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I'm Miserable. :-(

nikelodeon79

By nikelodeon79
in Related Issues & Disorders

Recommended Posts

jerseyangel Proficient
jerseyangel
Posted

Thanks for checking in! I was induced on 11-26. Sarah Grace is healthy, and I'm MUCH better!

Such great news!!! Congratulations and welcome, Sarah Grace :D

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sweetpea Rookie
sweetpea
Posted

I got my Zofran directly from Glaxo-smith Kline, and it wasn't gluten free - at least not when I got it in late 2008 and early 2009. I've heard that it depends on where it was manufactured. Too risky for me b/c I was reacting to it.

This time I took the liquid orally, or I took it through my PICC line.

Laennie Rookie
Laennie
Posted

Yay! Congrats Sweetpea!

GFinDC Veteran
GFinDC
Posted

Congrats indeed! A happy Thanksgiving baby for 2010 is born. :)

  • 2 weeks later...
gflooser Contributor
gflooser
Posted

congrasts on a healthy baby AND feeling better!!!!!!!!!!!

sweetpea Rookie
sweetpea
Posted

Thank you!

  • 10 months later...
SniggitSnob Newbie
SniggitSnob
Posted

I know how you felt with the loyalty thing with work. I am stressed about the same thing, but SOOOO sick all day every day. Today i finally called out...and the guilt is eating me up on top of throwing up everything i've tried to put down today. Stupid ethical conscience.

While perusing the site, I saw the "I'm Miserable" post under pregnancy and I had a feeling it was regarding morning sickness. I have one child, and she's 7, but I still remember the awful pregnancy I had. I now realize that it's very common for undiagnosed celiac's to be very ill throughout the pregnancy. I was hoping for the other women on this board that following a gluten free diet would ease up the symptoms. I pray that you are like most women and in a couple of weeks the symptoms will go away.

The hardest thing for me about my pregnancy is that I was hanging on the promise of feeling better by the second trimester. Truth is I was nauseated the entire time. It took me awhile but I learned to manage it. I ate CONSTANTLY. I started out underweight so the doctor wasn't concerned with my weight gain, until the end. I think I was still underweight at 20 weeks, and then I went on to gain 40 pounds in the last 20 weeks. But eating eased my symptoms. There was a Thai restaurant by my work that made a great ginger soup. I went there every day for lunch. Finally when my belly started popping out that realized why I was eating the soup every day. They didn't even take my order...just brought me my soup.

I don't know if this is still recommended but I took Unisom and B6 in combination and it really helped with the nausea and helped me sleep. (This was okayed by my gyno). Also for the very worst months when I couldn't keep anything down I took Zofran.

Toward the end of the pregnancy I let myself drink a tea every day (with caffeine) For some reason that always settled my symptoms.

I don't know if you're working or if you have other kids, but my plan was to stay home after we had a baby. I don't know why I continued to work so hard fighting the nausea every day, when I wasn't even going back. I just felt too loyal I guess. Anyhow, finally about 2 months before my daughter was born I quit working and I just felt so much better. I think the stress was really adding to the nausea. If you can at all set up a world where all you have to do is grow that little baby, which is a HUGE job, then do it. Don't feel guilty.

If you need to send my a private message you are welcome. I will try and encourage you in any way I can. My best friend had a baby 9 months before I got pregnant and she was sick the whole time too. I called her every day (didn't even think that she must be exhausted with a new baby) but she talked me through so much. Sometimes just having someone say, "I understand...you can do this" makes a huge difference.

Hang in there. IF you already have kids you know it's so worth it. YOU CAN DO IT! Rest, eat, ask for help, give yourself a break!

Good luck!!!

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    • Jmartes71
      Second chance

      By Jmartes71 · Posted

      Thats the thing, diagnosed in 1994 before foods eliminated celiac by biopsy colonoscopy at Kaiser in Santa Clara  now condo's but it has to be somewhere in medical land.1999 got married, moved, changed doctor's was with former for 25 years told him I waz celiac and that.Fast forward to last year.i googled celiac specialist and what popped up was a former well known heard of hospital. I thought I would get answers to be put through unnecessary colonoscopy KNOWING im glutenfree and she wasn't listening to me for help rather than screening me for celiac! Im already diagnosed seeking medical help.I did all the appointments ask from her and when I wanted my records se t to my pcp, thats when the with holding my records when I repeatedly messaged, it was down played the seriousness and I was labeled unruly when I asked why am I going through all this when its the celiac name that IS what my issue and All my ailments surrounding it related. I am dea6eoth the autoimmune part though my blood work is supposedly fabulous. Im sibo positive,HLA-DQ2 positive, dealing with skin, eye and now ms.I was employed as a bus driver making good money, I loved it for the few years my body let me do until I was yet again fired.i went to seek medical help because my body isn't well just to be made a disability chaser. Im exhausted,glutenfree, no lawyer will help and disability is in limbo thanks to the lax on my health from the fabulous none celiac Google bay area dr snd team. Its not right.
    • trents
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      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
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    • cristiana
      Concerning GP advice

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      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
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