Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Board Have A Few ?


Drip

Recommended Posts

Drip Newbie

Hello everyone. I am new to the board and wanted to say hello to everyone. I have a few ??? and I apologize if this post ends up long.

When I was a child ( from when I can remember until I was around 12 or so) I could not eat any wheat products, had to have potato or rice bread, rice cereal, If I did I would get very sick, stomach pains, I would throw up and have diarrhea. All I can remember was that I was a pretty sick little kid. But then I got off the diet, my mother said I grew out of it. For a long time I did not get that sick again. I always felt tired and I have had problem with diarrhea my whole life, but never got really sick like I did when I was a kid. But I am in my 40 now and the last few years I have been really not filling to well.. I have had problems with my stomach and intestines. Very bad gas, blotting, diarrhea, cramping, soreness in my throat, and sores in my mouth. I asked my mom what I had when I was a kid and she said I was cystic, could she have meant CELIAC.

OK, what I am getting to is could they have thought I out grew this sense this would have been in the 60 and 70, it sounds like they know much more today about CELIAC then they did back then and now it is getting worse sense there has been damage done after all these years..

Thanks for any help that anyone can give me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

It sounds like you most definitely had celiac. Back then, they thought you could "outgrow" because a fair number of people seem to get better when they hit puberty. And then as they get older the symptoms come back. I've seen messages on various boards from a large number of people who went through just this scenario.

Now we know that you're never "cured." Since you're still eating gluten I would go ahead and get tested, but I'm betting you have celiac. Yes, you've been doing damage, but going gluten-free will likely reverse everything (unless you've also developed other autoimmune diseases).

richard

catfish Apprentice

Yes, this same thing happened to my sister. I didn't know about it until I was found to have the condition, when my mother suddenly remembered that my older sister had to go wheat-free when she was a child but later "grew out of it". This was just how it was handled back then. :unsure:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,858
    • Most Online (within 30 mins)
      7,748

    Beckyq
    Newest Member
    Beckyq
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.