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Glutinized - Duration Of Symptoms?


MisterV

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MisterV Rookie

I've been searching for anwswers on this forum, but haven't quite found out what I'm looking for.

I've been gluten-free for 3 years. I went off gluten before being tested so I don't know if I am Celiac or non-celiac gluten intolerant.

2 weeks ago I unknowingly had a big dose of gluten hidden in some food...the usual symptoms GI, muscle pains, happened the next day. The usual anxiety attack happened 2 days later, but this time my tongue feels swollen, my speech is slightly impaired. I thought it was probably the gluten, but the tongue sensation has been fluctuating up and down without quite going away for about 5 days. I've been poking and prodding so much in the soft tissue under my skin that now I don't know if I'm sore from prodding or if my salivary glands are painful and inflamed.

If anyone has had slurred speech or a fullness in the tongue from a gluten reaction...can anyone reassure me that the symptom will fade eventually?

The problem is the anxiety aggravates my thoughts about what it is and of course I think it's a series of hundreds of other diseases.

 


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Fire Fairy Enthusiast

This is one I haven't had happen (yet). Once in High School the inside of my mouth swelled up but not my tongue. I was glutenated Tuesday morning and have suffered from various issues everyday since. The most worrysome reaction besides being depressed and suffering some senseless anxiety has been feeling like I have bubbles popping in my head. Strokes run on both sides of my Father's family and my mother had a stroke last fall so I'm a little paranoid about my brain. Afraid I'm no help, just sharing to bump your topic up.  

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      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
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