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Will Congress Act to Label Gluten in Medicines?

Celiac.com 10/19/2015 - People who must avoid gluten for medical reasons just got a reason to be hopeful that gluten in medicines, which are not regulated under the current FDA law, might soon be labeled by law.

U.S. Representatives Tim Ryan (D-OH) and Nita Lowey (D-NY) recently introduced a bill to make it easier for people with gluten-related disorders to identify medications that contain gluten.

Their bill, the Gluten in Medicine Disclosure Act of 2015 would change the Federal Food, Drug, and Cosmetic Act so that the label of any medicine intended for human use must divulge any ingredient, besides sugar alcohol, that is derived from a grain or contains gluten. The bill is intended to help people with Celiac disease avoid gluten.

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"Americans deserve to know what is in their food and drugs," agreed Lowey. "Providing uniform standards for food and drug labeling will make a world of difference to the quality of life for people with celiac disease.

People want medicine labels to provide "the information they need to protect their health and wellbeing," Ryan added.

Keep an eye on congress to see how this proceeds, and check back with celiac.com to follow progress on this important issue.

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1 Response:

 
Wanda
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said this on
26 Oct 2015 12:06:15 PM PDT
It would be nice and helpful, however, since I am one of the many who are extremely sensitive, I think the 20ppm will come into play and still make it just as hard for me to find safe medicines. An example, pre-gelatinized starch can come from a variety of sources. Who's to say they will properly clean their machines if they source it from wheat?




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Wish I could give you a hug. Unfortunately I know how that feels with Neurologists, Internists, Endocrinologists, Rheumatologists, GIs..... I got so tired of crying my drive home after refusing yet another script for Prozac. I do hope your GI can give you some answers even if it is just to rule out other possible issues. Keep on the gluten and we are here for you.

It is too bad that so often a full panel isn't done. Glad your appointment got moved up and hopefully you will get a clearer answer from the GI. Do keep eating gluten until the celiac testing is done. Once the testing is done do give the diet a good strict try. Hang in there.

That makes sense...I cried with relief when I got my diagnosis just because there was finally an answer. Please know that you are not weak or crazy. Keep pushing for testing. It could still be celiac, it could be Crohns. Push your Dr's to figure this out. Best wishes.

Thank you all very much. I actually cried when I got the answer. I wanted an explanation that I could "fix." Now I'm back to thinking I'm just weak and possibly crazy. I know I'm not crazy, but you know.

From what I have read online there is about a 1-3% chance of getting a false positive for celiac disease from a blood test. Was it a blood test that you got done? It may be worth your while to get a biopsy or more testing just to confirm it. I know being gluten free is a pain but it is better than getting cancer or other auto immune disorders.