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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.

The Truth About Splenda

29 posts in this topic

Michelle - Ditto re: giving out personal info to read an article.

Re: taking all websites with a grain of salt - I agree, and that goes for THIS WEBSITE, too! I've seen a lot on this forum that seems pretty sketchy, and much questionable information presented as fact by people with no medical background. (In addition, of course, to a lot of good info and support!) I think that people who are in between a rock and a hard place healthwise are all the more likely to accept anything that seems to give them an answer without thinking critically about it or doing real research. I know that when I've first been really sick from the various conditions I have (when I first realized how sick I was getting after eating, and also when I first became really disabled from the fibromyalgia) I was desperate for an answer even if it wasn't from a knowledgeable or legitimate source. Damn, I probably would have tried faith healing if someone had suggested it to me!


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It looks like any site member can post whatever they want on that site. My favorite is the doctor who has several articles objecting to the socialist practice of forced sharing of gluesticks in classrooms.

Also, there's a book-length article on how MS is caused by barium poisoning (lyme proponents take note).

Gluesticks? I'm not surprised.

Anybody can put any nonsense they want on the internet. Using an actual scientific study is probably a better idea.


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check out this coupon for the liquid flavors i found, i didn't even know they had flavors, i have been using stevia for a while now and grow a plant of it, it saved me! The sweetleaf flavors have absolutley no bitter aftertaste, i can't speak for other brands this is the only one i buy, but i love the root beer stevia in sparkling water, the vanilla creme stevia in tea and in recipes in place of vanilla extract and the apricot nectar stevia in my plain water to help me drink a lot more in a day. Enjoy!


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I copied this quote:

" In the coming months we can expect to see a river of media hype expounding the virtues of Splenda/sucralose. We should not be fooled again into accepting the safety of a toxic chemical on the blessing of the FDA and saturation advertising. In terms of potential long-term human toxicity we should regard sucralose with its chemical cousin DDT, the insecticide now outlawed because of its horrendous long term toxicities at even minute trace levels in human, avian, and mammalian tissues."

I get real sick drinking Aspartame and always did. I never drink diet sodas because I generally feel sickly about an hour after. Thanks for this information. As a young girl in the 60's I spent my whole summer vacation in the park. Remember when they had "Parkies". I was infatuated with mine, he was probably 17 yrs. old and I followed him everywhere. Anyway our park had a big baseball diamond and they would come with a small tractor hauling this tank thing that sprayed DDT unto the field and into the air like a hugh cloud. The cloud would could over to us and I can even remember running in and out of the clouds.

Then I would walk home along the bay of Green Bay and smell all the chemicals that the papermills were pumping into the air. It would sting your throat some days.

Is it any wonder I'm chemical sensitive. I can't even tolorate the smell of bleach. I don't use cleaners at all. Just vinegar or Melaluca (sp) (its tea tree oil.)

I will once in a while have cozy shack tapioca pudding with splenda. I'll have to stop buying it although what kept me from eating it everyday was how it made me feel. Taste good though. :(

Thanks again for the heads up



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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
    • High Positive Test Results - Your thoughts please...
      With blood results like these, your husband most definitely has Celiac Disease.  The biopsy is just to check to see how much damage.  Keep in mind that even with high, high test scores like these, damage can still be patchy. Although I would be very surprised if they didn't find enough with numbers like these!  Thank goodness he was able to have a definitive diagnosis and reason for his symptoms!  Good luck!
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