Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Symptom I Didn't Know I Had


bartfull

Recommended Posts

IrishHeart Veteran

Thanks Irish, I am not obsessed about anyone's health. I like to be diplomatic. But when I see this and know that six hundred something people have read the thread at this point I think about more than one person and offer caution where it is needed. If someone can show my comments to be incorrect I would carefully read any information they have.

You are responding to GEMINI's post....Not mine....  :)just so you know.

 

 

 

*****This post has been edited  after a PM conversation with Ksee for clarification.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

I just re-read my post and it seems I did write protein where I meant to say fats. I apologize for the confusion. Please read the article I linked though, I took the time to type all that out because I was concerned. I have had friends who ended up in kidney failure because of the Adkins diet. I don't want that to happen to you. 

Ksee.....again, you misunderstand......where did you get the impression that I was following the Atkins diet?  The Atkins diet is a medical diet for those who are facing bypass surgery and need to drop weight FAST.  Somehow, it made it's way into mainstream America and people loved it because it does make you lose weight fast....but it's not the type of diet you can follow long term.  Only those who are seriously overweight should even consider it, not people who are suffering from Celiac Disease who are classic Celiacs like myself, the skinny malnourished kind.  I started to show signs of ketosis the week I hit the wall with celiac because I had no body fat left and was burning muscle.  It's a good thing I was able to figure it out because the doctor I went to see that week totally blew me off.  I was dying and she blew me off.  I was able to figure out the problem, ask for the blood work and be on my way to a solid diagnosis.

 

I made the comment that people who follow the Atkins diet, long term, very often develop really bad breath and smell like acetone, because of ketosis.  I never implied that people should follow the diet or that I myself follow the diet.  I do not think it a good idea to cut carbs from your diet, unless you have an intolerance to grains in general.  I certainly don't because I weight train. 

 

I hope that I have made things clearer for you.  I am not arguing either....just not quite sure where your posts were coming from.

Celiac Mindwarp Community Regular

I had a friend who was diabetic and I could smell on his skin when he was heading for a fit. Freaked him out though.

 

I have very sensitive smell and hearing too, I wonder if there is a link.

 

I found mirror touch synesthesia helped to explain some of it, but I got that from a book and don't have links I'm afraid.

 

I don't mind smelling the flowers more, but train, plane and bus journeys can be a bit hairy with super sensitive smell. I lived on a main road, and the noise nearly drove me insane.

eers03 Explorer

Gemini,

 

What you described was my exact problem.  I was the skinny malnourished celiac.  Because I didn't know how to cut gluten the right way I dumped all my carbs with the wheat!  Whoops!  It was scary.  I know I'm all over this thread but these were the symptoms that freaked me out the worst.  So glad to have it corrected.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,170
    • Most Online (within 30 mins)
      7,748

    Charlotta Herte
    Newest Member
    Charlotta Herte
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.