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Lymph Nodes
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3 posts in this topic

Reading about lymph system in GI tract, but we're not there yet with knowing.

Very concerning to see dd has had lymph node in each arm swollen and painful over the last 2-3 months.

She never told me, but she's had one swollen near her groin.

My worry is b/c of the occurrence of lymphoma with Celiac's.

Could it be something adrenal related? How would a doctor know?

Sorry for a similar post in one of my first posts in another thread. I wanted to separate this one symptom from the rest and see how familiar it is to anyone.

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If lymph nodes stay swollen for more than a week, you should go to see a doctor. It could just be an infection. They can test for that. And if not an infection, they can do a needle biopsy to find out. Please do not let fear keep you from acting. You always want to catch things as early as possible. Likely it is nothing, but you need to find out.

A friend of mine just took her daughter to the doctor a few weeks ago because she had 3 swollen lymph nodes on her neck. They ran tons of blood work and everything came back fine. They scheduled a biopsy, but before that date came, two had gone away and the other was shrinking. Turns out to have been nothing. But they were going to do the right thing.

You need to talk to a doctor.

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I agree, absolutely.

To justify a bit, I am dealing with an inadequate military health system that has failed me in this process for over 3 years- going on 4 with a diagnosis. We ran treating allergies here, mental health over at psychiatry, GI many times for no real outcome except for "wait and see", no one listened. I don't trust them. I'm not being overly whiny- they really have blown me off- her off, really.

Once the dx process is stable and we have a better idea of what we're looking at, hopefully the scope is enough (upper and lower), I am switching to Johns Hopkins Health, which is an option. It gets no better than that. If I switched my daughter now, the waiting game continues and I push this back further.

It's being brought up at the pre op on Wednesday this week.

I asked here because I've come to trust those who've had to go through it more than I do the incompetent doctors we've suffered through. Having a general idea when you walk in their door helps, knowing how things might be interconnected helps you do validate why you're asking them to investigate further. I've noticed I've needed to arm myself this way with them.

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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