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Terrible Sleep!


Jetamio

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Jetamio Apprentice

Hi everyone. I have been gluten free for 2 1/2 weeks now; casein free for much longer. I had a positive blood test but have not had a biopsy yet. I'm meeting with an allergist to do some more blood work and I have an appointment with a GI but I don't know if I will gluten up for the biopsy or not yet. Anyway...

Since going gluten free, I feel better in so many ways. But my sleep has been terrible the last couple of weeks. I wake up constantly, can't get comfortable, too warm, then too cold. Last night I had these cold sweats - not physically sweating, just feeling like waves of cold chill/sweats were washing over me. Being chilled but sort of too warm head to foot. Hard to explain. Today I feel terrible! I feel like I'm walking in quicksand and I just want to sleep. My stomach is upset too. I just turned 36 and not perimenopause yet though I've had night sweats occasionally since I was 16 during my monthly from time to time. My doctor said some women do around that time of the month but all my levels are fine.

I am taking a good vitamin and iron (anemia) and just prior to going gluten free I was on 3000 mg of antibiotics a day for a really bad infection so I am on probiotics now. I've been on them for about a week. I feel like my sleep is even worse since starting the probiotics.

I went over everything I ate yesterday and no hidden gluten or casein. Could this be part of my body healing? Or something to do with the good bacteria rebalancing things? I guess it could be another food allergy as well. I suspect I may be sensitive to soy. Any feedback is greatly appreciated!


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BabsV Enthusiast

Maybe gluten withdrawal? I know I felt much worse those first few weeks when I went off gluten...for me it cleared up a couple of weeks after it started. You could try melatonin (it helped me for a while but now doesn't really do anything for me!) Just make sure it is gluten-free!

Jetamio Apprentice

You could be very right about the withdrawal. I'm beginning to suspect cold "sweats" from earlier are related to a virus. I'm feeling worse and worse as the day goes on - I may have picked up the stomach virus that is in our office. I would love to some good sleep though!

  • 1 month later...
Mnicole1981 Enthusiast

This is part of my symptoms. I have chills when I fall asleep, then I wake up drenched in sweat.

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      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
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    • trents
      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
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