Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Someone With Experience Explain...


mario

Recommended Posts

mario Explorer

I mean I'm all new at this been on the diet for one week now and, can feel the diference having the strenth to go back and, play my drums with my band, really feels great again..

But my question is after six months of healing will I be able to have a small cookie like everyone else will it re-damage the intestinal villi all over again or, will it be a slight damage like barely noticable...can I sometimes cheat like at parties like once a year or will i go back to step one like when i was diagnosed...Someone with experience only can answer me this one question.

Thanks.. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gf4life Enthusiast

Hi Mario,

Sorry to be the one to tell you this, but you just need to find (or make) your own cookies! No cheating, or you just cause damage all over again. I believe it is something like a gram(or maybe less) of gluten a day causes damage. Not to mention, that most people experience horrible pain and symptoms once being gluten-free for a while. Your body becomes ultra sensitive to the gluten, because it likes being gluten free. So when you want to cheat at parties, even once a year, you may very well suffer for it for weeks afterwards. Now you will have to be the judge of whether it is worth it or not, but most people will agree it is not worth it. You will start to find the gluten-free diet is not as hard after a while and being gluten-free will become second nature. But it is very normal to feel sorry for yourself every once in a while and grieve for your loss of freedom to eat whatever you feel like. Just don't let it keep you down. You will eventually be healthier than you probably ever remember feeling in your life, and for that you should be very happy! :D

Gluten intolerance and the gluten free diet can make us all feel a full range of emotions. These are just a few of them.

:mellow::huh::o:D:rolleyes:<_<:):angry::(:unsure::wacko::blink:

So just go easy on yourself and you will find it will not be so hard down the line.

God bless,

Mariann

mario Explorer

Thanks mariann..I'll take your advice, and, stick to the diet, as it is well worth it in the long run...I can always buy my gluten free cookies and, stuff my face once a week with a big coffee...hehhe

Thank you so much..

xox :blink:

flagbabyds Collaborator

Never evr cheat on the diet, it is definetly not worth it. Everytime you are eating gluten you are making your self more and more prone to stomach cancer, and you don't want that

remember stick to the diet it is worth it

mario Explorer

Thanks baby.. :blink:

JsBaby-G Newbie

Mario,

I know you have gotten the replies that I will give but believe I am overly qualified to give it. I ignored the diet for a year, thinking really how bad can the damage be. I wanted to eat pizza with my friends and have a normal birthday cake. I was getting myself in trouble. I ended up in the hospital with a total atrophy of my small intestine (it wasn't working at all) and was told that if I don't gluten free I run the risk of getting cancer and having irreversable damage elsewhere in my body!! Trust me it's not worth it!! I hope you heed this advice from someone whose been through it all!! :P

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    2. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Second chance

    3. - Scott Adams replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Schar's products contain wheat!

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,598
    • Most Online (within 30 mins)
      7,748

    Caroline Alexandria
    Newest Member
    Caroline Alexandria
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      Thank you for sharing your experience, Florence. It’s important to clarify, though, that proteins like zein in corn, panicin in millet, and kafirin in sorghum are not considered gluten and have not been shown to trigger the same autoimmune intestinal damage seen in celiac disease. Some people with celiac disease do report symptoms with certain gluten-free grains, oats, or other foods, but that reflects individual intolerance or sensitivity—not a proven “gluten-mimic” effect that damages the small intestine. Certified gluten-free oats are considered safe for most people with celiac disease, though a small subset may react to avenin. If specific foods consistently cause symptoms for you, it makes sense to avoid them personally, but it’s helpful for readers to know that these foods are still medically classified as gluten-free and generally safe for the broader celiac community.
    • Scott Adams
      It’s true that awareness of celiac disease can vary among physicians, particularly outside of gastroenterology, and many patients end up educating their own providers. Reaching out to someone you trusted for 25 years makes sense if you felt heard and supported. That said, celiac disease management often benefits from a team approach, including a knowledgeable primary care provider and, when needed, a gastroenterologist or dietitian familiar with gluten-related disorders. Advocating for yourself is not unreasonable—it’s part of managing a chronic condition. If your current provider relationship isn’t working, it’s appropriate to seek care where you feel respected and properly supported.
    • Scott Adams
      I understand why that feels concerning. Some Schär products use specially processed wheat starch that has had the gluten removed to meet strict gluten-free standards (under 20 ppm in the U.S. and EU), which is why they can legally and safely be labeled “gluten free” for people with celiac disease. However, wheat must still be listed in the ingredients and allergen statement because it is derived from wheat, even though the gluten protein has been removed. For individuals with a true wheat allergy, these products are not appropriate—but for those with celiac disease, properly tested gluten-free wheat starch is considered safe under current medical guidelines. That said, it’s completely reasonable to prefer products made without wheat starch if that gives you greater confidence, and clearer front-of-package communication could certainly help reduce confusion for shoppers.
    • elisejunker44
      I have enjoyed Schar's gluten free products for years. However, some items Do contain Wheat and are not clearly labeled on the front. Indeed the package states 'gluten free' on the front, and it is not until you read the ingredient label that one see's wheat as the first ingredient. Some celiacs may be willing to take a chance on this 'gluten free wheat', but not me. I strongly feel that the labeling for these wheat containing products should be clearly labeled on the front, with prehaps a different color and not using the 'no gluten symbol on the front. The products are not inexpensive, and also dangerous for my health!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.