Celiac Disease And Breastfeeding
Posted 22 May 2004 - 05:19 PM
Enterolab Diagnosed May 2004
gluten-free/CF and have both genes
I would have despaired unless I had believed that I would see the goodness of the LORD In the land of the living. Wait for the LORD;
Be strong and let your heart take courage; Yes, wait for the LORD.
Posted 22 May 2004 - 06:01 PM
Posted 24 May 2004 - 07:13 AM
He had such bad colic, I had to find out what was wrong. I heard he would outgrow it, but no one could tell me why he was colicky...
So, thinking what was going in was coming out and why?, I omitted wheat and then gluten from my diet and he stopped being colicky-period! Also, his ear infections stopped.
Now, he is anaphylactic to wheat and has celiac reactions to gluten.
Our second is also breastfed and won't have gluten for a very long time as we don't keep it in the house!
Posted 24 May 2004 - 09:15 AM
Looking back, two things stand out: first, the lack of help from the pediatrician was quite extraordinary, really. I went to her a number of times very distressed for not understanding my son's virtually constant bad mood and progressively worsening bouts of screaming after we introduced solids. Her systematic response was that he was teething and that babies cry. She clearly took me for a highly neurotic, fussing first-time mother (She finally agreed there was a problem when he reached about 15 months, and suggested acid reflux medication, which helped a bit with the screaming).
The other thing is, that unlike you, Connie, I did not think to eliminate gluten, but I did try eliminating just about everything else. How did I miss it?? That's like what we hear about craving what's worst for us in food allergies. I stopped dairy, soy, oranges, peanut butter, caffeine, and various other things and saw strictly zero change in his symptoms.
When it finally dawned on me that we should try eliminating wheat and we saw immediate spectacular change, it still took me a few days to realize I had to stop it too. Now that we've both been gluten free my son is almost constantly happy - a pure delight to be around. This changes dramatically with ingestion of the slightest trace of gluten now - including when I have it and it passes through the breastmilk. I made a real mistake last week and ate some (well, quite a bit, I'm afraid) dried pineapple rings. We paid for that for a good five days of nonstop whining. Dried fruit I think is often dusted with wheat. I just thought, and I will no longer "just think" this, that the amounts present would be so small that once metabolized through me they would be inoffensive. So much for that idea....
I don't know yet if I have celiac myself. I have a number of symptoms and related conditions, but I've been off gluten for several months now and can't be tested until I've stopped breastfeeding and gone back to eating gluten for the 6 weeks required. In the meantime, we all feel pretty good on this diet and I don't regret this prolonged breastfeeding experience at all. My son went through the wringer with what I now know was constant pain for months and the close contact has been a beautiful part of our relationship. If the breastfeeding while eating gluten was a bad thing - well, obviously I feel badly about that, but I didn"t realize, no one else realized including the doctor, and I guess I'm mainly just glad that we did figure out the problem quite early on, that we went through several months but not years of unexplained symptoms.
Wow, that feels good to say all that!
Posted 22 June 2004 - 07:24 AM
mom to Beth, 7 1/2 and Sam, 4
Posted 22 June 2004 - 02:23 PM
I know that the doctors never would have tested them, had I not insisted. I am so glad I did. Everyone is thriving now that we are all gluten-free!!
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 23 June 2004 - 08:33 AM
Posted 04 July 2004 - 07:34 PM
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