20 replies to this topic

[SadiesMomma]

I am a Female (21 years old)

I am mainly “Caucasian” but I have English (England), Indian (India), American Indian (Cherokee & Black Foot), French, and a little of this and that.

I first realized my problems at about the age of 15 or so with a lactose (dairy) intolerance… I went to a doctor and they diagnosed me with IBS without doing any testing. I didn’t get really sick though till my pregnancy with my daughter in the Spring of 2001 and it progressively got worse after delivering her.

I was semi-diagnosed by a dietitian by my symptoms. My doctor did a series of blood tests but they came back negative because I had already been put on a Gluten-Free diet ordered by my dietitian. They are in the process of doing some more testing although they are not sure if they will be conclusive since I am on a gluten-free diet.

Before: 108lbs.
1 year post “Diagnosis”: 118lbs.

Dietitian (recommended) diagnosis but doctors believe I have Celiac.
2002

They did a blood test… there is a series of three but they only did one. I am not sure as to which one it was. It came back inconclusive. They are in the process of scheduling me for an upper GI, as well as an endoscopy.

I am not sure but I do find myself reacting to these.

Cervical Dysphasia, Eczema, Obsessive Compulsive Disorder, Depression

I went about 8 years from the time I started feeling these pains before I went to a dietitian who recommended this diagnosis.

These problems run on my mothers side of my family. She doesn’t talk about it much but my brother tells me what he knows.
Grandmother: Don’t know the medical name. She can’t digest well at all. She is in a nursing home because she cant care for herself anymore because of what is wrong with her. Symptoms of Celiac Disease.
Brother: Stomach cancer, shows very little signs of celiac disease except constipation and bloody stools, and stomach pain.
Mother: Stomach cancer, plus symptoms of Celiac Disease.
Cousins: most have celiac disease symptoms

[LisaP]

I hope you are still collecting data....

1. Female.
2. English, German, and Irish.
3. I was 35 when symptoms got bad and 35 when diagnosed....but it took about 6
months b/c both the doc and I did not take it very seriously. I thought I was
just getting older and needed more fiber....wrong!
4. 5'4" before and have not been measured again. I was 117 for years and did
not gain; no matter how much I ate. I got down to 106 right as I went gluten-free.
5. Doctor, 2004
6. Upper GI, Endoscopy, IGA blood test, as well as a small bowel surgical biopsy
since part of small bowel was inflammed and thick. This was done to rule out
any other ailments. Good news was that only celiac disease was found.
7. Once gluten-free, I can tolerate anything....before, I had trouble with caffeine, dairy,
spicy, and acidic foods. The way I see it, going gluten-free opened up more foods to
me than it took away.
8. Clostrodium Difficle (yucky!)
9. I did not really think I was sick...nothing really hurt. Just diarhra and swollen
ankles, and a grumbling gut late in the day and night. But, I had typical signs
after the birth of my first child in 1997. Everything cleared up during my 2nd
pregnancy, and then the mild symptoms returned until August of 2003...when
things seemed to intensify.
10.Only relative with an gluten issues is an aunt on my mother's side. She is
gluten intolerant. My maturnal grandmother had a list of ailments and as I
research celiac disease, I think that may have been one of the big issues that was never
diagnosed.

Hope this helped. Come back and tell us your findings and if you make an "A".

[cmp0402]

1. Female
2. Caucasian/Northern European
3. 40 diagnosed at age 41
4. Pre dx: 5'81/2' 146lbs post Dx: 5'81/2' 143 lbs.
5. Doctor diagnosed 1993
6. Upper and Lower GI series - normal
Large and small intestine biopsies
7. No
8. No
9. It was about 15 months. When I first became ill the symptoms subsided after two months, and I regained the weight I had lost. The second episode began about 10 months later. My daughter's pediatrician recognized the symptom pattern. I had previously been dx as having irritable bowel while in graduate school, but the symptoms came and went on a very intermittent basis.
10. Just recently my 17 year old son was diagnosed as a celiac. No other family member, that we know of, has the disease.

[Lorrie]

I sure hope you get a great grade and it makes people more aware of thisdisease.

1.female
2. white, irish, scandinavian, scotish
3. I struggled with being a sickly child. Always very skinny and anemic. But it really came to rear it's ugly head when I had my second child. at age 25. Not diagnosed until I hit 48.
4. 5'8" 125 dropping down to 5'7" and 105 lbs.
5. Dr. diagnosed but not until I really investigated why I was always anemic and then developed osteoporosis too.
6. endoscopy biopsy and blood work.
7. just gluten, thank you Lord...
8.osteoporoses, joint pain, occasional acne break outs.
9. over 25 years
10. Mom has colitis and IBS is now 89 and might have Celiac but not up to the test. Dad died of complications with hernia but always had stomach trouble and I think might of had the Celiac. Sister has all symptoms but dosen't want to know. She has osteoporosis and my nephew is also Downs.

[nickra]

1. female
2. white - english
3. have been ill since age 13 on and off
4. have only just been diagnosed - so nothing to compare
5. doctor-diagnosed 2004
6. have had positive blood test and am waiting for biopsy
7. still eating gluten until biopsy test comes through
8. have previously been diagnosed with IBS - but could have been celiac disease in disguise!
9. 2-3 years
10. as far as i am aware none of my family have celiac disease (although this may change as i am newly diagnosed and my family dont know about the condition.)

all the best with your studies
Nickra

[jen-schall]

I'm guessing, since it's May, it's too late to take the survey (hey, I'm new-ish here!) but I'd be super-interested in seeing your results!
thanks!