Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Got Diagnosed Now What


ChristyM

Recommended Posts

ChristyM Newbie

Hi all, I have read a lot of your post and I thnak you all for the imformation I have read. It's been very helpfull.

I lost almost 30 pounds in a matter of 3 months. I could not figure out what was wrong with me. I was eating donuts every morning and pizza every day. I should have been the size of a house. I finally broke down and saw the DR. I got the diagnosis today. I'm a celiac. Holy cow a what!!!!!! :o:o

I just opened my own pizza shop 2 months ago. :angry: I was eating all of our types of pizza so I knew what I was selling. BIG mistake. The over indulgance of pizza made me lose weight. What a concept! Now I'm only 104 pounds and look anorexic, i'm completely unhealthy. I started eating everything to make me gain weight. That backfired too. Everything I was eating was reversing the weight. Lesson learned.

So now that I have this CS where do I go from here? It's going todrive me crazy not being able to eat my own pizza.

If anybody has a good gluten-free pizza crust recipe I could use it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dbuhl79 Contributor

Christy,

Ah I feel so bad for you, just figures you open this great shop and now Celiac creeps its way ujp! I'm sorry I don't have a recipe to post, but if you do a search there are SEVERAL posts on here w with various pizza recipes. And being as that what you do, I am sure with a bit of trial and erro you can figure out a great balance from the recipes given. And please post when do youdo!

I love pizza, and its been great playing around with the different crusts. Good luck, and keep us posted!

darlindeb25 Collaborator
:( sorry Christy, to be giving more info you wont want to hear, but you are going to have to be very careful in your pizza shop--airborn flour is as bad for us as eating it--we can get very sick just by breathing too much flour in--my sister became very ill when making her kids rolled out sugar cookies--you may need to check further into this--sorry, deb
FreyaUSA Contributor

There's a bakery (that does all the baking for it's 3 restaurants and other area retailers) near my kids' gymnastics studio that has a great latte... Well, every time I go in there I get sores in my nose. They're totally annoying, but I haven't had any of my other glutened reactions, not even the headaches. It may be you'll be fine. Wear a face mask when mixing doughs?

You might want to contact the baker for Wholefoods that has just started a gluten-free baking (factory?) for the chain. In the bio I read about him, he worked in the regular bakery, with celiac disease, for well over a decade. You can ask him how he handled the flour in the air, if it even bothered him.

Now, you do realize your business will very popular with this group, don't you? Find a good gluten-free pizza crust, let your area know you have it, and you'll have every celiac/wheat allergy individual frequenting your place in no time! (For a gluten-free pizza crust I use the recipe for Crumpets from Bette Hagman's "More from the Gluten Free Gourmet." One recipe makes a large round pizza pan worth. I bake it a bit before topping, top and rebake. My kids really like it.)

JUDI42MIL Apprentice

Christy- I just wanted to say I am so sorry. WOW opening a pizza shop to find out you have celiac.

I agree be careful with the airborne flour. And let us know where you are, so when you find that perfect crust we can eat, we can come by and have some. :) Boy I miss pizza

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    2. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Second chance

    3. - Scott Adams replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Schar's products contain wheat!

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,600
    • Most Online (within 30 mins)
      7,748

    C RYLES
    Newest Member
    C RYLES
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      Thank you for sharing your experience, Florence. It’s important to clarify, though, that proteins like zein in corn, panicin in millet, and kafirin in sorghum are not considered gluten and have not been shown to trigger the same autoimmune intestinal damage seen in celiac disease. Some people with celiac disease do report symptoms with certain gluten-free grains, oats, or other foods, but that reflects individual intolerance or sensitivity—not a proven “gluten-mimic” effect that damages the small intestine. Certified gluten-free oats are considered safe for most people with celiac disease, though a small subset may react to avenin. If specific foods consistently cause symptoms for you, it makes sense to avoid them personally, but it’s helpful for readers to know that these foods are still medically classified as gluten-free and generally safe for the broader celiac community.
    • Scott Adams
      It’s true that awareness of celiac disease can vary among physicians, particularly outside of gastroenterology, and many patients end up educating their own providers. Reaching out to someone you trusted for 25 years makes sense if you felt heard and supported. That said, celiac disease management often benefits from a team approach, including a knowledgeable primary care provider and, when needed, a gastroenterologist or dietitian familiar with gluten-related disorders. Advocating for yourself is not unreasonable—it’s part of managing a chronic condition. If your current provider relationship isn’t working, it’s appropriate to seek care where you feel respected and properly supported.
    • Scott Adams
      I understand why that feels concerning. Some Schär products use specially processed wheat starch that has had the gluten removed to meet strict gluten-free standards (under 20 ppm in the U.S. and EU), which is why they can legally and safely be labeled “gluten free” for people with celiac disease. However, wheat must still be listed in the ingredients and allergen statement because it is derived from wheat, even though the gluten protein has been removed. For individuals with a true wheat allergy, these products are not appropriate—but for those with celiac disease, properly tested gluten-free wheat starch is considered safe under current medical guidelines. That said, it’s completely reasonable to prefer products made without wheat starch if that gives you greater confidence, and clearer front-of-package communication could certainly help reduce confusion for shoppers.
    • elisejunker44
      I have enjoyed Schar's gluten free products for years. However, some items Do contain Wheat and are not clearly labeled on the front. Indeed the package states 'gluten free' on the front, and it is not until you read the ingredient label that one see's wheat as the first ingredient. Some celiacs may be willing to take a chance on this 'gluten free wheat', but not me. I strongly feel that the labeling for these wheat containing products should be clearly labeled on the front, with prehaps a different color and not using the 'no gluten symbol on the front. The products are not inexpensive, and also dangerous for my health!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.