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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Nausea/indigestion With A Lot Of Other Foods
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6 posts in this topic

I just found out about my Celiac about a month ago and have been adjusting fairly well to the gluten-free diet and, for the most part, am feeling much better.

However, I'm getting REALLY bad nausea and upset stomach (diarrhea, exhaustion, acid reflux) whenever I eat a lot of different food that don't have gluten. I haven't really been glutened except for a few times there was a dirty pot or my roommate left crumbs out and I had severe cramping and bloating that doesn't feel like this does. I'm writing this after having eaten some gluten-free mac and cheese that I made last night, that also made me feel incredibly ill then but I thought it was just because I had a long day. None of the ingredients are spoiled and I checked for CC. All that was in it was corn noodles, Smart Balance light, cheddar cheese, Bob's gluten-free flour, milk, chex, and salt/pepper. Could it be that I have lactose intolerance? I understand that's fairly common amongst us. Is it just that those with Celiac are just oftentimes ill by things? I'm new to this, so I'd really appreciate the help.

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Welcome!

It could be an issue with lactose.

You said you are fairly new to celiac disease and the diet. If your body was damaged by celiac disease, your intestine will not heal overnight. My nausea and vomiting continued for several weeks after going gluten-free. It was about three months before I was generally symptom-free.

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Hi. This is my first time on here. I have been gluten free for almost a year. Dairy will make you sick for a while until your intestines heal. I couldn't eat it for months and lately it doesn't bother me.

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It is possible that pretty much anything could be upsetting you. Milk, corn, one of the flours in the blend, something in the margarine, who knows. It is also possible that it is actually a reaction to gluten. Over time our reactions to gluten can change and become more severe. So even if you haven't felt this way in the past, it could be in response the the recent gluten. I can say for sure that it took months for the nausea to resolve after going gluten free for me. After a glutening it will take weeks for it to resolve. Until then all I can do is baby myself and take tender care of my tummy. Lots of ginger ale and bitters, lots of peppermint tea, a little fresh warm applesauce. (Really, it takes 10 minutes and is easy and idiot proof enough even for me.) Just be kind to your stomach until it resolves and try to have patience.

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You could also try a (gluten free) probiotic and/or digestive enzymes supplement.

Keep a food journal to help determine if you have another food sensitivity,

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I have been gluten free for almost a year. I was pretty laxidasical about glutening and have had my share. I recently felt so crappy my doctor told me I really had to get serious and cut out all the cross contaminations. Well this weekend I was SO careful while dining out but did have quite a bit of dairy ad holy cow, I felt like crap and my stomach was grossly bloated after. My point here is that I still feel crappy quite a bit. Days of indigestion as you describe and reflux.. I think I am sensitive to other foods, particularly dairy....but also corn, and other grains. I agree a food journal is a great idea if you can keep one!!

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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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