Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Both Celiac/gluten Intolerance And Ibs Or Leaky Gut?


Mum in Norway

Recommended Posts

Mum in Norway Contributor

After my inconclusive celiac test, I desied to go totally glutenfree. That worked wonders, and for a month I felt better hvat ever. Then out of the blue, eggs started giving me the same symptoms as gluten did. So I stopped having eggs. Then oats startet making me vomit and soy gave me stomace ace. So I stopped having that as well. Now, someting is slightly upsetting my stomace again, and I can't figure out what. It's not bad now, but I have loos stools and some gas, but the joint pain, anxiety, hormone problems and so on are all pretty much gone.

Why do I keep getting all these intoleranses? Is there anything I can do to keep from getting any more or even get some of the foods back? Could this be IBS or leaky gut in addition to celiac/glutenintolerance? If so, how can I know which one? Is there anything to be done about IBs or leaky gut?

I am so feed up with this crap, and doctors dosen't seem to be intrested if its not something they can test for...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Try rotating your foods.  Per my doctor, it helps prevent/slow future allergies/intolerances from developing.  At least until your system calms down.  I did a four day rotation years ago when my allergies and intolerances were identified.  I managed to do it for about 8 months to a year.  It was worth it.  I got healthy, had a baby and years later while going through menopause I developed celiac disease!  

 

It might work for you.  

Mum in Norway Contributor

How do I do that? (I know, I could google it and spend the night reading articles on food rotation, but I really don't feel up to it...)

Juliebove Rising Star

Daughter and I have food intolerances and they do keep changing.  Alas for me, they just keep getting more and more.  For her they are lessening!  But we were told by a Dr. never to eat the same thing two days in a row and preferably not the same things more than twice a week.  That makes it insanely hard for us to eat!  I also have gastroparesis so that further limits what I can eat.

 

But the weird thing for me is that the new intolerances for me were not even things I ate a lot of.  Like oats.  I used gluten-free oats in meatloaf.  I made this perhaps twice a year.  I did make a lot at once so enough for at least three meals.  And a few times a year I made an apple crisp.  That was it for me and oats and yet, now if I eat them, I itch all over and get sick to my stomach.

 

The best thing to do is to get some sort of notebook, or I suppose you could do this on your computer if you wanted to.  Make a list of what you ate each day and your reaction (if any).  This may help you to determine what is causing your problem.  Or not, if it is more than one thing.

 

You should also try to plan your meals in advance so that you are not eating the same thing too often.  And remember that your problem food could be one that you never thought of!  I can't have chicken, lamb, or any kind of fish or seafood.  And what was I eating when my stomach was upset?  Chicken broth with a little rice in it.  No wonder it wasn't making me feel better.  I have switched to vegetable broth and have no problems with that.

Mum in Norway Contributor

Thank you! I did some rotation diet-googleing afterall, and it seemd very overwhelming, but the way you put it it seems alot more do-able :)

That is strange, with your intoleranse to oats...!

 

Do you know how your daughter went about to reintroduce the foods? And did she do something first, like a month of probiotics og some suplements or wait a really long time or something?

cyclinglady Grand Master

It's not hard.  Make a list of all the things you can safely eat.  Or....(thinking) put each food on a 5 x 7 card and then group them into four columns on your kitchen table.  Group items you like together.  Make a list.  Post in in your kitchen, carry it in your purse, etc.  Here's a sample:

 

Day 1 -- beef, potatoes, green beans, lettuce, tomato, pears, cantaloupe, oranges, almonds, peas

Day 2 -- pork, apples (applesauce!), sweet potatoes, cabbage, apricots, pineapple, eggs, peanuts, 

Day 3 -- fish, rice, broccoli, bell peppers, kale, zucchini, strawberries, plums, grapes/raisins, kidney beans

Day 4 -- chicken, butternut squash, corn, kiwi, turnips, dates, taro root, mango, walnuts, sunflower seeds, 

 

I think you get the picture.  I started my "day" in the evening. Then I had my dinner for my breakfast or lunch the next day.    Stick to whole foods and you can expand:  pork = bacon, ham, etc.  But in the beginning stick with more simple less processed foods (save the bacon on pork days in a month or two).  Think out-side-the-box for breakfast. 

 

I ended up eating tons of what I once thought were "weird" foods.  It was pretty fun going into ethnic markets and trying new veggies.  Later you might find that you should group food families together (e.g. tomatoes, peppers, potatoes).  But just start taking baby steps for now.  

 

Going on a rotational diet (even with cheating) did help calm down my "fire" (inflammation) and helped my recovery.  I had twelve more years of good health (triathlons and even a baby) before old menopause caught up with me and possibly triggered my celiac disease. 

 

Keep a food journal and record any reactions (remember, many are delayed up to 48 hours).

 

Hang in there!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    3. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Are Lindt chocolate balls gluten free?

    4. - Dorothy O. commented on Scott Adams's article in Latest Research
      7

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    5. - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,402
    • Most Online (within 30 mins)
      7,748

    alanhlam
    Newest Member
    alanhlam
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
    • JoJo0611
      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.