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Normal-Looking Colonoscopy And Endoscopy

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Posted 20 October 2012 - 10:42 AM

Just had my first ever colonoscopy and upper endoscopy yesterday and was just fine. I was told that my intestines look normal, but they still did a biopsy. I don't know enough about Celiac's disease, but does this mean I am in the clear?
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Posted 20 October 2012 - 11:03 AM

Your biopsy samples need to be examined under a microscope. What's seen or not seen w/ the naked eye isn't enough to rule out Celiac Disease.
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>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07



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Posted 20 October 2012 - 11:05 AM

What tom said...plus, Did you have any blood work for Celiac before this?
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Posted 20 October 2012 - 11:49 AM

You can also have false negative biopsies for a variety of reasons. If you had positive blood work you need to be gluten free no matter what the biopsy results. If you are done with all celiac related testing then go ahead and give the diet a strict try for at least a couple months to see if it helps the issues you are having.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)

celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom

Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)



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Posted 20 October 2012 - 06:47 PM

I have not had any blood tests for Celiac's, but did request my doctor to run them. He wants to see first how the biopsy turns out. I would have to say though (even if it is in my head), on the days when I eat a lot of wheat-based foods, I'm nauseous, have loose stool or diarrhea, and get indigestion. Ugh. Had a lot today and wish I hadn't. Thanks for all the input!

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