Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Clueless...
0

6 posts in this topic

Well first off, Hi to everyone on the forum, I am new here. I am posting here mainly out of pure hope that I might be able to gain some knowledge. My girlfriend of 4 years and I are planning on moving in together in my house. She was found to have this disease about 16 months ago. Along with her trying to be gluten-free she also has severe problems with sugar and corn products. So lets just say it makes it interesting when we try and go out to eat and or cook something at home. I have become pretty good at reading ingredient labels and scouring the internet for Girlfriend friendly recipes that I can cook for her.

I must say she does post on this forum (Hi Honey!), and that the last 8-12 months she has buckled down and stuck to these new restrictions and is doing great. I try my best to support her in every way I can but I guess its just hard for me to grasp this disease, mainly because I am only allergic to penicillin and have never had any serious health issues like this.

We have agreed that it would be in our best interests to have a gluten-free house. So given the fact that we are going to move into a house together and going to try and have kids. Is there anything you people might think I can do to make it easier on her to continue the progress she is making?

0

Share this post


Link to post
Share on other sites


Ads by Google:

That is very supportive of you. The best thing to do is keep the house gluten free to ensure she will not get sick. Are you going to follow the diet as well? If not you should mouthwash or something after eating so when you kiss her you do not contaminate her. The best thing you can do is continue to be supportive and encourage her with the progress she is making and help when you can. Coming here you can learn so much info of good gluten free products if you wanted to cook for her and other things...if you have any questions just ask.

0

Share this post


Link to post
Share on other sites

Yea, I also plan to follow the diet with her. It will make it allot easier if I follow along rather than bring in gluten-free products into the home and possibly contaminate her. I am thinking that especially if we have kids and they to need to be gluten-free. I have made stuffing for her at thanksgiving out of millet bread, so its possible will just take a little bit more effort on my part to help her out.

0

Share this post


Link to post
Share on other sites

A supportive spouse makes such a huge difference!! :rolleyes: Pat yourself on the back for your efforts so far, and definitely keep checking this site for support and info!

My hubby has been wonderfully supportive through my diagnosis, the grieving, and the change of lifestyle! He even makes sure the wine rack is always topped up (and he makes the wine too!), since I can't share a cold beer with him anymore! :angry::lol:

However, he does not live gluten-free, and that's completely fine too! We have our kitchen cupboards organized (and CLEARLY marked!) as Safe, gluten-free Products ONLY (mainly for inventory purposes, I don't have to hunt for my specialized items), and NOT Safe. There is only one little NOT Safe cupboard, and it's buffered by canned goods so there isn't any cross contamination from his Not Safe cupboard. We also have the Gluten Zone where he has his bread and toaster. I take responsibility to ensure that IF I am in his zone, I am extra careful, although he does clean up after himself quite well! :D The rest of the kitchen is mine to assume gluten-free... however I do keep a vigilant eye on things, especially the shared microwave.

I can honestly say that in 16 months of gluten-free living, I can not blame any gluten incidents on carelessness. :)

Being supportive and understanding when the celiac disease patient DOES get "glutenated" is also very important. He/She may feel like crap (no pun!) for days, or may just be mildly irritable and not even associate it with gluten.

It's a tough job being the SO of the celiac disease patient, sometimes it can be very frustrating, the extra time everything takes, dealing with the ignorance of others, and the occasional pity parties we are prone to... :(

Your "honey" can count herself among the lucky, and should give you a great big HUG! :lol:

Good luck!

0

Share this post


Link to post
Share on other sites

I am the only one in our house of 5 and while we have a "mostly" gluten-free house, we keep stuff like regular mac & cheese and frozen pizzas for the kids and hubby. All condiments are off limits to me so those are no problem with cross contamination. We also keep "normal" bread on hand (for the cost issue) which you have to watch. Anyway, I can go for weeks without a problem then all of a sudden, something that should be safe, makes me sick. Maybe the kids used one of the wooden utensils for the butter (soy and corn), maybe, the skillet didn't get clean enough, etc.

Clean out all cabinets as you move - throw away everything with corn and gluten. Keep a separate cabinet for your foods that may make her sick (my cabinet arrangement is the opposite since I am definitly the minority!!!) like cereal.

My husband cooks as much or more than I do and we don't make anything for the family that I cannot eat - if we do, like pizza night, mine goes first so the fumes from the yeast and cheese won't contaminate my pizza. All meals are gluten-free except for the rare sides or bisquits and gravy for one of the kids because, you just can't substitute some things!

Good luck and glad you guys seem to be on the right track...

0

Share this post


Link to post
Share on other sites




Keep going as you're doing! You sound like you're very supportive and understanding of the challenges she's facing. The more you cook at home, the more you'll get a good grasp on easy, tasty, fun things to cook at home that are safe. Particularly with corn issues, you may need to do a lot of cooking from scratch, but with practice, it'll be easy to cook from scratch at home without taking hours.

You may want to replace some of the items in your kitchen so she doesn't get any contamination. Definitely replace the toaster and collander, but also look into replacing pots that may be difficult to clean (like cast iron) and wooden spoons.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,337
    • Total Posts
      920,456
  • Topics

  • Posts

    • I had quite a few of the medical problems that you have before I figured out that gluten was the problem. I can’t do basic math or writing when I eat gluten also I get depressed, irritable, low energy, etc. The best route to go is to do an elimination diet and monitor how certain foods affect you. I eliminated MSG (Monosodium Glutamate), Nitrite, and oat based on the reactions that I get once I consume them. You must be disciplined on a gluten free diet, there is not such a thing as –It is just one cookie! If you can manage to go 100% gluten-free for three weeks and you see those problems going away, you will have a good idea if that is the cause of your problems. The blood test I did after being gluten-free for two years came back negative so the doctor just make me feel that I was crazy and making things up. I have a stool test done which came back with elevated igA also a gene test indicating I have two genes that code for gluten sensitivity. My lactose intolerance went away too, eating a lot of cheese now. Rash in arms? gone, Brown spots in teeth? Gone, Intestinal noises? Gone, Lack of bladder control? Gone, Constipation? Gone, and a lot others.   
    • Oh you're most welcome!  Another thing --- no steroids, oral or injected for 2 months prior to a dh biopsy. Lay off any topical steroid creams for 2 weeks prior. Really, stand your ground with them. It would also be great if you can get a friend or family member to go with you in case they take the biopsy from somewhere that you can't see such as the back of your neck. Your friend/family member can watch to make sure they don't take it directly ON a lesion. Do you have a primary care doc? You can also go to that doc & ask for a full celiac panel PLUS an eTG or TG3. 60% of people with dh test negative on the celiac blood panel but maybe you're one of the 40% who will test positive. It's worth a shot.
    • Thank you so much for responding, it's so hard to go on this journey of questions and Drs. I really appreciate the time you took to respond. God bless you 💖
    • Do you have copies of your blood test results? Can you post them? Don't forget to list the reference ranges. Is the TTG the only celiac test they did?  Do you have a copy of your pathology report? Get it if you don't. How many biopsies did they take & from what areas? Were you eating gluten right up until the biopsy?
    • I got them on the back side of my knees too. All the literature points out knees & elbows but doesn't mention the "behind the knee" portion of your leg. I eventually got them ON the knees itself but that was one of the last places to present. I also got them on the inside bend of my arm instead of the elbow and just like the knees, it eventually presented on my elbows. Not to be forgotten; the literature also states it can present anywhere on the body. If you found those links I've posted about how a dh biopsy is done correctly then print them out & take them with you to SHOW them. Any derm should be able to follow the directions or they should turn in their license.  As to them saying herpes, well duhhhhhhhhhhhhhhhhhhhh, dh does have a herpes like presentation. That's why they call it dermatitis herpetiformis! Remember, they work for YOU, not the other way around. Insist. Make sure you're still eating gluten. Let us know how it goes. The best of luck to you!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,398
    • Most Online
      1,763

    Newest Member
    Erinmace
    Joined