Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Someone With Experience Explain...


mario

Recommended Posts

mario Explorer

I mean I'm all new at this been on the diet for one week now and, can feel the diference having the strenth to go back and, play my drums with my band, really feels great again..

But my question is after six months of healing will I be able to have a small cookie like everyone else will it re-damage the intestinal villi all over again or, will it be a slight damage like barely noticable...can I sometimes cheat like at parties like once a year or will i go back to step one like when i was diagnosed...Someone with experience only can answer me this one question.

Thanks.. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gf4life Enthusiast

Hi Mario,

Sorry to be the one to tell you this, but you just need to find (or make) your own cookies! No cheating, or you just cause damage all over again. I believe it is something like a gram(or maybe less) of gluten a day causes damage. Not to mention, that most people experience horrible pain and symptoms once being gluten-free for a while. Your body becomes ultra sensitive to the gluten, because it likes being gluten free. So when you want to cheat at parties, even once a year, you may very well suffer for it for weeks afterwards. Now you will have to be the judge of whether it is worth it or not, but most people will agree it is not worth it. You will start to find the gluten-free diet is not as hard after a while and being gluten-free will become second nature. But it is very normal to feel sorry for yourself every once in a while and grieve for your loss of freedom to eat whatever you feel like. Just don't let it keep you down. You will eventually be healthier than you probably ever remember feeling in your life, and for that you should be very happy! :D

Gluten intolerance and the gluten free diet can make us all feel a full range of emotions. These are just a few of them.

:mellow::huh::o:D:rolleyes:<_<:):angry::(:unsure::wacko::blink:

So just go easy on yourself and you will find it will not be so hard down the line.

God bless,

Mariann

mario Explorer

Thanks mariann..I'll take your advice, and, stick to the diet, as it is well worth it in the long run...I can always buy my gluten free cookies and, stuff my face once a week with a big coffee...hehhe

Thank you so much..

xox :blink:

flagbabyds Collaborator

Never evr cheat on the diet, it is definetly not worth it. Everytime you are eating gluten you are making your self more and more prone to stomach cancer, and you don't want that

remember stick to the diet it is worth it

mario Explorer

Thanks baby.. :blink:

JsBaby-G Newbie

Mario,

I know you have gotten the replies that I will give but believe I am overly qualified to give it. I ignored the diet for a year, thinking really how bad can the damage be. I wanted to eat pizza with my friends and have a normal birthday cake. I was getting myself in trouble. I ended up in the hospital with a total atrophy of my small intestine (it wasn't working at all) and was told that if I don't gluten free I run the risk of getting cancer and having irreversable damage elsewhere in my body!! Trust me it's not worth it!! I hope you heed this advice from someone whose been through it all!! :P

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Kayla S's topic in Dermatitis Herpetiformis
      3

      Need advice for some relief!

    2. - trents replied to MoniqueCham's topic in Related Issues & Disorders
      1

      Celiac Disease, Lymphocytic colitis and Bowel rupture

    3. - Peggy M replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      30

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - MoniqueCham posted a topic in Related Issues & Disorders
      1

      Celiac Disease, Lymphocytic colitis and Bowel rupture

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,523
    • Most Online (within 30 mins)
      7,748

    CWiz76
    Newest Member
    CWiz76
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Ive been dealing with skin issues and been told it was staph because I was employed as a bus driver during that horrid time that im still actively healing from currently years later. Biopsies they don't want to say its inconclusive they say.Their creams don't work.I do notice Yarrow Pom from Doterra works but of course thats expensive.Prayers
    • trents
      Welcome to the celiac.com community @MoniqueCham! Celiac disease damages the villous lining of the small bowel but, as far as I know, doesn't affect the underlying smooth muscle tissue of the bowel.
    • Peggy M
      I am monitored for this value of Vit D.  I kept going down so the Vit D had to be increased.
    • MoniqueCham
      I was diagnosed with celiac disease 40 years ago and lymphocytic colitis 20 years ago along with refractory celiac disease affecting mid jejunum to mid ileum (diagnosed using a capsule endoscopy). My antibodies to tissue transglutaminase were normal on a strict gluten free diet. Both the lymphocytic colitis and the refractory celiac disease responded well to entocort. I have a number of autoimmune conditions including systemic granuloma annulaire (a skin condition) which was treated with methotrexate. I was on a low dose of methotrexate (15 mg once a week with folic acid every day when not taking methotrexate). In 5 months my sigmoid colon ruptured. Pathology reports show that I had significant necrosis of my sigmoid bowel due to no known cause and a large hole in the bowel. My surgeons felt that the methotrexate may have caused the damage and rupture to my bowel (1 in a million chance). My question is has anyone experienced similar issues with methotrexate given that the integrity of our intestines may be compromised in celiac disease?
    • Jmartes71
      Hello, I'm I crazy, nieve, or atomistic? I reached out to my former pcp of 25 years on the medical app today.Reading on the National Library of Medicine 75.6  physicians don't know celiac disease.To be fair he is primary and with the lack of knowledge, I did reach out because he was my Dr for 25 years.I do prefer his app than the one I currently have that was ignite of the disability celiac circus name chaser thanks to the one that  I currently have Since May 31, 2025 to present.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.