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Both Celiac/gluten Intolerance And Ibs Or Leaky Gut?


Mum in Norway

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Mum in Norway Contributor

After my inconclusive celiac test, I desied to go totally glutenfree. That worked wonders, and for a month I felt better hvat ever. Then out of the blue, eggs started giving me the same symptoms as gluten did. So I stopped having eggs. Then oats startet making me vomit and soy gave me stomace ace. So I stopped having that as well. Now, someting is slightly upsetting my stomace again, and I can't figure out what. It's not bad now, but I have loos stools and some gas, but the joint pain, anxiety, hormone problems and so on are all pretty much gone.

Why do I keep getting all these intoleranses? Is there anything I can do to keep from getting any more or even get some of the foods back? Could this be IBS or leaky gut in addition to celiac/glutenintolerance? If so, how can I know which one? Is there anything to be done about IBs or leaky gut?

I am so feed up with this crap, and doctors dosen't seem to be intrested if its not something they can test for...


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cyclinglady Grand Master

Try rotating your foods.  Per my doctor, it helps prevent/slow future allergies/intolerances from developing.  At least until your system calms down.  I did a four day rotation years ago when my allergies and intolerances were identified.  I managed to do it for about 8 months to a year.  It was worth it.  I got healthy, had a baby and years later while going through menopause I developed celiac disease!  

 

It might work for you.  

Mum in Norway Contributor

How do I do that? (I know, I could google it and spend the night reading articles on food rotation, but I really don't feel up to it...)

Juliebove Rising Star

Daughter and I have food intolerances and they do keep changing.  Alas for me, they just keep getting more and more.  For her they are lessening!  But we were told by a Dr. never to eat the same thing two days in a row and preferably not the same things more than twice a week.  That makes it insanely hard for us to eat!  I also have gastroparesis so that further limits what I can eat.

 

But the weird thing for me is that the new intolerances for me were not even things I ate a lot of.  Like oats.  I used gluten-free oats in meatloaf.  I made this perhaps twice a year.  I did make a lot at once so enough for at least three meals.  And a few times a year I made an apple crisp.  That was it for me and oats and yet, now if I eat them, I itch all over and get sick to my stomach.

 

The best thing to do is to get some sort of notebook, or I suppose you could do this on your computer if you wanted to.  Make a list of what you ate each day and your reaction (if any).  This may help you to determine what is causing your problem.  Or not, if it is more than one thing.

 

You should also try to plan your meals in advance so that you are not eating the same thing too often.  And remember that your problem food could be one that you never thought of!  I can't have chicken, lamb, or any kind of fish or seafood.  And what was I eating when my stomach was upset?  Chicken broth with a little rice in it.  No wonder it wasn't making me feel better.  I have switched to vegetable broth and have no problems with that.

Mum in Norway Contributor

Thank you! I did some rotation diet-googleing afterall, and it seemd very overwhelming, but the way you put it it seems alot more do-able :)

That is strange, with your intoleranse to oats...!

 

Do you know how your daughter went about to reintroduce the foods? And did she do something first, like a month of probiotics og some suplements or wait a really long time or something?

cyclinglady Grand Master

It's not hard.  Make a list of all the things you can safely eat.  Or....(thinking) put each food on a 5 x 7 card and then group them into four columns on your kitchen table.  Group items you like together.  Make a list.  Post in in your kitchen, carry it in your purse, etc.  Here's a sample:

 

Day 1 -- beef, potatoes, green beans, lettuce, tomato, pears, cantaloupe, oranges, almonds, peas

Day 2 -- pork, apples (applesauce!), sweet potatoes, cabbage, apricots, pineapple, eggs, peanuts, 

Day 3 -- fish, rice, broccoli, bell peppers, kale, zucchini, strawberries, plums, grapes/raisins, kidney beans

Day 4 -- chicken, butternut squash, corn, kiwi, turnips, dates, taro root, mango, walnuts, sunflower seeds, 

 

I think you get the picture.  I started my "day" in the evening. Then I had my dinner for my breakfast or lunch the next day.    Stick to whole foods and you can expand:  pork = bacon, ham, etc.  But in the beginning stick with more simple less processed foods (save the bacon on pork days in a month or two).  Think out-side-the-box for breakfast. 

 

I ended up eating tons of what I once thought were "weird" foods.  It was pretty fun going into ethnic markets and trying new veggies.  Later you might find that you should group food families together (e.g. tomatoes, peppers, potatoes).  But just start taking baby steps for now.  

 

Going on a rotational diet (even with cheating) did help calm down my "fire" (inflammation) and helped my recovery.  I had twelve more years of good health (triathlons and even a baby) before old menopause caught up with me and possibly triggered my celiac disease. 

 

Keep a food journal and record any reactions (remember, many are delayed up to 48 hours).

 

Hang in there!

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    • Dr. Gunn
      Exactly! Negative genetics can rule out celiac disease with close to 100% certainty. It takes tTg antibody testing and biopsy confirm the diagnosis in a genetically susceptible individual. 
    • trents
      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population will develop active celiac disease. It remains latent until triggered by some stress event which may or may not occur. So, there is a genetic component to celiac disease but there is also an epigenetic component. 
    • Dr. Gunn
      Have you had celiac genetic risk testing? A celiac genetic test is accurate with or without gluten in your diet. If you don't carry the celiac risk genes you can effectively rule out celiac disease for life. 
    • Scott Adams
      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
    • trents
      Since you compromised the validity of the antibody testing by experimenting with gluten withdrawal ahead of the testing, you are faced with two options: 1. Reintroduce significant amounts of gluten into your diet for a period of weeks, i.e., undertake a "gluten challenge". The most recent guidelines are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat-based bread) for at least two weeks leading up to the day of testing. Note: I would certainly give it more than two weeks to be sure. 2. Be willing to live with the ambiguity of not knowing whether gluten causes you problems because you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). There is no test for NCGS. Celiac disease must first be ruled out and we have tests for it. Celiac disease has an autoimmune base. NCGS does not. GI symptoms overlap. In the early stages of celiac disease, other body systems may not be showing stress or damage so, symptomatically, it would be difficult to distinguish between celiac disease and NCGS. Both conditions require elimination of gluten from the diet for symptom relief. Some experts feel that NCGS can be a precursor to celiac disease.
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