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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

What Is The Severity Of Your Reaction To Gluten?
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28 posts in this topic

I'm not diagnosed, but I am symptomatic. I get headaches, nausea and fatigue...and depending on how much gluten I have, the reaction can start within an hour and stay with me for up to a day.

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Hello, I'm new to this site smile.gif

I am 17 years old, and have been gluten-free for a little over 2 years (wow, I didn't realize it has been this long). I have a younger cousin, 3 years my junior, who has Celiac and Juvenile Insulin-Dependent Diabetes. She has been gluten-free for about 5 years now. When she eats gluten, she doesn't get sick at all (in fact, she cheats all the time. *jealousy* :/ ). However, when I slip up, I am ridden with crippling pain, and do not feel better for atleast 6 hours. My reaction has always seemed very severe, and I was wondering, how bad are your reactions?

Kaitlyn

 

Wow, you're lucky!!! 6 hours?! My reaction when I eat either gluten or dairy lasts for about a week, sometimes more! I've had it for a little over a year, and I'm also 17 years old. You're reaction is similar to my friend's. All her muscles cramp up and she CANNOT move. She lays there for however long. My reaction is quite different. I puff up like an oompa loompa. Every inch of my body bloats terribly and I become sick to my stomach. During these times, the bathroom becomes my best friend. Also, I get these horrid migraines. They've given me tylenol with codeine, but of course people with Celiac's have malabsorption and so it doesn't work all that well. Also, I lose all sensation in my feet, legs, hands, and arms. Lately, it feels as if someone is pushing quite hard on the instep of my feet. It's not painful, but I cannot walk. It's happened in my hands and arms too, and I have to stop whatever I'm doing, even if I'm in class at the time. My skin also breaks out in random rashes (not sure what that's really about). Oh, the list goes on and on. 

 

Hope that helped!!!

B

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Hey I just tested positive for this reaction and it might also be something else.  After eating something with gluten i start with burps, then cramps, "bathroom symptoms" and then at night i get the shakes and cant relax. I try hard to be good, its been almost 3 weeks, but I just had about 5 days of a reaction where I drink so much Nyquil to sleep through the pain that I'm worried about waking up. I'm sick of burping all the time and having cramps. My doctor has me seeing a specialist soon to probably scope for more issues. I'm so bad at knowing what I can and can't eat and my reactions are getting worse and it takes longer to get over them. I only got tested for gluten because of having 3 reactions in 3 weeks due to work xmas parties. =(

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