Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dare I Ask - Could Dairy Be A Problem Too?


Deb O (UK)

Recommended Posts

Deb O (UK) Apprentice

Hi

I posted this yesterday but visiting the board again today I think I sort of hijacked someone else's thread :rolleyes:

I'm very new to gluten-free living and have been gluten-free for only a few weeks. By the 2nd day I felt a big improvement - no more D or rushing to the toilet after eating. I began to think that this was wonderful. However, over the last couple of weeks I'm not feeling so good again. My stomach's nowhere near as bad as before gluten-free, but it seems more sensitive somehow - I've had an increase in going to toilet again (although no urgency) and an increase in wind and I've also felt very tired again over the last week and back ache.

I think what I want to share and ask for comments is this - I'm not sure whether my tiredness, back ache, bloating is due to being glutened or just whether I'd feel tired anyway (I am kinda busy most of the time)

Any thoughts please?

I've just thought as I've read over my message - for years I've had back ache and noticed that it was always worse on days when I felt very tired and used to say this to my husband - there's no apparant reason for my back to ache, has this been due to gluten do you think?

Thanks, Deb


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiacgirls Apprentice

I'm pretty new to this, too. I've been doing it almost 6 months but I will try to help. For me, the tiredness relates to gluten, I think. If I'm being very careful and eating only what I know is safe, I can get by on 6 or 7 hours of sleep. At one point, I was getting take-out at a supposedly safe place and noticed I was needing more sleep and needing a nap. At first, I thought I was just doing too much and needed to rest but then I stopped eating there and I'm back again to not needing as much sleep.

I would think the increase in bathroom use, gas, and bloating are due to something you are eating. If you are being as strict as possible about the gluten, you could try giving up dairy and see if that helps.

Corkdarrr Enthusiast

I gave up dairy two days ago because I got my Enterolab results back.

It's the saddest thing I've ever had to do.

But. I've noticed that I'm not feeling quite as bloated, and I look forward to a week or two from now to see if there's really any huge difference.

About the energy..it's been three months for me gluten-free. And I am still exhausted most of the time. And I have the whole back ache thing which I'd never, ever had before. It's weird and it hurts and I don't like it. I notice it's not as bad if I'm doing my back exercises, but mostly I'm too slack to do those.

Unfortunately, there's really no telling what your body is responding to. The problem with gluten is that it takes a while to get out of your system, there's a lot of it hidden that you'd never think of, and your body could just be detoxing yourself. give it some more time, but I do know that a lot of people who go gluten-free also have a high sensitivity to dairy - especially right away.

Good luck!

Courtney

AndreaB Contributor

Dairy very well could be a problem in you have damaged intestines.

Soy could also be a problem if you eat that.

Gluten, soy and dairy can all cause intestinal damage (doesn't mean they will for everyone).

It would probably be best to go off of dairy for 2-6 months and see if you feel better. Then you could reintroduce it and see if you feel worse again. You would need to keep a food diary/journal since an intolerance reaction could take 2 days to appear.

I'm going to include something my doctor gave me for allergy/intolerances.

Food Allergies

Food allergies are a problem created by a disordered immune system. Normally, the immune system, or body’s military team, is designed to attack disease-causing germs such as bacteria and viruses. Sometimes, however, the immune system gets “confused”, and begins attacking harmless proteins such as those breathed in the air [pollens, mold spores, etc.] or ingested [proteins in our foods]. We call such a reaction an allergy. Allergy symptoms are many and diverse; the most commonly recognized being itching of eyes and nose, runny or stuffy nose and sinuses (“hay fever”), difficulty breathing or asthma, and rashes such as hives or eczema. Not as commonly appreciated is that these immune system reactions can also cause many other symptoms such as; headaches, especially migraines, fatigue, sore throat, arthritis or joint pains, stomach distress, colitis, gall bladder attacks, etc. Even such disorders as epilepsy, spontaneous miscarriages, heart attacks, multiple sclerosis, psoriasis, high blood pressure, etc., may have an allergic basis.

You might say, “I feel fine nearly all the time; why should I check for allergies. While it may not be necessary, many individuals discover that they are able to enjoy even better quality of life when they avoid their “problem foods”.

How does one know which foods are “problem foods”? That can be a difficult question. Fortunately, several tests can be useful. One measures the amount of immunoglobulin G present in the blood which is specific to a certain food, another measures the amount of immunoglobulin E. Other tests check for concentrations of antigen:antibody complexes, or look for swelling in white blood cells. The test most frequently useful is that which measures the concentration of the immunoglobulin G, or “IgG”.

Depending in which type of testing is performed, the significant levels will be listed differently. If RAST testing is done, [e.g. Serolab], usually the important foods will have counts greater than 3,000 (or _____). If ELISA testing is done, [e.g. US Biotek], levels greater than “No Reaction” are usually considered relevant.

However, laboratories can make mistakes. Therefore it advisable to experiment with the “problem” foods to see if they actually do produce any problems.

The preferred method is called “elimination diet and challenge testing”. It means strictly avoiding any food which is on the “problem list” (shows an elevated level of antibodies) for about 3 weeks [at least 2 weeks]. Then testing or “challenging” each food one time only, beginning with those foods having the lowest positive [but significant] reaction. Do not eat the tested food again until all problem foods have been tested. The next food is tested after 3 days, (or 24 hours after any reaction has subsided--whichever is first). The amount of the test food is usually not critical. Any amount from 1 tablespoon to 1 quart is acceptable. Other “safe” foods may be eaten at he same meal as the test food.

