Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Imodium (sp?)
0

2 posts in this topic

Hi all :)

I just wanted to know if any of you use Imodium on a daily basis in addition to the gluten-free diet to help control your diarrhea? If so, does it help at all?

The reason I ask is because despite being gluten-free since Sept 2003 I continue to struggle with diarrhea every morning and sudden BM urges (cannot hold it at all).

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi Stacie,

Boy, have I been down that road....

Immodium, Lomotil (which I found out had gluten in it), everything under the sun the dr. gave me didn't work. I had permanent diarrhea for almost a decade! Sometimes 10 - 12 time a day. I also was not able to keep it in. I always had to stay close to the bathroom....

After years of this, my celiac dr. finally referred me to a professor at St. Michael's Hospital. He did a colonoscopy and sent several biopsies for testing. He suspected I had collagenous colitis, also known as microscopic colitis. Sure enough, the pathologist report said that is exactly what I had. If you google it, you will probably find what you read very familiar. The first treatment was a high dose of bismuth. 8 Pepto Bismol pills a day for eight weeks. That treatment apparently works for 35% of collagenous colitis patients. It didn't work for me. I am now on Budesonide and it has worked miracles for me. I almost took a picture of my first solid bm, I was so happy!!!

The next time you see your dr., perhaps ask him about collagenous colitis, it might be the reason your diarrhea is not going away....

Have a great day!

Karen

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,894
    • Total Posts
      919,531
  • Topics

  • Posts

    • Gardasil
      "I got this vaccination in 2009 when I was 20 and it completely altered my life. Made my celiac disease so much worse, sleep 15-18 hours a day, SIBO, it has completely altered my life since getting this vaccination. My doctor has two twin girls about my age and they both have digestion problems after receiving gardasil Thank you I have a young daughter and have wondered this exact question posed by the poster and your response has given me great pause about this issue which may come up in years to come. I am sorry to hear this wreak havoc on your life, but simultaneously thank you for sharing this detail to help those of us that have likely been decades misdiagnosed celiacs now raising children. Thank you.
    • Gluten does WHAT to the brain?
      "Wondering what kind of life my brother could have had - if  he had celiac - constantly haunts me" My sympathies that is just tragic, as this story is.  I hope you are at peace knowing you are aware of your celiac and help so many lost, scared, and confused celiacs here. It can never bring back your brother but I hope it can give soften some of what you feel that was/is beyond your control. His suffering and your loss has made you a better advocate to yourself and in your work helping us. I don't like my body or my  brain on gluten either. I do fear that people overlook the toll inflammation takes on the brain. It likely may explain decades of mental illness that was brain based inflammation unknown until changes in technology advancement catch up. However consuming gluten to study how one enters psychosis may not be the best method. Do no harm.  
    • Gardasil
      I got this vaccination in 2009 when I was 20 and it completely altered my life. Made my celiac disease so much worse, sleep 15-18 hours a day, SIBO, it has completely altered my life since getting this vaccination. My doctor has two twin girls about my age and they both have digestion problems after receiving gardasil
    • Gardasil And Celiac
      I have this same issue! I got gardasil in 2009 and have never been the same since. Celiac disease, thyroid problems. I used to be healthy and active and since I got that shot I have never been the same.
    • Gluten does WHAT to the brain?
      I saw this the other day too & like Karen, wondered at the last line of the article. The article had me once again thinking about my deceased brother who was dx'd paranoid schizophrenic in his late 20's. He also had alternating constipation/diarrhea  but "they" always blamed it on his meds for the schizophrenia. We, his family, knew he had those issues prior to him being prescribed the meds but there is no telling the medical community something when you're talking about a mental patient.  Okay, I know the guy is selling something but the research noted in the article is valid: http://articles.mercola.com/sites/articles/archive/2013/06/22/gluten-grains-cause-schizophrenia.aspx We knew about this back in the 50's & going forward. They even coined the term for it "bread madness". Why have we not recognized this in the psychology/mental health/institutions community for all these many years? Why does it seem to have been just shoved under the rug like some dirty little secret?  Wondering what kind of life my brother could have had - if  he had celiac - constantly haunts me.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,939
    • Most Online
      1,763

    Newest Member
    vamanos25
    Joined