Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kindergardener Using Her Celiac To Get Out Of School...how Do I Deal With This?


lillybug

Recommended Posts

lillybug Newbie

My daughter who is in Kindergarden is "playing up" her Celiac at school. The school called me to tell me she said her stomach was hurting because of her celiac. She was in the nurses station for about 30 minutes. I ,without thinking, let her have french fries last night from Wendy's...so she truely was probably feeling bad, however, when I picked her up... the second we came home she wanted to play and have a good old time and eat. Then later she said she doesn't like her school. So, I am having trouble with the fine line of wanting to acknowledge her Celiac but also make sure she isn't doing it to get out of something. Whenever she doesn't want to be somewhere she does this. Usually, I know she is doing it because I watch her diet very carefully but this time I messed up. And then there are times when she is not in my care and she might have honestly ate gluten in something and feel really bad. She use to throw up (bial) when she had an episode before we new what was wrong... but now she just feels bad.

I am just wondering if anyone has had a simular problem and how you delt with it? Also, what to tell the school if this happens again? Because usually she feels better after about 1 to 2 hours if it is truely a celiac issue. Do I tell them to keep her there...so she can participate when she feels up to it or what? I certainly can not be taking off work a couple of times a month...just to bring her home and her tell me she is fine now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nic Collaborator

Hi, unless the fries had cc issues they should not be a problem, Wendy's is usually safe. My nephew does not have Celiac went through an issue this past school year (first grade) in which when ever he felt he had enough of being there, he went to the nurse. Now he does not have celiac to play up be he certainly has the sweet factor going on and everyone thought if he is complaining, he must really be sick. The first time he got sent home we knew right away once he was home that he was fine. After the second time the nurse called my sister allerted them to the fact that he just wants to come home and eventually he stopped going (it took a long time though). Maybe remind her that if she uses Celiac to get out of school no one will believe her when she really is sick. Hopefully, she will outgrow this.

Juliebove Rising Star

This sounds familiar. My daugther doesn't have celiac, but food allergies. She would often say she thought she was going to throw up so I wouldn't send her to school. She is very good at faking it and I can never tell if she is really sick or not. And she would usually pull this on a day when I was not feeling well so I'd keep her home rather than risk having to go out to pick her up sick from school when I didn't feel like going out.

In her case, she really didn't like school. Because of issues caused by the undiagnosed allergies, she was put in special ed. That meant pulling her out of her regular class so she missed what was going on in there. I think she felt like she was always trying to play "catch up".

This coming year she will not be in special ed. and she is looking forward to going to school. I hope so! The school was telling me she missed too many days last year. I did mention the problem to the school psychologist. Perhaps you could do the same.

When my daughter was in Kindergarten, there was a serious issue with the teacher and she never got over it. The one they had at the start of the year had only taught Jr. High prior. She didn't understand little kids. Didn't understand how they could not know whether or not they needed to use the bathroom. She laughed at them and yelled at them. I got these same sort of reports from all the parents I spoke to and she even told us she was laughing at them when she called a parent teacher conference at the start of the year. She was replaced within two weeks with what I think was a good teacher, but my daughter never recovered from that first teacher. It took her until second grade before she really started trusting teachers again.

Darn210 Enthusiast

My son visited the nurse a lot when he was in kindergarten (he did not have Celiacs.) Then there was the time when I sent him to school because I thought he was faking it and he wasn't. So after a couple of "is he or isn't he really sick" episodes, I went to talk to the school nurse. She is a wonderful lady. I asked her if she could give me any advice on how to tell if he was truly feeling bad when there is no outward signs (fever or vomitting etc). She told me to not worry about it - if I didn't think he was sick then send him in - if she needed to call me she would. She said that every year she has a few frequent visitors. She thinks part of it is the kids testing the parents to see if they will really come. She said they always outgrow it. A couple of times, my son would maintained that he was sick and she would tell him that she thought that after lunch he would probably be just fine and he should come back to school - and he would. So my recommendation would be to talk to the school nurse and see what her take is on it.

That being said - when one of my kids is home sick (and I don't think they should be), there is no playing on the computer, they might get to watch a little TV while laying on the couch but not much, no talking to friends, and meals are on the bland side. It's not going to be FUN to be at home.

taylor- Rookie
My daughter who is in Kindergarden is "playing up" her Celiac at school.

