Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Restaurant Eating...is It A Possibility?
0

7 posts in this topic

Hello out there....

I am recently diagnosed with celiac through the blood tests...I have not been "scoped", or biopsied yet due to the fact that I have medicaid and it is very difficult to find a Dr. that will perform the procedure. I guess they don't pay enough.....Anyway...I am trying like heck to eat right, but I feel like such a downer on my family-we used to eat out all the time, not just junk food, but real food too, and now everything has changed....I am wondering first of all if there are any reccommendations anyone has to how you eat out or where to eat out and I am also wondering about putting the whole family (2- 10 year old sons and a wonderful dad ) on a gluten free diet. I am just concerned about their tastes---any suggestions there too??

I am starting to go into the depression I have heard goes along with such a drastic change in life, and really could use some support.

Thank you for listening........

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi jewlr22. I am not yet diagnosed but my doctor thinks I may also have celiac disease. I had both antibodies come back positive but the endomysial was negative. I'm still waiting on a call back from my doctor to see what this means. I have been reading a lot on this and I think there is a board about eating out and also you can go to the restaraunts websites and some have gluten-free menu's. The places so far that I have found with online gluten-free menu's are Wendy's, McDonalds, Outback Steakhouse, Chili's, Chik-fil-A, Steak N Shake and Burger King(has I think items containing wheat on their nutrition menu, not an actual gluten-free menu). If I do go on the diet my husband already says he will go on it with me. I think someone mentioned it is healthier than any diet. I am currently in a depression because it has been two years and even though I feel closer to finding out what is wrong with me, I also feel like we will never find out. I guess with the high antibody levels that I at least have a gluten intolerance, if not celiac. I hate the thought of going on the diet, but at least it is an answer and will get easier with time. Good luck and even though I don't know much, I hope I helped you some! Take care!

0

Share this post


Link to post
Share on other sites

HI, if you have been dx through blood-work then there is really no reason to be scoped, you should be adhereing to a strict gluten free diet for life. For me I only eat at restaurants that offer a gluten-free menu because you never know what kind of spices are used or if they marinate their meats.

Here on the board there is a section "gluten-free dining and eating out", there are a lot of posts about certain restaurants that serve gluten-free meals and also posts in certain States.....

Here are some websites where you can look at gluten-free menus

http://www.chick-fil-a.com/gluten.asp

McDonalds

Outback Steakhouse

Wendy's

Also I have heard PH Changs has a gluten-free menu

0

Share this post


Link to post
Share on other sites

I wouldn't suggest eating out until all your symptoms have vastly improved and your antibodies have become normal. This will probably take 6 to 12 months, but I feel it's worth it. The less suspicious foods you eat, the faster you will heal. I've read that a lot of people here are comfortable eating at places like Wendy's and McDonalds...personally I wouldn't touch those places with a ten foot pole. I don't believe for one second that places like that are careful with cross-contamination issues; for goodness sake, there's teenagers running them! I would also say get the biopsy, just to confirm your diagnosis so you won't be fending off the drs. all your life telling you to just get one already, because they will do that.

0

Share this post


Link to post
Share on other sites

I used to eat out a couple of times a week before celiacs and now I do not eat out as much - but I do go. For me and the people I know, eating out is as much a social activity as it is just getting a meal. In my own opinion, I will not let this diet force me to never eat out again. On that same note, I am very careful about where I go and what I eat, and when I go on trips I pack A LOT of gluten-free foods. But everyone has to make the decision about how to make this diet work for them and their life style.

Here's what I did when I was diagnosed. Maybe some of it will appeal to you.

1. Learn as much about the diet as you can and be able to explain it to someone who has no idea such a crazy disease ever existed. Be able to laugh about the disease - it puts the other people at ease.

2. Call you favorite restaurants between 2 and 4pm when they are slower and ask to speak with a manager. Ask if they have time now to talk to you about food allergies. Explain that you used to eat there regularly and your family really enjoys the food. You are trying to find one or two menu items that you can eat. Ask for plain non-marinaded meat with no seasonings, etc. Generally the managers have been extremely helpful to me. I have had managers pass me off to the regonal manager when they did not know the answers. And I have managers stand in the fridge and read lables.

3. Realize that eating out will be a bit boring compared to what you used to eat.

4. If in doubt of a restaurants ability to handle your diet (when you have no choice in where you are eating) bring a hot baked potato, cooked meat to add to a plain salad, and any dressing or condiments you might need. I stuff quite a bit in the diaper bag :P

Another concern is figuring out which family and friends want to learn how to cook something gluten-free and which ones just have no intention of dealing with it. To date, my friends are doing great cooking gluten-free and my family has no intention of dealing with it. So be it. I eat first or bring my own food to family events and make myself at home in their kitchen.

Best of luck!

