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Mom Diagnosed Me W/ Gluten Intolerance..scared....


ntb86

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ntb86 Newbie

Hey! I am a freshman in college and since i Started school my parents became convinced that I had anorexia because i kept loosing weight, but i don't, because I eat 3 meals and 2 snacks everyday. But I told my mom I was feeling so full even after eating small portions of food and bloated and I would "go to the bathroom" 2-3 times a day. I would often feel naseated after I ate, my mom believes I have gluten intolerance...so I am seeing my doctor on friday. She isnt sure what test he will do...can you give me some insight about the test that he will be peforming? I have also beein avoiding wheat products as best as I can..is this okay to do?

Thanks for your help!!!

Natalie


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If you are going to plan on having tests done, do NOT eliminate wheat products yet.

If you eliminate wheat and gluten before testing it may skew the results and you could get a false negative. The blood tests and the biopsy both depend on someone consuming LOTS of gluten... however, if after all testing is done and they still don't have an answer, you could always try the Gluten Free diet at that time and see if it helps you. You also want to make sure the Dr. you see is a Gastroenterologist familiar with Celiac Disease (not just the classic presentation, but all the new info as well)

Celiac panel blood tests This is the specific panel of blood tests you want to insist on. If your Dr. tries to tell you that all the tests aren't needed, find another Dr. OR if you want to stick with the one you are going to see, insist they do all of them and that they have someone that can ACCURATELY interpret them.

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

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    • trents
      @cristiana, I'm thinking the intensity of our response to the same amount of gluten can vary from time to time. Our bodies are a dynamic entity. 
    • Scott Adams
      I'm going to try Jersey Mike's soon--we have one nearby. Thanks for sharing!
    • cristiana
      Hi @trents Two things can happen:  1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus  for a couple of days.  2/ For a substantial glutening, and thankfully it's only happened once in recent years,  I get bad chills, followed by vomiting, and my heartbeat is all over the place and I can hardly stand.  It's pretty extreme.  That happens within about 2 hours of eating the gluten.  I might feel slightly dizzy for a couple of days after the glutening episode. Interestingly I've just been out to a cafe which hitherto has made a big thing about how their french fries are cooked in a separate fryer.  I shared some with a friend and they were served with chilli sauce, jalapenos, cheddar cheese and fried onions.  Definitely not health food!  Anyway,  I'd eaten half when I realised I'd not checked the menu to ensure that this dish is still gluten-free - and it turns out it isn't!!!  They've changed the ingredients and the fried onions are now cooked with wheat.   I came home expecting to feel dreadful as I had no idea how much gluten I have consumed but so far if anything I feel just little queasy.  I think I'd have thrown up by now had there been a lot of gluten in the onions.  
    • trents
      It might be wise to start him on small amounts and work up to 10g. Monitor how he reacts. Some people simply cannot complete the gluten challenge because it makes them too ill. By the way, you can buy powdered gluten in health food stores, at least here in the states you can. With a food scale, it would be easy to measure the amount being consumed in a day. I'm not sure what the intensity of reaction to gluten tells you about what's actually going on with regard to celiac disease. I mean there are some celiacs like me who don't seem to react to minor exposure amounts but who get violently ill with larger exposures. Then there are celiacs who get some kind of reaction to even the tiniest amount of exposure but don't necessarily get violently ill. And how the reaction manifests itself is very different for different people. Some, like me, experience emesis and diarrhea. Others just get brain fog. Others get joint pain. It's all over the map.
    • melthebell
      That's interesting - that's a lot of gluten! I'll be very curious to see how my son responds to the gluten. In some ways, I guess having a strong reaction would tell us something? It's tough navigating this as a parent and having it be not so clear cut ;\
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