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Feel Weird- 3Rd Week Of gluten-free Diet


xxikayixx

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xxikayixx Newbie

I have felt horrible my entire life, and have had hundreds of tests done to figure out why my intestinal tract reacts the way it does. I stopped having tests done about 8 years ago because I couldn't afford it anymore, and was told I had IBS. I recently have been doing some more research and found out I was 0- blood type, and that I should try a Gluten Free diet. I've been gluten-free for about 3 weeks now, and as of this past week I feel as if I'm lacking something. I can't pin point exactly what I'm feeling but I feel a little nauseous, dizzy, and get sweats. Has anyone else felt this? The past 2 days I've started taking a multivitamin and some fish oil. I'm not sure if it's helping or making my symptoms worse. I have yet to see a doctor because I just got insurance, and have not seen a nutritionist. I've been getting most of my information from forums. Thanks for listening.


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tom Contributor

What kinds of foods are you eating?

Oftentimes, whole unprocessed foods make a huge difference compared to a diet w/ a lot of processed foods, made from a long list of ingreds.

It also makes it far easier to find which foods might be problematic.

Lactose, casein (milk sugar & a milk protein) & soy issues are pretty common around here.

Something you've been fine eating before might not agree w/ you while healing.

It could be as simple as, say the one 'replacement product' (gluten-free reformulations of cookies, crackers, bread etc) that uses some tapioca flour, or mung bean or fava bean flour or some other ingred that you just weren't exposed to much before might have always been disagreeable but never came up.

It's a lot simpler to find out when eating a simple diet.

Or maybe the current issue 3 wks in is from something else - ppl w/ pets might try a different pet food that's on sale & find out later it's got gluten & has been affecting them.

All sorts of unlikely things might be involved & ppl here will help you find them, so don't be daunted by the scope (easier said than done - we've all felt overwhelmed early on).

Gotta start w/ reviewing current diet.

So, whatcha eatin'?

squirmingitch Veteran

I call what you're feeling gluten withdrawal. I felt like that & then some. It lasts different for different people. But you will find plenty of discussion on it here in threads. Use the search box & put in gluten withdrawal or just withdrawal.

1desperateladysaved Proficient

I am three weeks into gluten free and can relate. I felt so good for the first week. The swirls in my head are quieter, but they are still there.

MitziG Enthusiast

Withdrawal. First 6 weeks can be tough for a lot of people. Stick with it, it gets better!

  • 1 month later...
IndiaEileen Newbie

Yep, I think it's a sort of withdrawal. I had the same thing a couple weeks after I quit. I suddenly had crazy headaches and was wicked dizzy with terrible stomach pains. I felt like I was hung over! What I read is the gluten submits a toxic layer to your stomach lining. When you quit the gluten is starts to peel away and enter your stomach for a bit before it passes. Just stick by your water bottle and it'll pass. Keep up the good work!

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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