Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Eye Complications
0

8 posts in this topic

I know we're dealing with an autoimmune condition here that causes a lot of inflammation, but I thought I'd try to find out how many people here have specifically had an issue with eye inflammation prior to going gluten-free or after being accidentally glutened.

I've had a nasty headache, and just today realized that my right eye is feeling rather "sore" - like a bruised muscle - particularly if I look out of the corner of my eye. I saw the eye doctor this afternoon, and there is no visible redness or swelling (and no mass at the back that suggests a tumor!), no increased pressure, or floating cells in the back of my eye, but his best guess is a low level of general inflammation in the area around the back of the eye and the muscles that control it. Ironically, he had mentioned that folks with autoimmune conditions sometimes have this pop up - and after he mentioned that, I mentioned the celiac disease. (He gave me non-steroidal anti-inflammatory eye drops to use for a week.)

So my question is whether or not anyone else here has dealt with something similar in the area of the eye?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Yes,

I have had eye inflammation several times. The doctor never gave a reason for the inflammation just treated it and told me not to read for a few days and wear dark glasses. I haven't had a problem since going gluten-free, but the last time I had my eyes examined I was told that I had a torn retina and was developing cataracts. I never thought about this being related to Celiac.

0

Share this post


Link to post
Share on other sites

I don't have inflamation. I do have "eye crusties" (that is what I call them). It is similliar to what you would get after waking in the morning, but it is all day. I took away makeup and changed my soap, but it just doesn't help. I also couldn't wear contacts because my eyes were dry before going gluten-free. I now can wear them for up to 12 hours! I know it is a little different but that is my story. :)

0

Share this post


Link to post
Share on other sites

When my symptoms first started I had SEVERE eye problems. It was the worst pain I've ever experienced in my whole life. I also had Graves Disease going on at the same time. I think it was a combination of both conditions affecting my eyes. I had alot of pressure and my eyes were just really sore. I also got so sensitive to light I had to wear sunglasses even in the house at night. I couldn't go to the movies cuz of the screen being too bright and I couldn't drive for a couple months. Every eye test they performed came back fine...my vision was good. It took about 6 months but everything kinda fixed itself. I still have some soreness in my eyes on a regular basis and it gets way worse after I'm glutened. Gluten makes the tissue around my eyes swell and my eyes also get really dry. Nothing ever worked for me...I tried all the drops and they made the pain worse. The doc put plugs in my eyes to try to keep them moist but that didn't work either. I'm shuddering just thinking about it...thank God its better now.

0

Share this post


Link to post
Share on other sites

I twice had fluid gather in the membrane around one of my eyeballs, making the eyeball stand right out as well as become reddish.

I can't remember whether it was the same eye both times or different.

They were a few months apart.

I may have been rubbing them but am not sure whether that was it.

The first time, a friend took me to hospital in the middle of the night and the doctor there gave me drops and it went down in a few days.

The second time it went down by itself in a day.

Those occasions were about 3 years ago, around the time I was developing the acute abdominal symptoms after going WF but not gluten-free yet.

My GP said it was not the sort of eye problem that went with Crohns therefore he ruled out Crohns. (I had had a problem on the chest shortly before, which also reminded me of Crohns incidentally.)

Anyway without a visit to the enterologist I have been diagnosed with gluten & wheat sensitivity which is a lot luckier than most still suffering unremediated out there...

0

Share this post


Link to post
Share on other sites




I don't know if it is inflammation or not...My opthamologist said all looked good but I have a chronic pain above my left eye and a feeling of pressure around it. It feels like something is poking it but no doc can tell my why..... I am just assuming it is related to all this celiac stuff and hoping it will go away soon! :)

0

Share this post


Link to post
Share on other sites

B)

I don't know if it is inflammation or not...My opthamologist said all looked good but I have a chronic pain above my left eye and a feeling of pressure around it. It feels like something is poking  it  but no doc can tell my why..... I am just assuming it is related to all this celiac stuff and hoping it will go away soon! :)

<{POST_SNAPBACK}>

I also have had eye problems including migraines which cause you to have distorted vision. A few months before my diagnosis I would have what I called "attacks". About 45 min after eating breakfast (containing gluten) I would get very dizzy, anxious, and get like shimmering pools of light in my vision. I couldn't stand bright lights, my eyes were crusty, red and itchy. Sometimes I get sharp stabbing pains in my left eye. Most of these symptoms have cleared since going off gluten, but I still need to wear sunglasses when outside on a sunny day or following a car with a glare on it. I was treated many years for allergies, hay fever, etc., but not much problem since going gluten-free. My main allergy problems this year are headaches and cough with wheezing. My brother once said that he had never had a headache in his life and I asked myself why me???

