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Looking For Celiac Believing Doctor


Razzle Dazzle Brazell

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Razzle Dazzle Brazell Enthusiast

Hi everybody, I am 22 years old and have had anemia and several health problems my whole life including: tachyarrythmic episodes, interstitial cystitis, chronic fatigue, abdominal swelling w/constipation then diarrhea, arthritis w/ no injury and intermittent spasms in extremities. I have recently been told that i could have a sensitivity to gluten. When i quit eating gluten the bladder condition(supposed to be permanent) disappeared and the abdominal swelling subsides (although i think i have been swelling with soy and i am now lactose intolerant as an adult).

I am desperate for some advice as to where i can go to get tested for a gluten allergy or celiac disease but the last doctor i went to did not have me tested (i payed $500+ out of pocket and he failed to order any allergy tests or anything after i expressed my severe symptoms and desire for testing.

Needless to say i dont want to be waisting any more money as i do not have insurance. I am also not very enthused to start eating gluten again because it usually has me sleeping ten hours a day and still walking around like a drowsy zombie. I want to make sure if i go through this it gets done right.

Anyway my questions are: Does anyone know a good doctor around chattanooga?

What kind of tests should i make sure he orders?

Thank you so much in advance!


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    • trents
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    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
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    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
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