Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Neurological Symptoms


sugarsue

Recommended Posts

sugarsue Enthusiast

For those with neurological symptoms from gluten, how long does it take for them to subside after being glutened? How long did it take to feel better after going gluten free?

My 8 yr old daughter is suffering (and in turn me too). I don't know for sure it's the gluten since she has another medical condition too. But I am desperate for information to try to help her. She's been gluten free for 1 1/2 years but I could be better regarding the cross contamination or hidden gluten. I know she's been glutened recently several times from my stupidity.

Susan


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kay DH Apprentice

I've been gluten-intolerant since getting the flu last September. CC results in my GI tract purging and minor lethargy, but being slapped upside the GI tract by a bit gluten hit results in a stronger reaction. I suspect everyone has different reactions, rate of reactions, and recovery times. For me, a heavy gluten hit results in depression, mood swings, and lethargy that take about 5 days to go away. GI symptoms take about 3 days. My emotions aren't severe, especially because they are due to gluten, rather than being tied to life experiences. I can ignore most of it, but that is an advantage of age, too. If I was young I think the mood swings would hit me harder, especially with the feelings of isolation that come with "not fitting in" and not being able to eat some of what most people do. There are so many unknowns and what-if's with gluten intolerance, that it takes an emotional toll even without the gluten-induced mood swings. Best wishes on your research. It takes a lot of strength to question and look for answers.

  • 2 months later...
Lindzwithaph Newbie

I personally have really strong Neurological side effects from gluten, including: feeling irritable, depressed, "out of it" tunnel vision, inability to focus and pay attention, quick tempered, etc. For me, it partially depends on how much gluten I have ingested. For instance, if it were cross contamination, I would experience symptoms within an hour or so and may feel the Neurological symtpoms for a couple hours. If it was something more substantial (such as a cro

SGWhiskers Collaborator

It took 6 months before the neuro symptoms were noticably improved. I still have significant problems though 2 years later. Every time I get cross contamination, I get 5-7 days of terrible neuro symptoms and then 2-4 weeks of diminishing neurosymptoms. Unfortunatly, I'm hypersensitive and manage to CC myself every 6 weeks or so.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Ginger38's topic in Related Issues & Disorders
      13

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - knitty kitty replied to Ginger38's topic in Related Issues & Disorders
      13

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      13

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - chrisinpa commented on Scott Adams's article in Additional Concerns
      5

      Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)

    5. - trents commented on Scott Adams's article in Winter 2026 Issue
      2

      Why Celiac Diagnosis Still Takes Years—and How to Change That


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,568
    • Most Online (within 30 mins)
      7,748

    Silko
    Newest Member
    Silko
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.