippyten replied to sarahann's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Sarahann, Welcome. I'm sorry to hear you have been so sick, but I'm sure a lot of people will tell you the same thing -- you'll start to feel better now that you know what you have and how to manage it. With your doctor's and dietician's guidance and a gluten-free diet, you should start to heal and feel better in many ways, although how long this will take... -
ARCHIVED Gallbladder Disease & Pancreatitis. Im Scared!
zippyten replied to SadiesMomma's topic in Coping with Celiac Disease
Heather, Don't give up. As hard as it is to find a doctor who will get to the bottom of this, you need to be persistent. I want to be mindful of not "doctor-bashing" because a couple of people felt this was happening on this message board. But I do want to say that I find it a warning sign when any doctor concludes fairly soon that a patient's symptoms are... -
ARCHIVED Terrified About Testing Kids Tomorrow
zippyten replied to kyss's topic in Parents, Friends and Loved Ones of Celiacs
Sara, Just wanted to say I stumbled on this post about getting kids tested and dealing with their anxieties about shots ahead of time, and glad that I did. I'm having both my daughters tested shortly (they are 8 and 13) since I was diagnosed about 6 weeks ago, and in particular my oldest is prone to extreme anxiety about many things, but also shots and blood... -
ARCHIVED Watching Diet And Still Getting Sick
zippyten replied to Aightball's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Kel: I don't know your history or how many tests or doctors' visits you've been put through so far. But it does sound like something's going on, maybe even instead of, or addition to, the celiac. I'm sorry that you're still having trouble eating. I hope that you have a good doctor, and that you can get to the bottom of what ails you soon. I know how discouraging... -
ARCHIVED Watching Diet And Still Getting Sick
zippyten replied to Aightball's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I see this come up time and again, about chicken (and other meat) being injected with gluten to make it juicier, or whatever, and it really isn't true. I spoke to someone at Perdue, who verified that any plain raw chicken that they package (whole or parts) has absolutely nothing added to it. They also have a gluten-free product list which they will send you...