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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Feeling As Though I'm Glutened When I Exercise
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Hi all! So I finally got the courage up to exercise again after a long time of not because of pain. I haven't exercised like I should in a long time because it took me five years to be diagnosed and I'm now a year and two months into recovery. However, I tried to start exercising again a few weeks ago and my first week I did 4 times of fast, but not power walking for 20 minutes. The second week I went up to power walking, but had to stop after three times (I did every other day) because of the terrible pain I was in. Now I played basketball in school so I'm familiar with all the stretching and normal "over doing it" pain. I did stretch, I drank extra water, all of that, but I had terrible pain that felt like I was being glutened. All my symptoms I have when I am glutened came back...terrible intestinal pain, fatigue, join pain, brain fog--however I did not change introduce any other new foods so I know I'm not glutened. The worst part is The pain is still lingering now two weeks later just as strong as it was right after I exercised.

Anyone have any ideas or solutions to help my pain? I'd really like to get back to exercising because six years and counting is too long not to exercise!

Thanks!!

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My kids and I have noticed the same thing. I don't know if it is because exercise makes symptoms more obvious, or if it is that exercising makes the symptoms worse. The cure for us was to be more diligent about cc.

I managed to do a mini triathlon after not even being able to run around the block. My son did a 5 K after not being able to run a mile without throwing up. My daughter is the third faster runner on her cross country team. Before cleaning her diet up she was at the end of the pack.

Good luck. It is so nice to be able to exercise again.

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This may be a silly thing to ask, but are you working at home or at a gym? I only ask because I joined a gym for the first time in November. The first day there I got thirsty and took a drink out of the water fountain. And got glutened! I realized later that the fountain was across from a granola bar vending machine, so people were probably getting a little snack and a drink... oops, gluten! :lol: Ever since that I remember to bring my own water bottle, and haven't had any problems at all. And now I know to avoid public water fountains in general, which remarkably I'd never thought of before.

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dilettantesteph--I was previously thinking I may be super sensitive. Maybe this is the tip that's showing me. Thanks for assuring me I'm not alone though...sometimes I feel my adventures are odd in this gluten free venture!

deinanthe--interesting, I've never thought of that, however I'm working out at home. *sign* another thing to worry about in public! I have little motivation to work out let alone leave the house to do so! I record stuff on the dvr and save my favorite shows for the treadmill.

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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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