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Can Undiagnosed Celiac Cause Learning Disability?


Sharon C.

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Sharon C. Explorer

Hi-

My son has had an IQ test that said he was average and a little above average in certain areas, but his reading was low. According to the test, he should not have trouble grasping things in school, but he does. He is just now being diagnosed with Celiac, and is scheduled for an Endo for next week.

He is very thin, has had slow bone growth, and had difficulty paying attention and retaining things he learns in school. How many of your children also seem to have difficulty? Can it be because of lost nutrition? Thanks.


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Mom22 Apprentice

Hi Sharon!

Our son is 9 and diagnosed in March this year and has been gluten free ever since. We had him tested when he was 5 for IQ and also was average to above average. At the beginning of third grade (prior to celiac diagnosis), he had difficulty with reading and needed some extra assistance in school for 2 months and then was doing fine. We believe it was due to his summer vacation and lack of reading during that time. From the time he went gluten-free through the end of third grade, he brought home perfect report cards! He is now in fourth grade and my husband and I are just amazed at how well he is doing and, of course, our son is thrilled. He is the best speller in his classroom. I think once children are on a gluten-free diet, they feel so much better that they can concentrate more and excel in their studies. If you are concerned about your son's reading abilities, you have every right to request the school district have the school psychologist test him for reading. We did the same the beginning of 3rd grade and it was concluded he was reading on grade level. You may see a big improvement once he goes gluten-free. We saw a big change in about 3 week after changing his diet and his moodiness totally went away. If you believe he still has an attention difficulty you may want to further test for ADD. Good luck~ Mom 2 2

gf4life Enthusiast

My oldest boy (5th grade) has problems with concentration in school. It has gotten much better since going gluten-free in April of this year, but it is not great yet. I don't know if it will ever be great. I think part of it is nutritional and part of it is personality. When my son gets his work done he gets great grades, but he doesn't always get it all done. He works slowly and daydreams alot. He also talks to his friends when he should be working. His teacher and I are working on getting him to use his time better. He needs to be more organized and focused. I always know when he has gotten some gluten, since he gets very moody and he can't concentrate on anything. These are his main symptoms, with very occasional diarrhea and stomachache.

Last year, after about a month gluten-free, his teacher commented to me on how much more he was getting done in the calssroom and how much more focused he was. I really appreciated her telling me this, because it helped me to know the diet was working for him!

God bless,

Mariann

3boyzmom Newbie

Here's an interesting article on the subject:

https://www.celiac.com/st_prod.html?p_prodi...-52104495568.77

Priscilla :)

Mom22 Apprentice

Thanks for posting the link to the article. I found it very interesting. P.S. I love your blurb from Phyllis Diller!

Mom 2 2

FreyaUSA Contributor

An interesting article, but I really can't agree with this and it seems much of what he asserts comes with the acceptance of this as truth:

Our cultural obeisance to grains is at odds with the remains of ancient humans. Archaeologists have long recognized that grains are a starvation food

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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