My eye check ups have all been good, nothing abnormal so I chuck it up to neurological problems from the gluten intolerance. By the way, my new eye doctor has Celiac's, small world! B)

0

Share this post


Link to post
Share on other sites

I used to have eye problems too - when I was in junior high to nineth grade (less than 10 years ago), I would get blurry vision in my periphery. Sometimes it would move around my eye, but most of the time it was just to the sides. This happened infrequently, but it scared my mother and doctors enough that they gave me a catscan, finding nothing unusal, of course, and blew it off as migranes (though I had no headaches). Eye doctors didn't notice anything either. These "attacks" were not associated with anything else really, no headaches or tummy problems. I went for years without any more attacks, until Febuary 2005. I had been diagnosed with celiac disease Nov. 2004, but was still getting used to the diet and making mistakes. I have had a suspicion that this was associated with celiac disease. Depending on how many others have experienced these similar problems, I wouldn't be suprised if there is a connection.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,385
    • Total Posts
      920,613
  • Topics

  • Posts

    • Squirmingitch, I forgot to mention best of luck to you during the storm! I hope you are safe and that your home isn't impacted too badly! I'm on the coast in SC so we will see some storms from it but nothing near as bad as what you will have. Take care and good luck.
    • SquirmingItch, I really appreciate you gathering info for me! To answer your questions, yes, I'm on Dapsone now and have been on it for about 4.5 weeks. I have been gluten free for the same amount of time. I started on 50 mg of Dapsone which didn't seem to help much. I spoke to my doctor about it and after about a week she raised it to 100 mg. Since then I did notice a huge improvement in both my rash and itch. I no longer have any active rashes and my itching isn't completely gone but it's very minimal. I have been getting weekly blood tests done and will soon be moving to monthly.  My DH skin biopsy was done before the gluten free diet and Dapsone. My results for the skin biopsy came back as inconclusive, but even with those results, my doctor was convinced I had DH. I specifically asked her about the fact that she took the biopsy directly from the lesion rather than next to it and if that affects the result. Her explanation was that if it's a fresh enough lesion that isn't scratched, there should be IgA antibodies present. But she said that an inconclusive result isn't surprising because the IgA antibodies come and go from the skin so quickly that it can be very difficult to get a positive result, even in someone who is positive.  That's when she decided to run the celiac blood panel on me. And even though those results came back positive for the deamidated gliadin and negative for tTg, she still is very convinced that I have DH. I am happy that my doctor seems to be certain, but I would just feel better if the results were more definitive. The one other thing I am waiting on is I have been asked to attend grand rounds at the local academic hospital in 2 weeks. I guess grand rounds is where all of the academic dermatologists and dermatopathologists get together to review certain complicated cases. They will meet with me, review all of my pictures, biopsies and blood tests. My situation has been so complicated so they asked me to come. I am hoping maybe then I will get some more answers. 
    • It sure is, it really is. 
    • shellyb, I have info. for you & you may yet be able to get an official dx from your dermatologist as she sounds like she would be willing to learn. If you are dx'd with dh it is definitive & no other testing is needed. You don't need to see a GI. Im in FL & have had a long day watching Tropical Storm Hermine & making preparations for it's track which is over where I live. I'm tired! I will have links for you to reputable medical info. on the rash but it make take me till tomorrow or even longer if we lose power.  I'll be back as soon as I can. Question: You're on Dapsone now? How long have you been on it? How is it working for you? Are you getting the proper testing at regular intervals to make sure it isn't doing bad things to you? Were you gluten free before the skin biopsy?
    • Thank you so much for your quick response, GFinDC. While I wouldn't be completely opposed to another skin biopsy, I already had 4 done (3 were done prior to my dermatologist suspecting DH) so I don't love the idea of  yet another hole and scar on my body. Plus, fortunately I don't have any fresh lesions now, which I believe is needed for the biopsy. I wish I would have known to see a GI before going gluten free but I was so desperate to get any relief that I started that and Dapsone as soon as my doctor mentioned it to me.  My rash is definitely symmetrical and I have it in all of the "classic" DH spots although it basically spread over my entire body. As much as I'd like a more formal diagnosis, I really don't think I can go through all of that again. It was so bad that not only was I getting no sleep but I had to change my sheets every morning because there was blood all over them. Sorry, TMI. The worst part is that this all developed during my ninth month of pregnancy and got much worse after I delivered my baby. So not only was I dealing with this insanely itchy rash but I had a newborn and a toddler to take care of.  My daughters' pediatrician did mention doing DNA testing on me first and then my daughters to see if there's any concern that they may be susceptible. I may just go that route for now. I was just curious if others have had similar test results to mine and how did their doctors treat it? Thanks again!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,455
    • Most Online
      1,763

    Newest Member
    JLeigh
    Joined