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Looking For Celiac Believing Doctor


Razzle Dazzle Brazell

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Razzle Dazzle Brazell Enthusiast

Hi everybody, I am 22 years old and have had anemia and several health problems my whole life including: tachyarrythmic episodes, interstitial cystitis, chronic fatigue, abdominal swelling w/constipation then diarrhea, arthritis w/ no injury and intermittent spasms in extremities. I have recently been told that i could have a sensitivity to gluten. When i quit eating gluten the bladder condition(supposed to be permanent) disappeared and the abdominal swelling subsides (although i think i have been swelling with soy and i am now lactose intolerant as an adult).

I am desperate for some advice as to where i can go to get tested for a gluten allergy or celiac disease but the last doctor i went to did not have me tested (i payed $500+ out of pocket and he failed to order any allergy tests or anything after i expressed my severe symptoms and desire for testing.

Needless to say i dont want to be waisting any more money as i do not have insurance. I am also not very enthused to start eating gluten again because it usually has me sleeping ten hours a day and still walking around like a drowsy zombie. I want to make sure if i go through this it gets done right.

Anyway my questions are: Does anyone know a good doctor around chattanooga?

What kind of tests should i make sure he orders?

Thank you so much in advance!


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    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
    • trents
      I would not think store bought yogurt would contain gluten unless it possibly could be through an added flavoring or coloring ingredient. Otherwise, it should be naturally gluten free.  Keep in mind that some companies are capitalizing on people's fears and ignorance (nothing personal intended) by labeling foods "gluten free" that are just that way by the nature of what they are. They are hoping to create a marketing edge over their competitors by adding "gluten free" because they know it may catch attention of those new to the celiac/gluten sensitivity experience without having to cost them anything in the way of changing their manufacturing process or doing testing.
    • trents
      I believe the GFCO does use a common logo for certified gluten free products (those containing not more that 10ppm of gluten) but nothing universal yet from the FDA for standard gluten free products (those containing not more that 20ppm). 
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