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Glutinized - Duration Of Symptoms?

MisterV

By MisterV
in Coping with Celiac Disease

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MisterV Rookie
MisterV
Posted

I've been searching for anwswers on this forum, but haven't quite found out what I'm looking for.

I've been gluten-free for 3 years. I went off gluten before being tested so I don't know if I am Celiac or non-celiac gluten intolerant.

2 weeks ago I unknowingly had a big dose of gluten hidden in some food...the usual symptoms GI, muscle pains, happened the next day. The usual anxiety attack happened 2 days later, but this time my tongue feels swollen, my speech is slightly impaired. I thought it was probably the gluten, but the tongue sensation has been fluctuating up and down without quite going away for about 5 days. I've been poking and prodding so much in the soft tissue under my skin that now I don't know if I'm sore from prodding or if my salivary glands are painful and inflamed.

If anyone has had slurred speech or a fullness in the tongue from a gluten reaction...can anyone reassure me that the symptom will fade eventually?

The problem is the anxiety aggravates my thoughts about what it is and of course I think it's a series of hundreds of other diseases.

 

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Fire Fairy Enthusiast
Fire Fairy
Posted

This is one I haven't had happen (yet). Once in High School the inside of my mouth swelled up but not my tongue. I was glutenated Tuesday morning and have suffered from various issues everyday since. The most worrysome reaction besides being depressed and suffering some senseless anxiety has been feeling like I have bubbles popping in my head. Strokes run on both sides of my Father's family and my mother had a stroke last fall so I'm a little paranoid about my brain. Afraid I'm no help, just sharing to bump your topic up.  

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      Recovery from gluten challenge

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      Feel like I’m starting over

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      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant but also reliant on others to make her food (at school and home) but she didn’t have this problem prior to the gluten challenge when she went strictly gluten-free. It really makes sense to me that the gluten challenge inflammation hasn’t healed and I will be asking her doctors about nutritional issues. I ask for anecdotal stories because the research surrounding the gluten challenge seems to be inconsistent and inconclusive (at least what I’ve been able to find!). Thank you so much for your response!
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