Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Unable To Cry


1desperateladysaved

Recommended Posts

kareng Grand Master

I am just thinking about my Mom.  I got at least 2 genes from Mom's side.  She is going down hill.  I think she has celiac, and did all I could to get her diagnosed, but It didn't work out.  Dad said they couldn't follow the diet anyway.  Dry eyes could be a similarity to my struggles, but I wouldn't say my eyes are dry yet.  They just don't abound when they should.

 

D

Do your eyes water when you cut an onion? Or when there is smoke from the BBQ or pollen in the air?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

Do your eyes water when you cut an onion? Or when there is smoke from the BBQ or pollen in the air?

They do a little.  They mostly burn.

1desperateladysaved Proficient

Nobody mentioned severe depression as a possibility.  I recently read if you are severely depressed you are sad, but do not cry.  However, I am functioning fairly normally even though I am passing through some tough times. 

1desperateladysaved Proficient

Oh, that reminds me that Mom was treated for dry eyes for years.

Thanks, I will check it out.

D

Quoted from above link:  "Sjögren’s is a chronic autoimmune disease in which people’s white blood cells attack their moisture-producing glands. Today, as many as four million Americans are living with this disease"

 

Hmm on the one hand I might have some more symptoms.  Yet, my dentist comments on my saliva pools.  It looked like the only treatment is for symptoms.  Mine are not severe.  I will ask for testing if I get curious.  Meanwhile, my vital organs have already been checked.  I am continuing a good recovery.  I am feeling quite energetic.  I am increasing my nutrient levels which has been proved by testing.  I am doing what I need to for now, but I will use some eyebright drops if my eyes get dry.

 

Okay?

Gemini Experienced

Gemini, I was thinking that jumping to a conclusion that sjogren's is a likely problem here may be a little hasty, especially considering that the original poster hasn't mentioned any complaints with dry eyes or dry mouth. By no means am I saying that sjogrens isn't serious or that using drops if you do have it isn't needed, just that there are many causes for not producing tears and doing one's research before going to a doctor can help.

But I still wish that science would get to the root of the problem. Western medicine is way too happy to treat symptoms without finding causes.

And I'd still say to start with the easy stuff that we know are common in those with celiac first like vitamin deficiencies and hormone imbalances that are linked to lack of tear production. But an additional note, eye doctors should also know more about tear production ... if you can find a good one.

I don't recall saying that Diana had Sjogren's but gave her the information she needed to decide what she should do.  If you don't have dry mouth, then it's highly unlikely that it's Sjogren's.  There is a known reason for the disease.....it's autoimmune and if you go long enough with undiagnosed Celiac, your autoimmune system never calms down and you start to develop other AI problems.  The root of all disease is inflammation and that's how the AI system runs out of control, along with certain genetic factors.

 

I don't know of any imbalances that cause reduced tear production.  Some medications cause dry eye but when you are being assessed for Sjogen's, they do not test for other issues as you mentioned. In all the research I have done for it, I never came across any issues that would cause it, other than autoimmune in nature. Sjogren's dry eye is much more severe than run of the mill dryness. You also will have dry mouth, which is just as severe.  I knew I had it before I was tested.  I just let the doctor do the blood work to humor her.  They like to have it on paper.   ^_^   With Sjogren's, you will also have dental problems...major dental problems.

1desperateladysaved Proficient

I don't recall saying that Diana had Sjogren's but gave her the information she needed to decide what she should do.  If you don't have dry mouth, then it's highly unlikely that it's Sjogren's.  There is a known reason for the disease.....it's autoimmune and if you go long enough with undiagnosed Celiac, your autoimmune system never calms down and you start to develop other AI problems.  The root of all disease is inflammation and that's how the AI system runs out of control, along with certain genetic factors.

 

I don't know of any imbalances that cause reduced tear production.  Some medications cause dry eye but when you are being assessed for Sjogen's, they do not test for other issues as you mentioned. In all the research I have done for it, I never came across any issues that would cause it, other than autoimmune in nature. Sjogren's dry eye is much more severe than run of the mill dryness. You also will have dry mouth, which is just as severe.  I knew I had it before I was tested.  I just let the doctor do the blood work to humor her.  They like to have it on paper.   ^_^   With Sjogren's, you will also have dental problems...major dental problems.

Dental problems, check.

LisaRae28 Newbie

LMFAO I feel like crap dunno if its just terrible allergies or if this is what its like to get gluttened but i had to miss out on fun and because I don't wanna make myself worse *which is so freakin hard when it's so much more fun to play than take care of yourself* and your replies made my day so far! Btw I might be onna those rare women who doesn't wanna be fixed and doesn't think it's sweet when someone tries to... id rather crawl in a corner alone n either die or get better (which just so happens to be what im doing now lol) but a good laugh when I don't expect it is truly priceless...

On topic though, I don't cry like most folk let alone women folk n y'all make me very uncomfortable when ya start doin all that cuz I don't know what to do with you or how to help you and at these times it seems apparent that y'all have no idea either... I cry at movies sometimes, like my eyes get watery and my nose gets stuffy/runny but I've only cried a few good times the past few years and its usually more than a slightly delayed reaction... I think I've gotten so used to dealing with "life" that I know when things are happening and i feel like breaking down that i still need to keep pushing thru it. I can see how I should have cried lotsa times and maybe should even cry recollecting it but it is what it is and I've done what I could do. It's not that I'm numb and don't have emotions n feelings n whatnot all that Im just not a crier unless I'm fighting the reality of something and finally hit a breaking point but I *try*not to fight my feelings... Or reality lol

Btw If I hit myself in the thumb with a hammer i don't end up crying I just end up hurting the rest of my hand hitting something I shouldn't (or whatever the hammer flies into)... Cursing but no crying...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    2. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    3. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    4. - trents commented on Amiah's blog entry in Amiah
      1

      Help!!

    5. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,582
    • Most Online (within 30 mins)
      7,748

    Kim RS
    Newest Member
    Kim RS
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jane02
      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
    • Jane02
      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
    • knitty kitty
      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
    • Scott Adams
      I’m really sorry you’re dealing with this—chronic neuropathic or nociplastic pain can be incredibly frustrating, especially when testing shows no nerve damage. It’s important to clarify for readers that this type of central sensitization pain is not the same thing as ongoing gluten exposure, particularly when labs, biopsy, and nutritional status are normal. A stocking/glove pattern with normal nerve density points toward a pain-processing disorder rather than active celiac-related injury. Alcohol temporarily dampening symptoms likely reflects its central nervous system depressant effects, not treatment of an underlying gluten issue—and high-dose alcohol is dangerous and not a safe or sustainable strategy. Seeing a pain specialist is absolutely the right next step, and we encourage members to work closely with neurology and pain management rather than assuming hidden gluten exposure when objective testing does not support it.
    • Scott Adams
      There is no credible scientific evidence that standard water filters contain gluten or pose a gluten exposure risk. Gluten is a food protein from wheat, barley, or rye—it is not used in activated carbon filtration in any meaningful way, and refrigerator or pitcher filters are not designed with food-based binders that would leach gluten into water. AI-generated search summaries are not authoritative sources, and they often speculate without documentation. Major manufacturers design filters for water purification, not food processing, and gluten contamination from a water filter would be extraordinarily unlikely. For people with celiac disease, properly functioning municipal, bottled, filtered, or distilled water is considered gluten-free.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.