Observe carefully for any symptoms, especially within the first hour, 6-8 hours after ingestion, and 24 hours after the test meal. It is wise to keep a diary or journal, so you can recall what specific symptoms were experienced, and how long it was after the test meal until they occurred. It is sometimes helpful if a family member also is observing for any personality changes or other objective symptoms.

A typical reaction to a problem food might be as follows. The “problem food” [cheese, for example] is eaten for breakfast at 8:00 am. Half an hour later, you notice some sniffling and sneezing. An hour later, you feel jittery, shaky inside. Four hours after breakfast slight nausea is noted. Seven hours after the test meal [3:00 PM], you get a headache. This continues, gradually worsening, the rest of the day. The following morning you awaken feeling very tired, exhausted. As you drag out of bed, you notice that your joints feel stiff and a little sore. They gradually “limber up” as the day progresses, but you feel tired throughout the entire day. The following morning you awaken beginning to feel more like your normal self. Just eating one problem food once could cause this 48-hour ordeal.

After all problem foods have been tested, decide which ones caused symptoms worse than the trouble of trying to avoid the causative foods. Ideally, one strictly avoids all those foods for a period of 4 to 6 months, after which they are each tested again. The goal is to assist the body in “forgetting” those foods are “problem foods” so they may be safely eaten again. This may take some time, but can be worthwhile.

Another method of dealing with allergy foods is to eat them only occasionally. Eating a problem food at intervals of 4 days or more frequently minimizes the symptoms produced. This can be easier than strictly avoiding the food, though the immune system may not “forget” to “fight” a food that is eaten intermittently. The “bottom line” rule of thumb is to be no stricter about your diet than you need to be in order to feel as good as it is possible for you to feel.

If you would like a more thorough explanation of this topic, please consult one of several excellent books that are available.

Hope this helps.

Deb O (UK) Apprentice

Thanks for your replies and thanks Andrea for the info - I've printed it off to show my husband as it may help him to understand why I get so tired!

This really is a mine-field isn't it? I will keep reading around and I'm sure that I'll try to go dairy free but I just cannot face that right now, still adjusting to gluten-free diet :(

Best wishes to you all, Deb :)

tracey* Rookie

I'm pretty much zonked most of the day and I'm 5 months in. I think it will take a bit longer, and also a balance of vitamins and getting enough rest and exercise. It's not easy, but I've had glimmers of energy for a full day now and then and it's a good incentive to keep going :)

I have a problem with dairy too, much longer than I've problems with wheat and yeast.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Rectal pain

    2. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Guinness, can you drink it?

    3. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      6

      Related issues

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Brain fog


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,276
    • Most Online (within 30 mins)
      7,748

    Sandra Hawn
    Newest Member
    Sandra Hawn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      When I have had what I think are episodes of this (I've never had a formal diagnosis for PF) it seems to be triggered by bloating caused by something I've eaten - a friend had an episode of this after eating too many apples, for me corn and rice cakes seemed to give me IBS and trigger this.  I am not a medical person but it seemed like the extra pressure down there perhaps added pressure to already sensitised pelvic and rectal muscles. Coeliacs can suffer from bloating when they are first diagnosed due to the inability to digest food properly.  Lactose for me caused a lot of bloating and when I came off it temporarily after diagnosis it helped reduce bloating.  Iron supplements and the timing of taking them also caused discomfort and I had to experiment a bit with type and timing before my gut felt comfortable.   Maybe something to think about?   Some coeliacs suffer from constipation - again, just a thought, but perhaps if you had issues with that it might be a contributor.
    • Rogol72
      At a family wedding in Italy last year I was drinking gluten free Peroni which was fine for me. From the Daura Damn website ... " Our guarantee less than 3ppm: each batch is analyzed and certified by the CSIC using the R5 Competitive ELISA test before hitting the market. This way, we ensure that its gluten content is always below 3ppm "
    • Mari
      Hi jmartes, I brought up doTerra's website and see that they do have many supplements, offer  support and help. And using their organic products has been helpful. and yet you are not able to work enough to support yourself when, if you were healtht, you could work for another 20 years. It does not seem that they offer a program to follow and instead are offering supplements for your symptoms. This has helped you but you are not able to work very much.  The Programs I have seen  online usually have 3 parts. The first is a Parasite cleanse. The 2nd is the Kidney cleanse and the  3rd is a Liver cleanse and gallbladder cleanse. You need to doall these cleanses to have your whole body functioning well. I can only reccommend the program I gave you because that is the one I used and still do. (drclark.net)  When I see a newprovider and tell I have Celiacs and they look skeptical I tell them that when I am gluttoned the reaction happens 8 or more hours later with intestinal painful cramping followed by diarrhea. Providers are willing to accept tha I probably have Celiacs and are more likely order tests such as vitamin levels. Is this what happens if you eat only a small amount of Gluten? You mentioned going to Mayors. 20 years ago many Dr.s wanted to include a celiac screening as a standard test so that more people eould diagnosed and not become disabled. It did not happen but the Federal levgislature did pass a law so that Celiacs could claim deductions for the gluten free food they bought. What were you going to ask the Mayors to do?
    • Colleen H
      How bad can this get ?? Does it go away??  How long ? Thank you 
    • Clear2me
      Thank you for all the excellent information. I moved from Wyoming to California. May be its where I am located but So far none of the Costco Kirkland brand I have looked at is labeled gluten free. Same with the Sam's Members Mark. The Kirkland nuts you mention all say they are processed in a plant that processes wheat.  I am going to keep checking. Thank you. The Azure Market looks promising 😁 Take care S
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.