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If It Isn't Just Gluten, What Is It?
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8 posts in this topic

I have been suffering from various weird symptoms of what I think must be various vitamin deficiencies

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It is quite possible that if you used your same utensils and same bread pan that you cross-contaminated your gluten free loaf with gluten crumbs which are very hard to get rid of. Porous utensils (think wooden and plastic), cutting boards,etc., can all harbor gluten.

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Burping can be a side effect of GERD - are you still having other GERD symptoms?

Celiac or gluten intolerance could be causing your GERD, but it would take a while to clear up after going gluten free. GERD or GERD-like symptoms can also be caused by some medications.

Do you have other gastro symptoms when you eat dairy, like diarrhea?

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Aqua, you need to read the thread, "Newbie 101". It'll teach you all of the places gluten can hide. As Mushroom said, it could very well be cross contamination. Pans, utensils, your toaster, all of these things can hold gluten.

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Thanks for all your replies :)

I do not think it can be cross-contamination since I have used all the equipment for other things since I last used them with gluten and have not become ill - I use the same pots and pans for everything and cook 3 meals a day with them, none of which have made me sick.

I also have not had any other gastro symptoms from dairy, just burping and pooping a little more often. I still get GERD symptoms from time-to-time, but they didn't really accompany the burping from the bread today. Belching is at least fairy minor - socially awkward but nothing that is going to cause too much pain!

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i'm putting my money on the flour blend. Have you used it before?

Also, vitamins and whatnot can occasionally contain gluten.

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Are you still experiencing gum infections and loss of bone density in my teeth, constant rashes and allergic reactions, sleeping 12+ hours a night, foggy mind, sores in the corner of my mouth, depression and anxiety, sciatic pains, dry skin, poor circulation, hair loss and weak nails? Or have these symptoms started to show improvement?

Something to consider if you have only improved in some area is eliminating Sodium Laure Sulfate (SLS) from your environment. It is in a lot of stuff and will overwork your immune system (check tooth paste, hand soap, shampoo, bubble bath, and even some prescriptions). This may help with dry skin, the sores in your mouth, increase the strength of your hair (maybe nails, not sure) and decrease the overall inflammation level of your body and help decrease fatigue.

Insofar as loss of bone density, if you are having trouble absorbing calcium then you may have damage to the upper part of your intestine, where celiac does the most damage. Supplementing calcium may be a good start as well as digestive enzymes to help your system break down any fat soluble vitamins you might not be absorbing as well (Vit D or magnesium shortages can also cause decreased bone density).

Hope this helps.

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It would be good to get the blood testing for celiac disease done before going gluten-free. The antibodies start dropping off after you go gluten-free and are harder or impossible to detect. The gluten-free diet is not an instant cure though, it can take months (or years) for the GI system to heal and symptoms to go away. In the beginning of the gluten-free diet it is not unusual to have somewhat random reactions to foods that may not be gluten reactions at all. Your digestive system is irritated and raw inside and things just don't work right in that condition. That doesn't mean you shouldn't be careful and try to eliminate all traces of gluten though. A whole foods diet with no processed foods is a good way to start the gluten-free diet.

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    • I would be very careful in giving this kind of advice, she is in an advanced stage. I was there and one additional symptom that I was getting was a strong urge to commit suicide so eating gluten for three months might not be the way to go for some people. If a gluten free diet stop the problems them gluten is the problem or a least part of it. I eliminated MSG from my diet because I notice that the common denominator for some products that affected my well being was MSG. I eliminated oats because I notice that I would get canker sores every time I ate it. Wheat is what affect my brain the most, irritability gets uncontrollable, my mental capacity greatly diminish, rash in my arms appear, can't sleep,etc. Barley makes my stomach groan, and constipated. Will try testing how Rye affect me some later time. 
    • Hi Aly and welcome You may want to repost this in a new thread, that way more people will see it and can advise you.  I think you would be much better off getting the celiac test now, if you stay off gluten you will need to go back on it and that can be much harder. That said, loads of your symptoms look like they could be gluten related.  I had a persistent 'trapped nerve' for instance under my eye which would twitch like crazy. Since I went gluten-free doesn't happen any more.  Best of luck! Matt
    • Your scalp sounds like seborrheic dermatitis. I have that and although its better after going gluten-free its very persistent. The dermatologist recommended Nizoral shampoo for it and it does help. I think dairy has a big part to play with skin problems, for me at least. 
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
    • Just found this site today. Did you ever find one? I was diagnosed this year and I live on Oahu.
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