Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Someone With Experience Explain...


mario

Recommended Posts

mario Explorer

I mean I'm all new at this been on the diet for one week now and, can feel the diference having the strenth to go back and, play my drums with my band, really feels great again..

But my question is after six months of healing will I be able to have a small cookie like everyone else will it re-damage the intestinal villi all over again or, will it be a slight damage like barely noticable...can I sometimes cheat like at parties like once a year or will i go back to step one like when i was diagnosed...Someone with experience only can answer me this one question.

Thanks.. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gf4life Enthusiast

Hi Mario,

Sorry to be the one to tell you this, but you just need to find (or make) your own cookies! No cheating, or you just cause damage all over again. I believe it is something like a gram(or maybe less) of gluten a day causes damage. Not to mention, that most people experience horrible pain and symptoms once being gluten-free for a while. Your body becomes ultra sensitive to the gluten, because it likes being gluten free. So when you want to cheat at parties, even once a year, you may very well suffer for it for weeks afterwards. Now you will have to be the judge of whether it is worth it or not, but most people will agree it is not worth it. You will start to find the gluten-free diet is not as hard after a while and being gluten-free will become second nature. But it is very normal to feel sorry for yourself every once in a while and grieve for your loss of freedom to eat whatever you feel like. Just don't let it keep you down. You will eventually be healthier than you probably ever remember feeling in your life, and for that you should be very happy! :D

Gluten intolerance and the gluten free diet can make us all feel a full range of emotions. These are just a few of them.

:mellow::huh::o:D:rolleyes:<_<:):angry::(:unsure::wacko::blink:

So just go easy on yourself and you will find it will not be so hard down the line.

God bless,

Mariann

mario Explorer

Thanks mariann..I'll take your advice, and, stick to the diet, as it is well worth it in the long run...I can always buy my gluten free cookies and, stuff my face once a week with a big coffee...hehhe

Thank you so much..

xox :blink:

flagbabyds Collaborator

Never evr cheat on the diet, it is definetly not worth it. Everytime you are eating gluten you are making your self more and more prone to stomach cancer, and you don't want that

remember stick to the diet it is worth it

mario Explorer

Thanks baby.. :blink:

JsBaby-G Newbie

Mario,

I know you have gotten the replies that I will give but believe I am overly qualified to give it. I ignored the diet for a year, thinking really how bad can the damage be. I wanted to eat pizza with my friends and have a normal birthday cake. I was getting myself in trouble. I ended up in the hospital with a total atrophy of my small intestine (it wasn't working at all) and was told that if I don't gluten free I run the risk of getting cancer and having irreversable damage elsewhere in my body!! Trust me it's not worth it!! I hope you heed this advice from someone whose been through it all!! :P

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,480
    • Most Online (within 30 mins)
      7,748

    Elpho
    Newest Member
    Elpho
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Michelin tire company, since 1900, has published a guide to restaurants that is very well respected: https://guide.michelin.com/us/en/restaurants For info: https://en.wikipedia.org/wiki/Michelin_Guide
    • trents
    • cristiana
      Hi Colin I share your frustration. My coeliac disease was diagnosed in 2013 and it took some years for my  TTG levels to settle to normal levels in  blood tests.  I had to make a few significant changes at home to make sure our house was as gluten free as possible (I share a house with gluten eaters) but time and time again I found I was glutened (or nearly glutened whilst eating out  - like regular bread being served with a gluten-free meal ).  Even eating in chains that Coeliac UK were recommending as safe for coeliacs.  So I gave up eating in restaurants for a while.  My blood tests normalised.  But here's the thing:  the lowest my TTG readings ever got to were 4.5 (10  and under being my local lab's normal levels) and now that I am eating out again more regularly, they've gone up to 10 again.  I am quite convinced this gluten is coming from exposure whilst eating out.  Small levels, that don't make me violently sick, but might give me a mild stomach upset.  My next coeliac blood review is in September and I mean to give up eating out a few months before to see if that helps my blood results get back on track. It seems to me that there are few restaurants which really 'get it' - and a lot of restaurants that don't 'get it' at all.  I've found one restaurant in Somerset and a hotel in East Sussex where they really know what they are doing.    The restaurant in Somerset hardly uses flour in any of their dishes; the hotel in East Sussex takes in trainees from the local college, so they are teaching best standards.   But it has taken a lot of searching and trial and effort on my part to find these two places.  There are certainly others in the UK, but it seems to me the only real way to find them is trial and error, or perhaps from the personal recommendation of other strict coeliacs (Incidentally, my coeliac hairdresser tells me that if a Michelin star restaurant has to have a separate food preparation so she has never been glutened in one - I can't say I've ever eaten in one!) For the rest, I think we just have to accept that gluten may be in the air in kitchens, if not on the surfaces, and there will always be some level of risk wherever one dines, unless the restaurant cooks exclusively gluten free dishes. Cristiana  
    • RMJ
      Hopefully @cristiana will see this question, as she also lives in the UK.
    • knitty kitty
      @Theresa2407, My Non-Alcoholic Fatty Liver Disease (NAFD), now called Metabolic Dysfunction-Associated Steatotic Liver Disease (MASLD), cleared up, resolved, after supplementing with Thiamine B1 and Riboflavin B2.  "Specifically, higher intakes of vitamin B1 and vitamin B2 were negatively associated with the risk of NAFLD. Consequently, providing adequate levels of Vitamin B1 and Vitamin B2 in the daily diets of postmenopausal women could potentially serve as a preventive measure against NAFLD." Association between dietary intakes of B vitamins and nonalcoholic fatty liver disease in postmenopausal women: a cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC10621796/ High-dose vitamin B1 therapy prevents the development of experimental fatty liver driven by overnutrition https://pmc.ncbi.nlm.nih.gov/articles/PMC7988776/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.