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chgomom

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Everything posted by chgomom

  1. chgomom

    ARCHIVED Japan

    chgomom replied to tasha's topic in Traveling with Celiac Disease

    Well first I woulc contact this hospitals department of gastroenterology, and just ask. Most of the doctors here speak English. tell them your situation, and ask them for a a shopping list, or list of gluten free products in Japan... Here is the link: Open Original Shared Link Remember soy milk, buckwheat...and there are health food stores, and...
  2. chgomom

    ARCHIVED Japan

    chgomom replied to tasha's topic in Traveling with Celiac Disease

    I have lived worked and studied in Japan for many years. I also translate Japanese and would be happy to help you figure our shopping and speak with some over my collegaues over there on the best avenues to take. I will post some links shortly here...
  3. chgomom
    Here is anothe rset of docs in Iowa.... Quite honestly...if you can go to a University you're better off.... University of Iowa Foundation for Celiac Disease Research University of Iowa Hospitals and Clinics 200 Hawkins Drive Iowa City, IA 52242 More specifically, Celiac Disease Clinic at the Univeristy of Iowa The Celiac Disease Clinic provides...
  4. chgomom
    well yeah....ya know...its not like I asked for it...*lol* I would love to nothave any pain....I would love to be able to go out on a Friday night,...have a beer and some spicy bonless chick wings...then go to a movie have big bag of buttered popcorn....and wash it down with some.....ahhh you know... Its weird...i think I said this before....I am happy...
  5. chgomom
    *sighs* Today everyone was saying....wow....you're like an 80 yr old woman.....people your age don't get that. I said it has to do with the celiac. Uggghhh... Then the doc "reassured" me, as much as I like her*lol*, that you can get worse be fore you get better, and it really can take atleast a year, to two years to be considered "healed" and she...
  6. chgomom
    Have you had a bone density scan to check for osteopenia or something similar??
  7. chgomom
    Oh gawd.... I was on vacation in Florida...at my aunts. I had some Dunkin Donuts...coffee..... I was in the loo for over 2 hrs on and off...stomach cramps....etc etc. Yesterday when I went to my big GI appt she said until your intestines have healed....coffee can do a number on celiacs...only because its so rough on your system....and just goes right...
  8. chgomom
    IN my opinion lots of docs all they do is push IBS, GERD, excercise more, take a pill this that or the other thing. My new GI doc laughed, when I said they tried pushingh anti depressants on me, and she said...well...from what I seeof your records...eveytime you've gone to emergency its been within 4 hrs of a meal....its been all GI....and frankly there...
  9. chgomom
    I wanted to post this link to my GI offices website. Their entire program is dedicated to Celiac Disease. Open Original Shared Link If you're in ILLINOIS, tomorrow there is a brown bag lunch at the University of Chicago, and free seminar from 11:30 to 1:30 See this link Open Original Shared Link
  10. chgomom
    Hello, I just wanted to post this site....and just say I was just diagnosed with osteoporsis as a result of the celiac disease at 28yo. I'm sure most people know about it already, but you never know. If anyone has personal experience with it, post those here. I could really use the personal expereiences, and someone else might be able to benefit as...
  11. chgomom
    Ursula.... thats the other thought...I also am looking at it as a blessing that I was fortunate to be able to get into a doctor like that...that it was a University Hospital where she could get on the phone and say I need to send a 28 yr old....celiac patient down for a stat scan...and with in 30 min I knew what all this pain was..... and also as a...
  12. chgomom
    Yeah...what I liked.....was actually being infront a a human being who looked at me and said.... yep....yep, uh huh...nope you're not crazy. This is a very serious disease, but one that can be mananged. And yes....osteoporosis and osteopenia are serious...but we canmanage those too. All this garbage for year, and I mean the better part of 5 yrs now....
  13. chgomom
    Well I am 28 yrs old.... and I have been geting stress fractures in my ankles and feet.... As a kid I always broke something altough when I was a kid...Celiac was still one of those "you'll never see it in a dr. practice" kind of a thing... and the doc said she wants to do a supplement cocktail before she sends me on my way with a boniva or somehting...
  14. chgomom
    Soooooooo I went to my doc who is a researcher and expert in Celiac disease. At the University of Chicago Anyway...she took a look at me today....did the standard once over and right away was pull things like deficiencies....and so on from my symptoms... Then she sends me for a STAT Dexxa scan...bone density thing...and showed that I have osteoporosis...
  15. chgomom
    I was almost glutened and hopefully nothing will happen since it touched my lips...but I did'nt actually eat it. I noticed the bread was unusually light..... And the dear friend said.....you said its gluten, wheat, rye, barely and oats...,,,,I only put white flour in there... Lord.....
  16. chgomom
    I also just wanted to add, that lets say if you order a case of something (Like I just ordered a case of Glutino Lemon Wafers, they also have chocolate vanilla....and sooo yummmy) you get 10 to 15% off You call and ask for grocery....and they will take a phone order.... So at 3.99 a piece...12 to a case....47.88 - 10% basically gives them to you tax...
  17. chgomom
    I go to Wild Oats, in Hinsdale, IL> They are very friendly, order anything, their staff is very knowledgeable. Many of the celiac in out area go there...I go so often, because as you know verymuch of what we can eat is easily perishable the stockets have gotten to know me and say sometimes...I would'nt try that yet...or if you ask them....they have...
  18. chgomom
    I do have one of those in the freezer too! I haven't used it yet. I bought mine at a store...but I guess they would ship express in a cooler like some online retailers do??? Let me know!
  19. chgomom
    OK..I just tried a bigger taste... and oh my goodness!!! Sooooo goooood! The challange now will not be eating the whole thing and coming back wondering why I am sick*lol*
  20. chgomom
    This company, NaturalFeast has the BEST pies. Perfect for Christmas, Thanks Giving etc. I fully intend on ordering the Pumpkin Pie....tonight I am baking the Apple Cranberry and I have snagged part of the outer edge already and YUMMY!! Oh MY GOODNESS!!! Open Original Shared Link That is the page, direct to what ingredients are in all their pie...
  21. chgomom
    Well I buy only organic, natural meats. Meaning all vegetarian feed, no antibiotics and no preservatives. So thats ok. I asked the GI and she said.....beef digests poorly and sometimes, bit do not digest at all so its really not good for a newly diagnosed person. So I am sticking to any fresh turkey...chicken...and salmon. Although I did try...
  22. chgomom
    What about grape seed oil? I saw that in the store today at Wild Oats Grocer
  23. chgomom
    You're like a peeping tom when you see your family unwrapping their Mc Donald's breakfast before your eyes. *this morning they had hasbrowns....and cheesy, biscuits with bacon and eggs* * I smelled each and everyone* *lol*
  24. chgomom
    I know this is a few days old thread....but I have to say ...most everything I have read and what my doc has told me is to avoid hydrogenated oils as a celiac. EVERYTIME...I eat something with hydrogenated oil....I get sick...snickers has it.....what ever cooking oil may have it....when I eat that same food without it...I'm fine. Unless I know its extra...
  25. chgomom
    Well....what I did'nt know, up until I got tested is why....depsite having eaten plain vegetables...and fruit...did I get soooo sick after doing a play dough masterpiece with my son. I swaer...my hands would turn red....and I would be sick with in an hour.... whew.... you know you're a Celiac, when your child starts to correct you in the store. My...
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