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What Vitamins Help With Celiac?


Smylinacha

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Smylinacha Apprentice

About a year ago my GP said I was deficient in b12, D, and folic acid. He wanted me to have b12 shots. Never mentioned celiac to me although I had many symptoms and my gastro said I would feel better going gluten free which I have done. Now I am supposed to get glutened for a while in order to get an endoscopy which I don't want to go near gluten. In trying to read up on celiac I am learning many have vitamin deficiencies. Is anyone taking special or extra supplements that help? Currently I take women's gluten free multi vitamin gummies and a magnesium pill. I get my potassium with bananas and eat lots of chicken, eggs and beans for protein.


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mushroom Proficient

I hope you won't think me flippant when I respond to your topic question with "Whatever you are deficient in."  Because it is true.  If you are not deficient in a vitamin, it is not going to help you.  You are deficient in B12, D and Folic acid, that we know of, but you may be deficient in others by now, too.  You need a full nutrient panel run, including all the vitamins, iron/ferritin, potassium, zinc, magnesium (sometimes it is not well absorbed).  Taking a multivitamin normally does not provide you with sufficient to refill your tank -- it just gets you to the next gas station -- and more is initially required, then you can go on a maintenance dose. :)   Usually, B12 can be rectified with a sublingual pill (be sure it is methylcobalamin).  Vit.A normally requires doses of 50,000 iu to start. 

 

Good luck with your testing.  You might want to have the nutrient panel run before you start supplementing so that you know what to pay particular attention to. :)

Smylinacha Apprentice

Guess I will need more blood work again but I will do it. I do have the stick under your tongue b12 but I will get it all checked out.

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    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
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