Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


Photo
- - - - -

I'm New


  • Please log in to reply

4 replies to this topic

#1 Tigger

 
Tigger

    New Community Member

  • Members
  • Pip
  • 1 posts
 

Posted 25 June 2005 - 06:03 PM

Hi everyone, I'm very new here and if someone can help me through the ropes I'd appreciate it.

I've had chronic diarrhea for over a year and do NOT know what to do at this point. I've been tested for all the usual suspects. I've had the blood test for celiac and it came back fine.

Can someone bet gluten sensitive and still have a "normal" celiac test.

Help.
Tigger
  • 0

Celiac.com Sponsor:

#2 tarnalberry

 
tarnalberry

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,542 posts
 

Posted 25 June 2005 - 06:35 PM

Yep, you absolutely can have a problem with gluten and still have normal blood tests. Of course, the first question that comes to mind is: what blood tests did you have? (A lot of docs don't run the full panel, or require more positives than others might require for a diagnosis.)

The other thing to consider, besides the interpretation of the tests is whether or not your intestines had enough damage for the antibodies the blood tests look for to escape the intestinal tract. They may not have had that much damage - yet.

If you still want to investigate gluten intolerance AND your doc already ran the correct tests with truely negative results (not just inconclusive), then I would encourage you to try the gluten-free diet (strictly) for two months to see how you feel. Do not, however, try the diet until you are done with all diagnostic testing.
  • 0
Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA

#3 Carriefaith

 
Carriefaith

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,861 posts
 

Posted 25 June 2005 - 07:15 PM

I've had chronic diarrhea for over a year and do NOT know what to do at this point. I've been tested for all the usual suspects. I've had the blood test for celiac and it came back fine.

I would guess that you may have a food allergy or intolerance. If I were you I would ask for the full celiac panel, a wheat allergy test, casein and lactose intolerance test, and maybe allergy testing (like skin prick tests) to see if you are allergic to other foods like, soy, eggs, and nuts.
  • 0
Carrie Faith

Diagnosed with Celiac Disease in March 2004
Postitive tTg Blood Test, December 2003
Positive Biopsy, March 3, 2004

#4 pixiegirl

 
pixiegirl

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 756 posts
 

Posted 26 June 2005 - 01:59 AM

I had the runs for 11 years so I've got you beat! :rolleyes: My Celiac blood work came back negative too. However I went on a gluten-free diet and my runs stopped in a very short time.

Since then I've had a DNA test and I do carry the main genes for Celiac and every time I'm accidently glutened I get the runs for weeks again. Some people "need" to have their doctor tell them a test was positive, I don't need that, the proof I get with my reactions to gluten is enough for me.

You might want to try a very simple diet for a few weeks, thats how I did it. I ate chicken, rice and some veggies for a week or so and bingo the runs stopped.

Susan
  • 0

#5 Canadian Karen

 
Canadian Karen

    That Crazy Canuck!

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,554 posts
 

Posted 26 June 2005 - 07:43 PM

Maybe you should ask your doctor about the possibility of collagenous colitis..... After a decade of permanent diarrhea, they finally found out that's what it was....

Good luck!
Karen
  • 0
Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: