Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mom Diagnosed Me W/ Gluten Intolerance..scared....

ntb86

Recommended Posts

ntb86 Newbie
ntb86
Posted

Hey! I am a freshman in college and since i Started school my parents became convinced that I had anorexia because i kept loosing weight, but i don't, because I eat 3 meals and 2 snacks everyday. But I told my mom I was feeling so full even after eating small portions of food and bloated and I would "go to the bathroom" 2-3 times a day. I would often feel naseated after I ate, my mom believes I have gluten intolerance...so I am seeing my doctor on friday. She isnt sure what test he will do...can you give me some insight about the test that he will be peforming? I have also beein avoiding wheat products as best as I can..is this okay to do?

Thanks for your help!!!

Natalie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest nini
Guest nini
Posted

If you are going to plan on having tests done, do NOT eliminate wheat products yet.

If you eliminate wheat and gluten before testing it may skew the results and you could get a false negative. The blood tests and the biopsy both depend on someone consuming LOTS of gluten... however, if after all testing is done and they still don't have an answer, you could always try the Gluten Free diet at that time and see if it helps you. You also want to make sure the Dr. you see is a Gastroenterologist familiar with Celiac Disease (not just the classic presentation, but all the new info as well)

Celiac panel blood tests This is the specific panel of blood tests you want to insist on. If your Dr. tries to tell you that all the tests aren't needed, find another Dr. OR if you want to stick with the one you are going to see, insist they do all of them and that they have someone that can ACCURATELY interpret them.

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Heatherisle
      - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      8

      Pain in the right side of abdomen

      I know these topics are a few years old but thought I would comment. My daughter was diagnosed last November from endoscopy end of August. Having good and bad days but recently having a bout of lower back pain, bloating, some abdominal discomfort with a feeling of pressure. She’s doing her best with gluten free and finally has an appointment with the dietitian t...
    2. trents
      - trents replied to science enthusiast Christi's topic in Coping with Celiac Disease
      1

      Sugar intolerance 10 years into gluten-free diet

      Welcome to the celiac.com community, @science enthusiast Christi! I don't have a problem with disaccharides but I do with polysaccharides and complex carbohydrates which are so common in many gluten free processed foods. Gar gum, xanthan gum, pea fiber, chicory root, inulin etc. All those "prebiotics".
    3. science enthusiast Christi
      - science enthusiast Christi posted a topic in Coping with Celiac Disease
      1

      Sugar intolerance 10 years into gluten-free diet

      Hey Celiac friends, I'm wondering how weird I am. About a year ago, I started getting bloated all the time and having extremely smelly gas. Lots of it. I had to avoid people, keep windows open, etc. It really upended my life in a somewhat horrifying way. I figured out that if I didn't eat any sugar, the symptoms mostly resolved. With more experimentation...
    4. trents
      - trents replied to Healthierbody2026's topic in Introduce Yourself / Share Stuff
      1

      New at gluten sensitivity

      Welcome to the celiac.com community, @Healthierbody2026! Just let me check something with you because there is still much confusion in the general population regarding the terminology associated with gluten disorders. You say you have recently been diagnosed with gluten sensitivity. Do you mean NCGS (Non Celiac Gluten Sensitivity) or Celiac disease...
    5. Heatherisle
      - Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      35

      Blood results

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,463
    • Most Online (within 30 mins)
      7,748
    jjwejackso
    Newest Member
    jjwejackso
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      I know these topics are a few years old but thought I would comment. My daughter was diagnosed last November from endoscopy end of August. Having good and bad days but recently having a bout of lower back pain, bloating, some abdominal discomfort with a feeling of pressure. She’s doing her best with gluten free and finally has an appointment with the dietitian this week, also waiting to have several blood tests done. Have told her it takes time for things to settle but she’s worried it might be recurrence of an ovarian cyst from 2/3 years ago. 
    • trents
      Sugar intolerance 10 years into gluten-free diet

      By trents · Posted

      Welcome to the celiac.com community, @science enthusiast Christi! I don't have a problem with disaccharides but I do with polysaccharides and complex carbohydrates which are so common in many gluten free processed foods. Gar gum, xanthan gum, pea fiber, chicory root, inulin etc. All those "prebiotics". 
    • science enthusiast Christi
      Sugar intolerance 10 years into gluten-free diet

      By science enthusiast Christi · Posted

      Hey Celiac friends,  I'm wondering how weird I am. About a year ago, I started getting bloated all the time and having extremely smelly gas. Lots of it. I had to avoid people, keep windows open, etc. It really upended my life in a somewhat horrifying way. I figured out that if I didn't eat any sugar, the symptoms mostly resolved. With more experimentation, I found out that I'm intolerant to any disaccharides (things with sucrose, maltose) and some starches. I've since figured my small intestine stopped making some digestive enzymes. Since Celiac causes the immune system to attack the small intestine, I wonder if I was getting low-level gluten contamination from my environment. (My family eats gluten in our home, and I have to use a shared kitchen at work for lunch.)  I am apparently among the 2% of Celiacs who also have a similar reaction to soy. I've been avoiding both gluten and soy for over a decade now, but sometimes you just get poisoned. For example, I love my houseplants and bought an insect-preventing spray online. After spraying it on all my houseplants, I found out it has soybean oil. Sure enough, two days later I was sick. Soy is such a big ingredient used in everything, I doubt it's possible for me to avoid it completely. Everyone uses lotions with soy on their hands, so every doorknob and switch and item I touch is risky for me.  I was just wondering, has anyone else had carbohydrate intolerance after or related to Celiac? My doctor doesn't know anything about it, especially since I can still digest lactose. Wondering if there are other people out there with similar stories. If eating was complicated before, now it's a bit crazy to be honest.  Thanks, Community! 
    • trents
      New at gluten sensitivity

      By trents · Posted

      Welcome to the celiac.com community, @Healthierbody2026! Just let me check something with you because there is still much confusion in the general population regarding the terminology associated with gluten disorders. You say you have recently been diagnosed with gluten sensitivity. Do you mean NCGS (Non Celiac Gluten Sensitivity) or Celiac disease (aka, "gluten intolerance")? The symptoms of these two conditions overlap. Celiac disease has an autoimmune base and so, there are tests that can be run to detect antibodies in the blood that are produced. Celiac disease does damage to the small bowel lining because of the inflammation present from the autoimmune attack. This is not the case with NCGS for which there are no tests. Celiac disease must first be ruled out in order to arrive at a diagnosis of "gluten sensitivity". 
    • Heatherisle
      Blood results

      By Heatherisle · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.