0

Share this post


Link to post
Share on other sites




Although there are places that have gluten-free menus, please be aware that they DO NOT always practice safe food handling. Subway for example does not wash their knifes after cutting rolls, plus the amount of crumbs around that place make me gag!! I frequent my local Outback BUT that was only after writing a very nasty letter to Outback after receiving croutons in my salad , or finding crumbs at the bottom of the bowl after eating my salad - SIX times this happened to me. I have spoken to the proprietor and he now knows that the food must be handled separately. Most people think that if we eat a little bit of gluten that's it's like being lactose intolerant. People think that you will have an upset stomach and that's it's not a big deal. Remember that ignorance is bliss, we are the ones who will be sick for a week, not them, they have no idea what it's like. I was also told by one of my local italian restaurants that I could bring my own pasta and eat their sauce, BUT after further investigation, I found out they use broth in their sauce which the chef had no idea had gluten in it. It's hard to eat out. I go to my local Wendys alot because their chili is supposed to be gluten free but if I go to the Wendys by my work I get sick...it's sad how many foods are gluten free but the handling of the food makes you sick. Just make sure the people know that nothing can touch the food as well, rinsing utensils isn't enough. I still have to remind my family of this as well!! Good luck! I'm sick today for some unknown reason....and my whole house is gluten-free!!

0

Share this post


Link to post
Share on other sites

With eating out you need to be pro-active and let the place you plan to eat at know your concerns. There are many posts as mentioned, on here about calling ahead, talking to the chef, and some people carry cards that tell about celiac disease.

My granddaugther just had a wonderful experience at the Jungle (like Chuckie Cheese). Her aunt called ahead and they said she could bring her own food. They brought a pizza with them on aluminum foil. The Jungle heated it up for her with a note that it was not to touch any other food in big letters!

It really can be a very healthy diet with the concentration more on fresh foods of all kinds, since you don't have to worry about hidden gluten. :D

DK

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,370
    • Total Posts
      917,530
  • Topics

  • Posts

    • celiac disease is psychosomatic
      after nearly 6 years gluten free, i still have some balance/anxiety/neuro issues.  they're the last to leave the symptom party, i'm afraid.  i attribute this to the years and years i went undiagnosed and untreated (25 years~! )  i don't have much faith in the medical field's intelligence or in their ethics. funny story:  my obgyn bill had a charge on it that my insurance denied - $25.00 for 'smoking cessation intermediate 5-8 min'  WHAAAAAT?!  (the doctor said it would be a good idea if i quit smoking.  i'm like 'no shit, sherlock')  called the billing office and told them i'm not paying it.  WHY?  1.  do you have any idea how much money i would owe my dad????!!!  2.  i don't smoke with my vagina.  they took off the charge
    • 9 year Old going through testing
      because they make more $$ treating symptoms   every time i see the new 'miracle' pills for 'ibs-c' and 'ibs-d' it just makes me crazy.  ibs is just a symptom..........  as are all these other things that can be reversed just by changing the diet.  but shhhh let's not talk about it, keep the patient ill and miserable, and keep that $$ rolling in.   and to leave a child ill and in pain is just deplorable.  i'm sorry for him.  go git 'em, mama!
    • Do I have Celiac?
      My IgG is 37.6.  B12, D3, and iron deficient.  Hashimoto's thyroid.  Do I have Celiac?  
    • Newbie Mom - How is my son feeling?
      Not really. She just got out of the hospital for the 2nd time. Upon discharge, they said she will continue to vomit. Makes it very hard to go to school. 
    • celiac disease is psychosomatic
      You are misunderstanding the term hidden gluten.  A food item, of which probiotics are not covered under, can legitimately have trace amounts of gluten and still be gluten free.  There is no test that can test down to zero, regardless of what you hear.  Most testing generally tests down to 5ppm and the vast majority........  most likely 99% of Celiac's, will not have an autoimmune reaction to the food.  I am an extremely sensitive, diagnosed Celiac and I eat some processed foods, from reputable companies, and I am doing phenomenal, 11 years gluten-free.  Lots and lots of other people have this experience also. This is not an example of hidden gluten. There can be food ingredients that may be made from a gluten component that may not be as easy to distinguish but if you learn label reading as you should, with time you will be easily able to identify what is safe or something that is questionable. Can it be daunting at first to learn all this new information?  Absolutely, but if you can read, you can learn. There are also many probiotics which are completely safe.  I have been taking them for 30 years and have never been glutened once from them.  The news reports (for what they are worth now) say that there was gluten discovered in probiotics.  That does not mean all probiotics are suspect. You can find out from the Gluten Free Watchdog which ones failed and which ones did not, then make your choice to buy.  Supplements are not covered under the food laws but again.....read those labels and check with manufacturers!
      https://www.csaceliacs.org/label_reading_101.jsp   This is a pretty good page that explains it well.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,516
    • Most Online
      1,763

    Newest Member
    milliew
    Joined