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Losing Weight And Frustrated
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So, since I've lost a good eight pounds from obvious steatorrhoea, which has been confirmed, aside from taking Creon, what kind of things should I do to help myself gain/keep weight? Less sugar consumption? Less fat intake? I have started eating more, and increasing my caloric intake to between 2500-3000 calories a day. I already have a fast metabolism, and I started out slim to start with. Originally I weighed 140, now I only weigh 132. I'm trying my best to keep this weight and gain more, but it's getting frustrating because I don't know even with the caloric increase if I'm actually gaining anything. Is there something you guys did to help this? Thanks.

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Are you newly gluten-free? If so, it can take time for your body to heal and begin to absorb nutrients properly. Once this happens weight/metabolism issues tend to equalize - those that lost weight gain and those that gained weight lose - for now keep up the caloric intake and increase good fats from fish, nuts, avocado, coconut, olive oils, etc.

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My son and I both lose weight every time we have problems with one or more of our foods bothering us. We have to do diet challenge/elimination studies to figure out what it is. We both get pretty obvious symptoms so that helps figure it out. Then we consume like crazy to get the weight back up again. Whole milk and whole milk yogurt helps a lot. I've just been through that and regained the 5 lbs that I had lost. My son could still use another 10 or so.

Do you just need to heal more to get rid of the steatorrhoea, or do you need to make dietary changes?

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Like GottaSki said, it could be because you're new to the diet (if you're new to it). I've been gluten free for almost two years now and have only started putting weight back on, except for some silly reason, its going all to my stomach :angry:

It'll definitely take some time, especially if you have a fast metabolism. I have one too, which could be why I took so long to put the weight on.

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Eat plenty of meats, eggs, avocadoes, fish, and nuts. I don't suggest sugar and carbs because they can cause other problems.

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    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
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