Haha, once again, I obviously don't have any children, but I had to respond to this because I used to do that all the time. I didn't do it in kindergarden, I was a little goody two shoes...but when I got a little bit older, I did this all time to get out of recess, or going to a birthday party I didn't want to go to, or when I was scared to spend the night at a friends house and didn't want to "look like a baby". This summer at the summer camp I worked at we had a 3rd grader who was diebetic, he used that as an excuse every day to get to go inside early, we had to let him, because we we didn't want to take a chance, even though 98% of the time he wassn't really feeling "low", and as soon as he stepped inside he was running all over the place.

My mom used to tell me to rest for 30-45 minutes in the clinic and see how I felt, and usually by the time a 1/2 hour was over I was either so bored I would say I felt better and go back to class, or I was fast asleep and really didn't feel good, in which case my mom would pick me up. Sometimes if my mom couldn't pick me up after the 45 minutes, and I really didn't feel good, the nurse would get me some fruit from the cafeteria because that always helped my stomache feel better.

mftnchn Explorer

I don't have a celiac child at home, just a few thoughts you might consider:

We all tend to figure out ways to indirectly deal with emotional stressors that have a hard time with or don't know how to deal with directly. So I think as a parent behavior like this is a signal that our kids are struggling. Doing things that help them express the struggle directly may help. Read books about going to kindergarten, dealing with unhappy experiences, etc. Talk about emotions, where you feel them in your body, how to express them, what to do when you feel that way.

Also at this age, attachment issues are normal. I just heard someone talk on this topic. She said a transitional object can be very important, like a favorite blanket, toy, etc. Carrying a picture of mom and dad, home, etc. can also be very helpful. (Pin it on??)

Also if this continues for awhile, you might consider play therapy--maybe family play therapy where parents and child are involved. Children work out their emotional traumas and hurts through play, and a therapist who understands this process might help this happen more easily, and you could learn from the process some new ideas of how to help your child at home.

zarfkitty Explorer

My little girl did this a lot last year. She really did get sick the first time and bonded with the caring, nurturing nurse. After that she wanted to go back again and again and would tell little fibs to get the TLC she wanted. I teach high school, and I can honestly say there are "frequent flyers" in high school for the same reason.

I got her to stop by reminding her that if she faked sick all the time, no one would believe her if she really was sick. I also decided to "believe" her every time she was sick. I got the school to tell me when she visited the nurse and we had "sick rest" those evenings. No games, no TV, no exciting snacks or dessert. BRAT diet (heavy on the plain brown rice!), bedrest, etc. while my husband and I ate normally and engaged in fun activities. She eventually got the point that she didn't want to be "sick" anymore.

I would imagine, even if you did nothing, that she'd grow out of it though.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sedunk Apprentice

Greetings,

I am a sixth grade teacher and I will tell you that it doesn't get easier with age. I have had both ends of the spectrum. From students crying wolf, to students who refuse to see the nurse when they really need to.

I would suggest a reward system or sticker chart for good behavior. If she doesn't cry wolf I may offer a special

snack or free time. I would also explain how serious it is to pretend to be sick.

Good luck

gfgypsyqueen Enthusiast

Yup, my kindergartener played the "food allergy" card last year. She is smart and knows how to work the system. She wanted to be home with mommy. I had a discussion with the teacher about her "not allowed to EVER lie about her allergy." We discussed the "other" issues that could be going on. (missing home) Turns out after involving the teacher, who was awsome, the problems stopped. A few times last year I got a call during class where the teacher explained the what she was doing (acting out started once allergies were no longer an option), I spoke to her on the phone and her behavior changed for the rest of the day.

I did find the best way to handle the beginning of school/food allergies game was to talk to the teacher in person, with the kid present. Then I tried to make more hugs and mommy time after school, so she didn't feel like she missed anything. If she did stay home sick, it was not a fun day. It was a boring day and we talked about the stuff the teacher was doing at school that she missed. This year my child has already told me she wants perfect attendance because she wants the award at the end of the school year!!! I'll be using that to my advantage :P

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jordan Carlson posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fruits & Veggies

    2. - wellthatsfun posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      heaps of hope!

    3. - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

    4. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,996
    • Most Online (within 30 mins)
      7,748

    Gail Schoeninger
    Newest Member
    Gail Schoeninger
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jordan Carlson
      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
    • wellthatsfun
      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
    • knitty kitty
      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.