Sorry, it's a rather long post.
I am completely frustrated with the medical system. I've felt generally crappy for years and I pretty much stopped telling the doctor everything bothering me because she always gave me the vibe that she considered me to be a hypocondriac. I've avoided seeing a doctor about actual medical issues because I'm tired of being told nothing is wrong.
I've suffered from migraines, mouth ulcers (canker sores), itchy zit-like rash, particularly on my face, instances of severe abdominal pain that eventially resulted in the removal of my apparently healthy appendix (they cleaned out a massive infection in my abdomen) and, nausea, heart-burn, severe joint pain, and petechial hemorrhaging. I had an anencephalic pregnancy, I was diagnosed with fibromyalgia a number of years ago.
A little family history: My brother was diagnosed celiac at age 45 and I was advised to get tested. My blood tests all came back negative and we thought that was the end of it. My niece (brother's daughter) was subsequently diagnosed when she was biopsied for a seemingly unrelated reason (she also had negative blood tests). Her doctor advised all family members who's blood came back negative get biopsied.
So, I went to my GP, explained the situation and asked her to arrange a biopsy. She was NOT particularly cooperative on that front, but finally agreed to arrange to get me into see a specialist, but the waitlist is quite long. In the meantime, my partner accepted a job offer in Europe and off we went.
In the first 4 months in Europe, I lost about 35lbs (at 5ft 7in, I can't afford to drop from 140lbs to 105lbs) - I stopped weighing myself after that, but I know I've lost more based on the fit of my trousers.
My only change in diet was a lot more pasta, bread and baked goodies than I consumed in Canada. I never did end up seeing a doctor during the 2 years we were in France, but since moving to Holland, I had to see one to get a form filled out for my driving licence. I mentioned the need to get biopsied for celiac at some point soon, and he said I didn't need to get a biopsy, I should just go off gluten for 2 months and then go back on it and see what happens.
Anyway, we just went gluten-free this week as per the doc's suggestion (we waited until after the holidays as we went away and didn't want to make life more complicated than necessary), and will stay that way for at least 3 months and then go back on to see what happens.
I'm not convinced this is the way to go, but I'm wondering, if going back on gluten ends up showing it to be the issue, should I push for a biopsy for a difinitive diagnosis?
I have 4 children (3 adult and one headed that way) and with the difficutlies I've had to get doctors to take this seriously, I am concerned that they wont take the testing of my children seriously without me having a definitive diagnosis.