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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity

Kid W/ Other Gi Problems + Celiac

1 post in this topic

I just discovered this forum, and am really glad I did. I have 7 yr old triplets, and two of them have celiac (one confirmed, one strongly suspected). My son with the confirmed celiac also has short bowel syndrome, he had 70% of his small intestines, his ileocecal valve and part of his colon removed. The celiac diagnosis is relatively new (@9 months ago). His chronic abdominal pain and nausea are better, but not gone by any means. He has a lot of scar tissue in his abdomen because of so many surgeries. He had his gal bladder removed because of a huge stone in his common bile duct and a really bad case of pancreatitis when he was 4 yrs old.

He had an atypical effect from the celiac-he was chronically constipated. The motility of the gut is what is affected by celiac, as I understand it. It is much less common to be constipated and it is very unusual for a kid with short gut to be constipated.

The nutrition challenges are really big with short gut kids, and the added stress of a celiac diet also has been really challenging for me. All three of my kids had a totally milk protein free diet for 4 yrs. That was challenging, but they didn't know any better :D . Now my boys have tasted all kinds of gluten containing foods and are having a hard time giving them up.

Does anyone have a child w/ additional nutrition challenges, besides celiac ?


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