Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

8 Yo Daughter Seems To Need Lots Of Sleep


dmchr4

Recommended Posts

dmchr4 Apprentice

My 8 yo daughter was just diagnosed as Celiac. She has always needed a LOT of sleep. She is a night owl, and even if she's in bed by 8:30, we often still find her awake at 10:30 (even though we've checked her in between and turned off her lights.) She also wakes up 2-3 times a night to go to the bathroom even though I limit fluids in the hours before bedtime. She will sleep in until 9:30 or even 10:30 if we let her. She snores awfully (so none of the other kids want to share her room), and she does have very large tonsils. The doctor doesn't want them out, though. She wakes up every morning feeling lousy with no appetite. Once she eats a bit, she feels a little better. She's been gluten-free for a week now, and seems like she's got a lot more energy, she's been running around like CRAZY. But she's still doing all the sleep patterns above. Anyone else had problems like this and seen improvement once on the gluten-free diet for a while?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gf4life Enthusiast

Why doesn't the doctor want her tonsils out. Sleep problems, chronic enlargement and snoring together make her fit into the criteria required for surgery to remove them.

Some of her sleep problems could be from gluten, and that might get a little better with the diet, but some of it might be sleep apnea caused from her tonsils. She may be waking up because she is having trouble breathing clearly, and then just gets up to go to the bathroom, since she is already awake. This constant night waking can also explain why she is always so tired and wants to sleep in in the mornings. It is a good idea to have them out if she is having problems because leaving them in can cause future health issues due to the strain on the body from the disturbed sleep and lack of oxygen (if she does indeed have apnea). I would question the doctor about this decision and if need be get a second opinion. Make sure you discuss the sleep problems and if they could be related to the tonsils. Her lack of appetite could also be attributed to the enlarged tonsils. It can make it uncomfortable to swallow, so kids eat less.

My 5 yo daughter is recovering nicely from her tonsilectomy from 9 days ago. Her snoring is relieved (although it was worse for a few days due to the swelling), her sleep is more sound (less waking up at night) and although she is on a soft food diet, she is eating much better. We are expecting another growth spurt, now that she can eat better! :D

God bless,

Mariann

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    2. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      6

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

    5. - Silk tha Shocker posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,478
    • Most Online (within 30 mins)
      7,748

    Susan Gutenberger
    Newest Member
    Susan Gutenberger
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • Silk tha Shocker
      What is the best gluten free scanner app? I have the "gluten-free Scanner" app. I scanned an almond joy and it says it contains gluten when the package is labeled gluten free
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.