Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seriously?


MindytheOrganist

Recommended Posts

MindytheOrganist Enthusiast

A while back, our local newspaper featured an article about the small restaurants in our area, and how they "struggle" to keep patrons. Owners implied that they could not understand why people say they like the smaller, local restaurants, but then go and wait an hour for a table at a "chain" restaurant.

So, I fired off a letter to the editor explaining that there is probably about 2,000 people in the area that cannot patronize these small restaurants because of the high probability of gluten being in everything they serve. My last sentence had the words "Gluten-Nightmares." It got printed, and as far as I know, no one fired back at me.

I did note that smaller, local places probably could not afford to do what is necessary to offer gluten-free menu items like the larger chains.

I don't know if it helped, but it sure made me feel better.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

I don't understand the herd dining instinct, either.

If we find some place that can do gluten free or even has it on the menu option, we are pretty loyal customers. And I'm not talking anything exotic. I'm talking can you make a simple egg meal for breakfast with a fruit side, NO toast, no batter sneaking into the scrambled eggs, and maybe a plain serving of meat or fish, and salad and maybe a baked potato for the other options. You'd be surprised who can and can't handle this.

Or even a side dish. There is a small local taco chain where the refried beans are safe and very yummy and they come in a big cup as a side dish. That, and a drink is nice esp. if you just happen to have a tortilla in your purse you got out of your travel bag.

Jestgar Rising Star

I like the places where you ask who's cooking tonight and the answer is "Mom".

Rissmeek Newbie

The smaller restaurants should have an easier time of doing gluten-free in my opinion. The amount of people to train would be less, the amount of suppliers would be less, etc. I think the problem is there are too few people who get the gluten free thing. They think it's some fad diet like South Beach or Atkins.

We are very lucky to have two wonderful locally owned restaurants that make sure my husband's meals are safe to eat. They asked questions about why he ordered his meals the way he did and after that they have gone above and beyond to ensure that things are safe for him to eat. One of them we had at breakfast not to long ago. The toast always comes on a separate plate always has always will, because she loads the plate with that much food. I order pancakes (which are cooked on their own griddle so they don't get into the eggs and meat.) with a side of sausage and told the hubs I wanted his toast. He ordered sausage, eggs, and fried potatoes with toast. The waitress barely got the order to the cook until here she comes to remind him he can't have the toast because she doesn't have any that he can eat. There are others who aren't that good though.

On the bright side though a bakery is going gluten free on Fridays!!

Juliebove Rising Star

I actually prefer the smaller places and I find I am more likely to get a safe meal there. Yes some of the chains do a gluten-free menu. I mostly do not eat there because while that food might be gluten-free, it is not necessarily safe for me given my other food alleriges. And in general I do not like the food from chain places. It seems to come frozen and premade. Yes, I eat the gluten-free pasta at Olive Garden. I know it is safe. Do I like it? Not really.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    4. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    5. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,192
    • Most Online (within 30 mins)
      7,748

    DenisC
    Newest Member
    DenisC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.