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Glutened!


gfmolly

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gfmolly Contributor

I am 1 year into this and have been doing remarkably well. I think I've gotten too brave, because yesterday at Germanfest I asked about the brats (they were Usingers) and whether or not they had been boiled in beer. They were, but the manager offered to cook me one that wasn't in the beer. He came back, put it in a bun and handed it to me. Then I told him I couldn't have it and why, and he cooked me another one. Sure enough, in the middle fo the night last night I thought I was going to die!!! Major cramps and then D and sweats. I woke up this morning with a huge headache, but mostly better. I just want to be somewhat normal and eat fun food sometimes that is safe!!

Any thoughts??


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ang1e0251 Contributor

Sorry you're feeling bad. That is no fun. You probably had CC from the grill and the utensils. The utensils touch the buns then your brat and whammie! If the grill wasn't washed clean of the beer brats, whammie! Sorry, I went to a family reunion yesterday where there was very little I could eat. But I ate what I could and had a Lara bar with me and had a good time. It wasn't just about the food.

no-more-muffins Apprentice

Believe me, I feel your pain. I was just thinking of coming here and starting a similar thread. I was on a cruise all week last week and did great. I am only a month into the gluten-free diet and I had finally started feeling better. On the way home from the cruise I ate at taco bell. I made 2 great mistakes:

1. Eating at taco bell in the first place. I thought they'd have more safe stuff. I am going to be giving them a call today.

2. Eating 1 bite of 1 corn chip which I spat out when I realized I had forgotten to ask if it was cooked in common oil. It was. I ate pintos and cheese though. It is hard to believe that 1 bite of 1 corn chip could make me sick for 3 days (so far). The pintos and cheese could have been CC'ed too.

I had been feeling so good finally and I am so discouraged to be sick again. It makes me wonder if it was really the taco bell. I am still waiting on some results from enterolab and it is hard to know for sure if it was gluten or what.

I feel your pain. I really do.

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    • Scott Adams
      If your tTg-IgA was 28 and positive is at 3, you are nearly 10x over the positive marker, so the most likely explanation by far would be celiac disease. I also do not understand why your doctor would not want to run the blood test, which is the normal first step in the diagnosis process.
    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
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