Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This A Gluten Reaction?


Shiba

Recommended Posts

Shiba Newbie

Hi,

I'm new here, and this is my first post. I hope someone can help me, because I am struggling with the consequences of having a husband and daughter diagnosed as Celiacs in the last 6 months.

I read every food label, even items that I've bought before and are gluten-free. Sometimes the ingredients change, so it is part of the shopping routine.

Yesterday evening after dinner - homemade vegie soup and gluten-free toast, my Husband said he thought he'd eaten too much and that he felt bloated. Last night/early this morning he had very runny diarrhoea. BUT it was dark, not pale. Today, he still had very runny motions this morning, and was very tired this afternoon.

WE were going to Pirates, and he insisted he was fine after a nap. After the movie, the diarrhoea returned. He was hungry, so I gave him steamed rice with a spoonful of gluten-free sauce. He had diarrhoea again, still dark, and also was extremely tired. He was also cold last night in bed, and this afternoon.

Last time he had the soup he had runny motions. The only non fresh vegetable in it was the bought stock, which is labeled gluten-free. I also checked witht he manufacturers last week and was assured that there were no traces of gluten, even tho one ingredient listed was some sort of wheat protein extract.

Can anyone tell me if they've had this sort of reaction, and how long it usually takes for a Gluten reaction?

Or is it a virus?

We are worried that we will blame any weird symptom on gluten. My daughter didn't eat the soup, so I can't compare reactions. Likewise, I am fine, but am not celiac. I figure that if it is a virus, I'll be sick in a couple of days<G>

Sorry this is so long,

Shiba


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest cassidy

Certainly sounds like a gluten reaction to me. My stomach usually starts hurting 5-20 minutes after I eat gluten. My intestinal reactions vary from having D 40 minutes after eating and it lasting on and off for a few days to having C.

If the stock has wheat protein extract in it, then I don't see how that could be gluten-free. I think anything that has wheat in the label is completely off limits. I would think that is what is causing the problem.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

    2. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    3. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,856
    • Most Online (within 30 mins)
      7,748

    lyndats
    Newest Member
    lyndats
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.