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Mom Diagnosed Me W/ Gluten Intolerance..scared....


ntb86

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ntb86 Newbie

Hey! I am a freshman in college and since i Started school my parents became convinced that I had anorexia because i kept loosing weight, but i don't, because I eat 3 meals and 2 snacks everyday. But I told my mom I was feeling so full even after eating small portions of food and bloated and I would "go to the bathroom" 2-3 times a day. I would often feel naseated after I ate, my mom believes I have gluten intolerance...so I am seeing my doctor on friday. She isnt sure what test he will do...can you give me some insight about the test that he will be peforming? I have also beein avoiding wheat products as best as I can..is this okay to do?

Thanks for your help!!!

Natalie


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Guest nini

If you are going to plan on having tests done, do NOT eliminate wheat products yet.

If you eliminate wheat and gluten before testing it may skew the results and you could get a false negative. The blood tests and the biopsy both depend on someone consuming LOTS of gluten... however, if after all testing is done and they still don't have an answer, you could always try the Gluten Free diet at that time and see if it helps you. You also want to make sure the Dr. you see is a Gastroenterologist familiar with Celiac Disease (not just the classic presentation, but all the new info as well)

Celiac panel blood tests This is the specific panel of blood tests you want to insist on. If your Dr. tries to tell you that all the tests aren't needed, find another Dr. OR if you want to stick with the one you are going to see, insist they do all of them and that they have someone that can ACCURATELY interpret them.

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

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    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
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      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
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